Wow, Murr, when you give things plenty of thought...well,
let's just say, you give things PLENTY of thought. You have
certainly pointed me in the right direction. I was
envisioning a kind of 60's thing, with busloads of Parkies
converging on D.C. but times have changed, and maybe in the
security-conscious aftermath of 9/11, that isn't such a hot
idea. You have educated me in what is happening in my area
on a grassroots level. (There's a Cockaponset State Forest
in Connecticut? Better get out that map.) Maybe the place
to begin is in my quiet corner of Connecticut...Carole
Hercun

--- Murray Charters <[log in to unmask]> wrote:
> Good Morning Jeff, Carole, Meg, and All,
>
> I gave this plenty of thought....
>
> A huge effort and infrastructure would be required,
> duplicating everything that is already in place....
>
> Oh, I know... there isn't a National Coast to Coast
> US combined single entity...
>
> But there are several very successful events...
>
> Which we could support... and make BIGGER...
>
> Check this single event...
>
> The Parkinson Unity Walk (PUW)
>
> The PUW, and other similar organizations, are crucial
> to funding research to find a cure for PD. The Walk is
> a cooperative venture—so much so that "unity" is the
> event’s middle name. Net proceeds from the Unity Walk
> support the following major U.S. Parkinson’s foundations:
>
> American Parkinson’s Disease Association (APDA)
> National Parkinson Foundation (NPF)
> Parkinson’s Action Network
> Parkinson’s Disease Foundation (PDF)
> The Michael J. Fox Foundation for Parkinson's Research
> The Parkinson Alliance
> The Parkinson’s Institute
>
> All net contributed funds to the PUW are used by these
> organizations to fund and promote research. Expenses
> are funded by sponsors, including: corporations (such as
> pharmaceutical, financial, real estate, oil companies);
> research foundations; philanthropic organizations;
> and miscellaneous caring donors.
>
> (foregoing excerpted from...)
> http://www.unitywalk.org/whatis.shtml
>
> check these sites and read about what is in place!
>
> Parkinson’s Unity Walk Raises More Than $1 Million
> 6,000 Participants Generate Record-Setting Figure
> Parkinson’s Unity Walk began nine years ago
> when 200 friends, family members and fellow Parkinson’s
> patients joined Zobel.
> http://www.unitywalk.org/press_release1.shtml
>
> Margot Zobel, Founder of the Parkinson's Unity Walk
> Speech given April 14, 2002
> http://www.unitywalk.org/speech.shtml
>
> Parkinson's Unity Walk 2003
> Welcome to Our New Online Participation Page
> http://www.unitywalk.org/index2.html
>
> Let's focus on the existing events...
>
> Carole... APDA is running in your state...
> The APDA Walk-a-thon is the largest grassroots fundraiser
> in the world dedicated to Parkinson's disease research.
> Expenses are kept at a minimum, so 100% of the money
> sent to the national office is used for research.
> The Walk-a-thon is also the only fundraiser where the
> entire net proceeds are sent to the national office.
> Many individuals who do not regularly donate to APDA
> take this opportunity to directly fund research into the
> cause and cure for Parkinson's disease.
> http://www.apdaparkinson.com/howwalk.htm
>
> walkin' in Manchester, CT Oct. 6th.
> and in Cockaponset State Forest, CT Oct. 20th.
> http://www.apdaparkinson.com/howwalk.htm
>
> 8th Annual Cockaponset Trail Race
> http://www.chesterct.com/cockaponset.html
>
> and... if you live in New Mexico...
> Join and Support Tom Berdine
> The  Young Onset Parkinson's Association
> and The American Parkinson's Disease Association
> present 1st Annual Southwest Regional Parkinson's Disease
> Conference
> and 1st Annual Young Onset Parkinson's Disease Awareness
> Walk
> October 11-12 2002 Albuquerque, NM
> http://www.youngparkinsons.com/symposium.htm
>
> and if you're really ambitious...
> Founded by Mary Yost three years ago, Team Parkinson
> set a new record by raising over $90,000 at the 2002
> LA Marathon!
>
> Team Parkinson 2003
> http://www.teamparkinsonla.org/home.htm
>
> Sooo... Let's make Parkinson's Unity Walk in NYC
> go to $2,000,000 in 2002... Margot & Ken won't mind!
>
> and Team Parkinson to $180,000... Mary 'n John 'n Edna
> wouldn't object to that...
> (or to the Boston Marathon as well?)
>
> and find out more about APDA Walk-A-Thon
> and support doubling their goals...
>
> Didja know APDA Walk-A-Thon have a 15 year history
> in Rhode Island?  and maybe more elsewhere...
>
> This is where we can help instantly...
>
> Let's promote awareness of the existing events
> that are only there through YEARS of dedication
> and hard work...
>
> So, let's NOT reinvent the "wheel"...
>
> Can we have a coast to coast national US walk?
> Maybe... there is a merger of PDF and NPF that
> is taking place over the months ahead...
>
> And I know PDF and Parkinson's Alliance have a
> very sound working relationship...
>
> Let's first find out (as Meg Duggan has) if there
> is an existing walk in our area... and then act
> accordingly...
>
> Let's attend our own area walk, let's volunteer, etc.
>
> YES, this CAN BE DONE!
>
> cheers ... murray
>
>
> On 28 Sep 2002 at 11:12, Jeff Bayard wrote:
>
> > Yes, and what can we name it? Whats a good name for
> this walk, which could
> > coincide with Canada's schedule.
> > The North American Walk for Parkinsons?
> N.A.W.K......Walk the Nawk!
> > If you cant talk the talk, walk the Nawk!
> > Give me some ideas, folks! This CAN BE DONE!
> >
> > Jeff Bayard
> > Help Find the Cure!
> > http://dialforacure.com
> >
> >
> > ----- Original Message -----
> > From: "Carole Hercun" <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Saturday, September 28, 2002 8:05 AM
> > Subject: Re: Superwalks / Point Me in the Right
> Direction
> >
> >
> > > Good Morning, Murr-
> > > You Canadians appear to be ahead of us in this
> regard. I
> > > have participated in the Unity Walk in NYC, and that
> is
> > > awesome, so I imagine a nation-wide Superwalk would
> > > be...well, spectacular. I haven't been much of an
> activist,
> > > sitting quietly in my little corner of Connecticut,
> BUT
> > > since I am currently jobLESS, indirectly due to my PD
> and
> > > have more time than money, and little to do but work
> on my
> > > unsold manuscripts, maybe this is the time to start.
> I feel
> > > like that Peter Finch character in that movie where
> he's
> > > screaming out the window that he's not going to take
> it
> > > anymore. I haven't a clue how to begin, so if someone
> with
> > > more politcal savvy can point me the right
> direction...
> > > Carole Hercun
> > > P.S. And let's be positive, folks. I don't need a
> > > godzillion replies saying I don't know what I'm
> talking
> > > about. I DON'T know what I'm talking about, so help
> me out.
> > >
> > > --- Murray Charters <[log in to unmask]> wrote:
> > > > Good Morning Carole, Meg, SuperWalkers, and All...
> > > >
> > > > SuperWalk for Parkinson's raised nearly a million
> bucks
> > > > in Canada last year and will easily surpass that
> this
> > > > year...
> > > >
>
=== message truncated ===


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