Sometimes, dear Kathrynne, you are like a candle in the darkness.  Thank you
for being our friend!
E of the headdress


----- Original Message -----
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, October 05, 2002 10:50 AM
Subject: Re: New to PD


> Maggie Mauney wrote:
> > Thanks to all of you who replied to my recent email to the list.  I'm
still
> > trying to come to terms with my diagnosis, and was only diagnosed last
week,
> > so I have many questions on what my future holds.
> >
> > I'm 52 years old, and am in terrible health--I'm diabetic, have had 3
heart
> > attacks, have severe osteoporosis, and now PD; I guess I'm expecting to
die
> > suddenly any minute now.
> >
> > I still have to try to work, since I've been told I don't qualify for
> > disability until I'm unable to work for 12 months.  I'm a cashier at a
> > grocery chain, and the tremors and difficulty walking are definitely
> > interfering with my work.  I live alone in the country--driving is
difficult
> > now--I have problems getting into and out of the car, and if I drive for
a
> > good while, I get dizzy and disoriented.  My family is not nearby, and
it's
> > difficult for any of them to understand my limitations and my fears.
> >
> > I do, however, live just a few minutes from Duke University Medical
Center,
> > and from University of North Carolina Hospitals, so I have a good
referral
> > network close by.  I want to learn more about what to expect, and will
be
> > following the posts on the list to get some suggestions about how to
manage
> > better.  I will probably buy a cane to use for walking--with my severe
> > osteoporosis, I worry about breaking bones when I fall.  I will try to
> > discuss my concerns with my neurologist--though he has a very hectic
> > practice and is always quite rushed.
> >
> > Thanks for the links for more information.  I will definitely check them
> > out.
> >
> > Maggie Mauney
>
> Dear Maggie,
> With diabetes, heart disease, osteoporosis, and PD, you have very real
> concerns, and if your doctor hasn't already done so, s/he should refer
> you to a registered dietitian for medical nutrition therapy.
>
> You may qualify for disability -- a gentleman with PD has generously
> compiled information regarding SSDI for people with PD on his website:
>
> Parkinson's, SSDI, and you:  Social Security Links with the Person with
> Parkinson's in Mind
>
> http://users.adelphia.net/~firingpin/ssdi.html
>
> For faster loading, click on the little white "building icon." On the
> next screen, some browsers may show a vertical row of "red lights" with
> text next to them; other browsers may show the text farther down the
> screen; be sure to scroll to the bottom of the screen.
>
> I would certainly consider this, and would also ask other listmembers
> about their experiences -- some have been very successful!
>
> If you are near Raleigh, here is the name of a dietitian who will work
> with people who have PD, and I have promised to help her at need:
>
> Barbara Ann Hughes, PhD,RD,LDN,FADA
> 4208 Galax Dr.
> Raleigh, NC 27612-3714
> 919 787-2949
>
> Best regards,
> Kathrynne
>
>
>
> --
> Kathrynne Holden, MS, RD
> "Ask the Parkinson Dietitian"  http://www.parkinson.org/
> "Eat well, stay well with Parkinson's disease"
> "Parkinson's disease: Guidelines for Medical Nutrition Therapy"
> http://www.nutritionucanlivewith.com/
>
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