Hi Sandy,
   I'm Paula from Pennsylvania, 48, have had to give up working, had
successful DBS two years ago, but I feel like  I've had to give up all the
things that gave me a reason for living.    I am very grateful that I have
such an intelligent husband and two beautiful blonde daughters, 23 and 21.
I was 128 lb...  Now I am 183+.
It's because I can't walk whereas I was on myfeet 18 hour days when I
co-owned and operated our family business.  I was in charge of the back of
the house - kept on the grill so orders would get done right and timely.  I
also did payroll, accounts payable, ordering of uniforms, three loads of
towels daily, and maintained a home with two children, two dogs,a cat, and
fish. Now after being out of the business almost six years, I'm not much
more than an embarrassment.  I don't look nice in my clothes anymore, I am
not supposed to drive if not necessary, I can't go grocery or Xmas shopping
alone.  I had beautiful handwriting I was so proud of.  Now I can't read my
own signature. So...I eat...and that's not helping either.
So if ER helps in any way, I'm for it.
Paula----  - Original Message -----
From: "Sandy Fowler" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, November 08, 2002 10:24 AM
Subject: Re: ER and PD


> Hello, I am another unfortunate sole to be in that percentile of humans
> with PD.  I am in Texas and just added myself to this PIEN.  I am still
> confused  with some things here, but I'll figure it out.  I wanted to
> respond to KM Janis, MD.  Born in 1953, gave me the fortune of growing
> up in the 50's, 60's.  TV was 3 networks, and changing meant getting up
> off your buff to turn the knob.......I always knew that the Skipper,
> Gilligan, and all the gang didn't really have a ship wreck.  And
> Gunsmoke, Bonanza, and Lassie,  were all gotta watch shows.  It was
> fantasy and make believe.  Lost in Space was great too.  I use to watch
> 30 Something faithfully, even though it was kind of boring.  ER was
> indeed a gotta watch show when it started, however, now, I don't watch
> much.  My impression of all the talk about this character who has PD is
> kind of silly.  I am quite sure that a career/profession cut short by
> these chronic illnesses is devastating.  ER is a form of entertainment.
> This "character" is just that.  PD people know of the premature end to
> many things.  I am a landscaper, and I am 49 years young and damn this
> PD.  I have NOT seen ER yet with this character but people are being
> made aware, and that, to me, is more important.  In my personal life,
> even my own family is not quite sure what to do about me.  So, for now,
> it's Plan B, or maybe C.  To the anesthesiologist, [did I spell that
> right] I most certainly mean no disrespect to you.  Please don't get me
> wrong.  The more the general public knows, the better for me, and
> you........... Sandy Fowler in Texas, ((((Go Stars!!!!!!!!!!!)))))))
> ha....email:  sandyfowler@sbcglobal.net............(:}]
>
> -----Original Message-----
> From: Parkinson's Information Exchange Network
> [mailto:[log in to unmask]] On Behalf Of [log in to unmask]
> Sent: Monday, November 04, 2002 7:58 AM
> To: [log in to unmask]
> Subject: ER and PD
>
> As an Anesthesiologist with PD disabililty causing
> a premature end to my clinical practice of Medicine I
> am concerned about this "character" appearing on
> ER.  The deficits in co-ordination, manul dexterity,
> communication along with vision and urge incontinence
> make it impossible for an individual to function with the
> precision and skilled task rquirements of an ER.
>
> Any deficit that might impair the ability to respond
> quickly and effectively is inappropriate for the system
> to encourage since it cannot help but influence outcome.
>
> It is a wonderful feeling to be able to contribute despite
> being a patient with PD BUT IMHO the ER with it's
> responsibilities and demands is not the place to do it.
>
> KM Janis, MD
>
> I missed that ER address -- could someone send it to me
> please ???.
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
> mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
>

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn