Jorge - You speak such wisdom.  Jo Ann

On Wed, 6 Aug 2003 22:32:49 -0500 Jorge Romero MD
<[log in to unmask]> writes:
> In science and medicine there is no cost of going public.
>
> I understand the need for some secrecy at some very early stage in
> the
> development of new drugs;  however, once one enters the
> "preclinical" stages
> with the FDA, the whole thing should be a matter of public record,
> and be
> supported by some published preclinical research.  Where is that?
>
> I am not asking for the secrets of how to manufacture the drug.
> Just the
> chemical class, and its putative actions and rationale for its
> efficacy
>
> Searching the FDA Center for Drug Evaluation and Research (CDER) I
> could
> find no mention of Parkinol, Latham, or Innovative Laboratories
>
> Why must access to Dr. Latham's credentials be only via third
> parties?  How
> about a listing of his publications?  His credential and
> publications are
> not secret, I assume.
>
> If one cannot confirm his credentials or his publications, then how
> can one
> rely on the information about this putative secret new drug?
>
> Again, I urge members of the Parkinsn List to exercise great
> caution.  The
> greater the resistance and secrecy, the greater the need for
> caution.
>
> Jorge Romero, MD
>
>
> ----- Original Message -----
> From: "Peggy Willocks" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Wednesday, August 06, 2003 12:08 AM
> Subject: Re: In Search of a Cure
>
>
> > FYI
> > Ahhh the cost of going public!
> > ---------------------------------
> >
> > Dr. Romero
> > I had some of the same questions.  I asked earlier and have
> received his
> > Bio. It is still impressive in my opinion.  "Parkinol" has a
> pending
> patent,
> > thus, the secrecy.  This compound is only in what one would
> consider
> > "pre-clinical trials."  Dr. Latham has already been working with
> the FDA.
> > I am sure you will be hearing from him in the near future.
> >
> > I appreciate your concerns - this was a human interest report
> only.  I
> hope
> > it leads to a cure, but we're nowhere ready to make such claims.
> The NBC
> > affiliate that picked up on the local announcement might have been
> > misleading in its report.  And I in no way was endorsing his work
> - just
> > found it interesting to note the power of the internet and
> advocacy.
> >
> > Thank you for caring enough to want validation.  We need more like
> you.
> > Peggy
> >
> >
> > ----- Original Message -----
> > From: "Jorge Romero MD" <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Tuesday, August 05, 2003 11:40 PM
> > Subject: Re: In Search of a Cure
> >
> >
> > > To Parkinsn List Members:
> > >
> > > I wrote the letter below to Dr. Latham at Innovative.  So far I
> have
> > > received no reply.
> > >
> > > Jorge A. Romero, MD
> > >
> > > QUOTE OF LETTER:
> > >
> > > I am very interested in your research on Parkinol
> > >
> > > Yet, I am somewhat confused.  I searched the Internet and found
> that a
> > > company named Nile Co. markets trihexyphenidyl under the name
> PARKINOL?
> > >
> > > Is this the same compound that Dr. Latham is researching?
> > >
> > > Why does your site not give any other information about
> Parkinol?  The
> > class
> > > of drug, at the very least.  Some references to preliminary
> work?
> > >
> > > I am very impressed by Dr. Latham's credentials, yet I am unable
> to
> verify
> > > them since you mention no institutions or affiliations for his
> educational
> > > or professional credentials.  Are those available?
> > >
> > > Thank you very much for your replies.
> > > END QUOTE
> > >
> > >
> > >
> > > ----- Original Message -----
> > > From: "Peggy Willocks" <[log in to unmask]>
> > > To: <[log in to unmask]>
> > > Sent: Friday, August 01, 2003 12:26 AM
> > > Subject: Re: In Search of a Cure
> > >
> > >
> > > > So true, Dr. Romero!  I did the same PubMed searches - but he
> doesn't
> > say
> > > > his publications were in the journals covered by PubMed (it
> might have
> > > even
> > > > been "Reader's Digest!")
> > > > And I would really appreciate you or someone checking into his
> > > credentials.
> > > > I did make a personal visit to the lab - he is working on
> something
> with
> > > the
> > > > rats  related to PD - and showed me evidence that the FDA had
> been
> > working
> > > > there reviewing his pre-clinical trials.
> > > >
> > > > I admit not much at the website, but we'll keep being
> detectives!
> > Thanks
> > > > for any help on this onel
> > > >
> > > > Peggy  <*]]><
> > > > "Where there is no vision, the people perish."
> > > > --Proverb
> > > >
> > > >
> > > > ----- Original Message -----
> > > > From: "Jorge Romero MD" <[log in to unmask]>
> > > > To: <[log in to unmask]>
> > > > Sent: Friday, August 01, 2003 12:58 AM
> > > > Subject: Re: In Search of a Cure
> > > >
> > > >
> > > > > CAUTION:
> > > > >
> > > > > The site has no substance at all.  It talks about Parkinol
> and about
> > Dr.
> > > > > Keith Latham.  His credentials, disclosed in
> > > > > http://www.parkinsons-research.com/aboutdr.htm
> > > > > are vacuous.  No institutions are mentioned for any of his
> degress
> or
> > > > > affiliations.
> > > > >
> > > > > A quick search of PubMed for articles published by Keith
> Latham
> yields
> > > > > absolutely nothing.
> > > > >
> > > > > Yet, there is a prominent link for DONATIONS..
> > > > >
> > > > > A Google search for PARKINOL only circles back to that same
> site, or
> > > goes
> > > > to
> > > > > another site which sells PARKINOL = trihexyphenidyl made by
> Nile Co.
> > > > >
> > > > > As you folks may all recall, trihexyphenidyl is nothing but
> the old
> > > friend
> > > > > ARTANE, one of the first anticholinergic drugs used to treat
> PD.  It
> > is
> > > > far
> > > > > from a cure.
> > > > >
> > > > > Does someone have other information on this drug?  It sounds
> like a
> > hoax
> > > > or
> > > > > a scam.
> > > > >
> > > > > Jorge Romero, MD
> > > > >
> > > > >
> > > > > ----- Original Message -----
> > > > > From: "Linda J Herman" <[log in to unmask]>
> > > > > To: <[log in to unmask]>
> > > > > Sent: Thursday, July 31, 2003 5:50 AM
> > > > > Subject: In Search of a Cure
> > > > >
> > > > >
> > > > > > Dear listmembers,
> > > > > >
> > > > > >  Please see  http://grassrootsconnection.com/klatham.htm
> > > > > > for an amazing article, also by Peggy  Willocks,  about
> the power
> of
> > > the
> > > > > > Internet and the power of the Parkinson's community  in
> the
> "Search
> > > for
> > > > a
> > > > > > Cure"
> > > > > >
> > > > > > Linda
> > > > > >
> > >
> > >
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