HAVE U TRIED WATER THERAPY RECOMMENDED BY A REHABILITATION PHYSICIAN?
NOT AT UR LOCAL POOL, BUT AT A FACILTY FIRST TO LEARN THE CORRECT
POSITIONING OF THE MOVEMENTS.

FALLS, SLEEPING  AND STANDING INCORRECTLY , ECT. INTERFERE WITH MOVEMENT
AND CAN CAUSE PAIN.

I DON'T KNOW SO I AM ASKING....HAVE U SEEN A REHAB PHYSICIAN WHO SEES
ALOT OF NEURO/ MOVEMENTS DISORDER PATIENTS?

nancy m

FrankandTeri wrote:

>This is interesting information, (sorry "Brightline" not sure of your name),
>especially considering a direct correlation between inflammation and
>worsening of symptoms of PD.
>
>Does anyone else have any information that draws any correlation between
>inflammation, autoimmune disorders and PD?  This of course may be a chicken
>and egg thing, which come first or are they even related at all.  There are
>many aging problems not all related to PD but our bodies work as a system
>and there is always interaction.
>
>My wife was diagnosed in her late 40's and has similar complaints, though no
>frozen shoulders, looking back it was also possible to see where many of her
>complaints were misdiagnosed at first.
>
>She is now experiencing back pain, shoulder pain, neck pain and her posture
>has transformed to the point where she is becoming unstable when standing.
>She to uses Ibuprofen.  I did not know is caused increases in blood pressure
>and weight.  I will have to look into that drug.  She also has Hashimoto's
>Thyroiditis and was suspected of having a very rare disorder Hashimoto's
>Encephalopathy (please forgive the spelling).  Both of these (though there
>is much debate about the second) are autoimmune disorders.  The first is
>where the Thyroid is attacked by the autoimmune system eventually causing it
>to underperform.  The second is where the same immune system attacks the
>brain and causes many symptoms.  Imagine a PWP with this problem... The
>treatment that worked was high doses of steroids and then a maintenance
>dose.  A great side effect during the course of treatment was an almost
>total elimination of her asthma symptoms (reduction of inflammation in
>lungs).  Since we have stopped the steroids it seems she is now experiencing
>more pain.  I wonder if this could be inflammation you mentioned?  I will
>have to speak to the neurologist about it.
>
>Of course we have to consider the same conditions without PD.  When you
>don't exercise you become stiff and more susceptible to pain, you have pain
>and exercise less.  You exercise less and you lose strength.  You lose
>strength you lose muscle tone.  It is a vicious cycle.  The University of
>Pittsburgh had an ongoing study looking at exercise programs and PD.  It did
>not take a rocket scientist to determine what the outcome was: more
>exercise, less pain, better strength, better posture and fewer PD symptoms.
>This was not a miracle but the effects were obvious.
>
>Have you been participating in some kind of exercise program?  "Use it or
>lose it" is always wise advice and a good course to follow.  It does take
>encouragement and a few life style changes.  I am going to focus on that for
>my wife.
>
>Frank cg. Teri 52/47/40 15024
>
>
>
>----- Original Message -----
>From: "Brightline" <[log in to unmask]>
>To: <[log in to unmask]>
>Sent: Sunday, February 15, 2004 6:52 AM
>Subject: Focus Needed... Pain & PD
>
>
>
>
>>Hi!
>>    I have been touched by this statement of Frank dated 14th Feb 2004:
>>
>>" I Need Information on Parkinson's!  I Need Help with this disease!  I
>>
>>
>Need
>
>
>>Guidance on what to do medically and emotionally not politically or
>>religiously!  I Need to Understand this thing!  I Need to hear others
>>experience!  I need help!  I Need Hope!"
>>
>>    This represents the sole purpose of this forum.  Here I would like to
>>focus of Pain & PD.
>>This is my experience with Pain and PD.
>>
>>    Alost 15-20 years before I was diagnosed with PD, my problem was pain
>>
>>
>in
>
>
>>my right shoulder.
>>    PD or Pain, whhich came first?
>>     In my case, PD came first, even though I did not realize it.  As a
>>
>>
>hind
>
>
>>sight, we all probably realize that we had symptoms of PD long before we
>>were diagnozed, only after being diagnozed.
>>     I had my partially masked face in my 30s, shoulder pain in my 40s,
>>
>>
>and
>
>
>>frozen shoulder in my 50s.  No one told me that these were symptoms of PD.
>>I was diagnozed with different things including gout, tendonites,
>>spondilytes etc.  I was given all kinds of physiotherapy which were only
>>
>>
>of
>
>
>>temporary comfort.  Sooner or later, as the disease progresed, the pain as
>>well as other symptoms such as dystonia, bradykinesia, postural
>>
>>
>instability,
>
>
>>drooling, and other things slowly crept on me.  Fom my experience, I think
>>this is the sequence of events:
>>    Slow death of dopaminergic neurons,
>>    Inflammation causing pain at initial site of physical problems,
>>    Inflammatoy cytokines (Eg. IL1beta) level goes up in the blood.  I am
>>not sure if IL1beta can cross brain blood barrier. If it does, then this
>>could cause additional problem in the brain such as aggravating the
>>inflammation of glial cells accelarating the progression of PD.
>>    I am going through a rough period of pain currently.  Assuming thatmy
>>hip and shoulder pain could aggravate the PD symptoms, I have been taking
>>Ibuprofen, which caused increase in weight and blood pressure. Therefoe, I
>>shifted o celebrex.  In my expereince, celebrex completely reducedmst f my
>>symptoms, including postural instability!
>> I think one has to take into account the role of inflammation, pain and
>>
>>
>the
>
>
>>inflammatory cytokines in the progression of PD.
>>**********
>>    FYI, I am quoting somebody else's statement regarding Pain & PD below:
>>
>>        "Subject: Re: PD and Pain
>>         From: "Anonymous" <[log in to unmask]>
>>         Date: Thu, 12 Feb 2004 22:08:51 -0600
>>         X-Message-Number: 5
>>
>>         This is interesting...Sounds like it is caused from PD...but
>>
>>
>could
>
>
>>be that
>>         PD patients have pain in shoulder from PD and then get frozen
>>shoulder
>>         because they are not moving arm because of PD pain...huh?
>>
>>        comment
>>        fact is we don't know which comes first and your supposition is a
>>reasonable one"
>> ************
>>    The purpose of this email is to request you to post your experience
>>
>>
>with
>
>
>>PD and Pain.   Such data may induce research on this aspect of PD.
>>
>>    Thanks for your cooperation.
>>
>>    More on Pain & PD later.
>>
>>        Brightline
>>
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>>
>>
>mailto:[log in to unmask]
>
>
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>>
>>
>>
>
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