Raj
could you give more information on Ayurvedic.  The results sound good.
Ervin McCarthy
----- Original Message -----
From: "Brightline" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, October 02, 2004 8:24 AM
Subject: levodopa: the standard against which all is judged???


> Hi:
>     I have also to agree that levodopa is not the cure for PD. It is
neither
> considered therapy. It simply gives temporary symptomatic relief for a few
> years and it also has its own problems such as inducing dyskenesia. The
> literature is full of the causes of dyskenesia.
>     For this  reason, I avoided sinemet when it was prescribed for me four
> years ago. I took the controversial route of ayurvedic medicine and after
> two years on ayurvedic medication, I am happy to say, I have not developed
> distonia or dyskenesia and I am still enjoying reasonable level of
postural
> stability and have  virtually no bradykinesia. I am still able to walk 2km
a
> day. I am able to work in  my computer for 6-8 hrs / day, albeit with some
> difficulty.
>     I am not sure if I will recover completely from the symptoms of PD.
But,
> I do not believe that it is impossible, given the report a couple of
months
> ago , that in some studies people in placebo showed remarkable recovery,
> comparable to the  people that were on the drug.
>     Raj
> *************
> ----- Original Message -----
> From: w g <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Friday, October 01, 2004 11:14 PM
> Subject: levodopa: the standard against which all is judged???
>
>
> > hi wendy,
> >
> > i am new to the list and haven't seen your previous
> > posts - it is good to know i am not the only one
> > disturbed by this.
> >
> > levodopa being held up as the standard against which
> > other therapies (at least the brain surgery therapies)
> > are judged is troubling to me because it means that if
> > something almost measures up, but not quite, the study
> > may be deemed a failure, the therapy may be dropped,
> > and levodopa and dyskinesia remain the *best* therapy,
> > rather than another option that *doesn't cause
> > dyskinesia* being made available.
> >
> > does anyone know whether, in clinical trials,
> > participant satisfaction is taken into account in the
> > judging of the success/failure of the trial, and if
> > so, to what degree?
> >
> > mackenzie
> >
> >
> > --- Wendy Siegel <[log in to unmask]> wrote:
> >
> > > That is the point I was trying to make. Thanks for
> > > putting it so
> > > clearly!
> > >
> > > Wendy
> > >
> > > -----Original Message-----
> > >  What I would like to know is, given that there is a
> > > 30% chance of
> > > developing dyskinesia after two years of levodopa
> > > therapy, and a 50%
> > > chance after five years of levodopa therapy, is
> > > anyone else disturbed by
> > > levodopa being held up as the "best" treatment for
> > > PD, the treatment
> > > that must be surpassed (by therapies requiring brain
> > > surgery, at least)
> > > in order for them to be considered successful?
> > >
> > > If you were given a choice between 5 years of
> > > levodopa-level symptom
> > > relief with a 50% chance of having developed
> > > dyskinesias by the end of
> > > that period, and 5 years and maybe more of somewhat
> > > less than
> > > levodopa-level symptom relief, with the risks of
> > > brain surgery but
> > > *without* the risk of dyskinesias, which would you
> > > choose?
> > >
> > > free storage!
> > >
> > >
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> >
> >
> >
> >
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