Forwarded from Advancing Parkinson's Therapies (APT)

PDtrials.org Bulletin - April 2005
Clinical Trial Information and News for the Parkinson’s Community

 Thank you for signing up to receive the Advancing Parkinson’s Therapies
(APT) PDtrials.org Bulletin. This email communication provides
information on Parkinson’s disease clinical trials that are actively
looking for participants, as well as news of interest on research and
treatments.

April is Parkinson’s Awareness Month - send this email to a friend and
spread the word!

Please help us let people know about PDtrials.org and the Advancing
Parkinson’s Therapies campaign – a great new resource brought to the
Parkinson’s community by national Parkinson’s disease organizations (a
listing of organizations is provided below).

In this issue:

Recently Added Clinical Trials on PDtrials.org
Learn About The Many Types of Clinical Trials
The New Advancing Parkinson’s Therapies Toolkit
Become an Advancing Parkinson’s Therapies Campaign Partner!

Trials Recently Added to PDtrials.org

We now have information for 41 research studies actively recruiting
volunteers on our website.

Here are three recent additions to the site:

Study of Antidepressants for Parkinson’s Disease
This study examines the ability of two FDA-approved antidepressants to
treat depression in people with PD, including how these medications
affect the movement symptoms of Parkinson’s disease such as shaking
(tremor), stiffness, slowness of movement (bradykinesia), and balance.
http://www.pdtrials.org/trial_detail.php?trial_id=274

A Study to Measure the Sense of Smell in Relatives of People with
Parkinson’s
Loss of the sense of smell sometimes occurs is people with Parkinson’s
disease (PD).  This study will seek to determine whether relatives of
people with PD also have a reduced sense of smell.  This trial is
conducted by mail, so people anywhere in the U.S. may participate.  For
more information, click here:
http://www.pdtrials.org/trial_detail.php?trial_id=271

Study to Investigate if Stalevo Can Delay the Start of Uncontrollable
Movements

This study will investigate whether the drug Stalevo is effective in
delaying the start of uncontrollable movements (dyskinesias) that are
common among people with Parkinson’s disease.  For more information,
click here.
http://www.pdtrials.org/trial_detail.php?trial_id=275

Learn About the Many Types Clinical Trials

Many people think that clinical trials focus solely on testing new
treatments, such as an experimental drug or a surgical procedure.  In
fact, there are a number of clinical trials that do not test new
treatments for PD, but help scientists gain a better understanding of the
disease. Some trials examine genetic or environmental risk factors that
may increase the likelihood of developing Parkinson’s.  There are also
trials that examine the effects and management of the disease, such as
speech treatment or the signs and symptoms of swallowing disorders.


TIP: If you want to make a contribution to Parkinson’s research but feel
uncomfortable about trying a new treatment, go to the Browse by Trial
Type page on PDtrials.org.
http://www.pdtrials.org/browse-type.html
 Here, trials are listed according to their research objectives.  The
Study of Disease category lists trials that do not test new treatments
and may only require you to answer a questionnaire or give a blood
sample.


The New Advancing Parkinson’s Therapies Toolkit: Help to Educate and
Inform

Would you like to help educate and inform people about clinical trials
and PDtrials.org? The Advancing Parkinson’s Therapies Toolkit has
everything you need, including downloadable APT brochures, newsletter
ads, a PDtrials.org web button for posting and linking your website, and
more.  Check out the APT toolkit  today!

And, if you would like print materials, please click here – or send an
email to [log in to unmask]

 Become an Advancing Parkinson’s Therapies Campaign Partner

We are excited to announce the creation of our APT Campaign Partner
program! If your organization serves the Parkinson’s community, you may
wish join forces with us in increasing awareness and education about
clinical trials.  There are a number of ways to get involved, such as
distributing educational materials, featuring an APT booth at a local
event, or being listed on the on the Campaign Partners page on
PDtrials.org.  Please contact us at [log in to unmask] to find out more
about this program.

 APT is led by the Parkinson’s Disease Foundation in collaboration with
the American Parkinson Disease Association, the Michael J. Fox Foundation
for Parkinson’s Research, the National Parkinson Foundation, the
Parkinson’s Action Network, the Parkinson Alliance, and WE MOVE.  In
addition, APT has a collaborative relationship with the National
Institute of Neurological Disorders and Stroke, the Parkinson Study
Group, and the Parkinson’s Pipeline Project.
Our success depends on your support. If you know someone who would be
interested in receiving information about Parkinson’s clinical research,
please forward this email.

Subscribe! If you have been forwarded this message and would like to
sign-up for regular email updates from PDtrials.org, please go to
http://www.pdtrials.org/email_notification.php.

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