I sure do hear you M. Jakobsen. My problem is I look so healthy...I don't
look sick and am not screaming (I can barely speak)bloody murder, so how bad
can it be?  You have given a good description of what our lives are like.

When I saw the video of Christ dragging that cross in Mel Gibson's new film,
I could identify..just another day in my life.  I personally like the clips
from an old Monty Python movie where all these guys were being crucified by
the Romans singing "Looking on the Brighter Side of Life"  It was a scene
kind of like Mel Brooks' "Springtime for Hitler".
There was also a scene with a knight still fighting with no arms, legs or
head.  I'm going to look for these movies next time I drag myself to the
video store.  They were really funny.
Ray

----- Original Message -----
From: "M. Jakobsen" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, May 07, 2005 5:55 AM
Subject: Re: uncertainty of PD/Jann


> this converstion  with Ray and |Jan has hit a mark; the need to be
> HEARDand
> UNDERSTOOD
> so often with family and evesn  or especially our doctors I get the
> impression  I m just a nuisance and SHOULD TRY HARDER . well it takes
> effort
> just to get up and dresed and move throught the day  without whinning  a
> nd
> complaining . everything hurts ,  Im dizzy tired dont sleep . swollen
> legs,
> but there is no visible outward sign of distress so  I must just be
> malingering. and very worried about the future - it only gsets worse
> progressivse , dibilitating  , dependendcy, dementia, depression.
> actually the only information on treatments , coping , and sides effects
> has
> come from  this and other web sights, thank you all .    My doctor just
> hands  a presciption and says see you next year .  Edema weight loss pain
> stifness insomnia - if I dont mention i t he doesnt and I dont think takes
> it seriously
> sory to rant so but  this morning I just had to
>
>
> riginal Message -----
> From: "Jann Bell" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Friday, May 06, 2005 4:19 PM
> Subject: Re: uncertainty of PD/Jann
>
>
>> Any coping mechanisms in this household come from me. My Dad's primarily
>> attitude is one of denial. I know that the listserv for caregivers is the
>> preferable venue for venting and I am a member. I was just trying to get
>> some feedback on the anti-depressant recently prescribled for Dad from
>> people who are PD people, not caregivers. After reading the listserv I
>> truly believe in and trust the input from people, who, like yourself, are
>> actually living the PD life and who are not in denial and who are trying
>> to make the best of a terrible situation. Thanks for your input. Jann,
>> caregiver to Dad, Jack, 78 yo
>>
>> rayilynlee <[log in to unmask]> wrote:Jann,
>>
>> I tried to explain to the psychologist at the Support Group I attended
>> that
>> you just get accustomed to your situation when it changes for the worse.
>> His Rx was for me to count my blessings, have a positive attitude and
>> compare myself with people worse off. This was not helpful to me. I need
>> strategies for coping alone. I probably do feel sorry for myself from
>> time
>> to time, but my big concern is getting from point A to point B(literally
>> without falling) Example, getting my groceries online has been a great
>> strategy.
>>
>> The hardest thing (I think) about PD is like M.J. Fox described it as
>> being
>> in the middle of the street, knowing a truck is coming, but you don't
>> know
>> just when. Although it is true we all face the unknown, we Parkies do
>> have
>> special challenges. It would be nice to be understood.
>> Ray
>> ----- Original  message put: signoff parkinsn
>
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