Greg,

The issues of common ground were a toxin study re Parkinson  being done by
the federal government - it was presented to me by Ross of Franks office as
a "better alternative" than the bill HR 810 in question.  ":Do you know
about PAN?" was his first response to my query "Why did Rep. Franks' vote NO
on HR 810?"  The "ethical" grounds came last and I had to kind of drag it
out of them in my 2 office calls.  They have their story straight now.  Very
amusing.
Ray
----- Original Message -----
From: "Greg Wasson" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, May 29, 2005 3:35 AM
Subject: Re: Trent Franks misuses PAN


> Michelle is absolutely right. Mike O'Leary has spent a great deal of time
> in face to face discussions with Franks to get his support for escr as
> proposed in HR810, but Franks remains opposed to embryonic stem cell
> research in any form. Mike has found common ground with Franks on other
> issues of importance to PWP, and works with Franks where he can.
>
> As Michelle said, the staffer was misinformed.
>
> Michelle Lane <[log in to unmask]> wrote:
> Rayilyn,
>
> I know Mike personally and he is a great guy and assure you Franks staff
> is
> mistaken. I have forwarded this thread to mike and I'm sure he will cotact
> you to discuss.
>
> This man is a great asset to the fight for a cure and I for one are glad
> he
> is on our side.
>
> Michelle
>
> -----Original Message-----
> From: Parkinson's Information Exchange Network
> [mailto:[log in to unmask]] On Behalf Of rayilynlee
> Sent: Saturday, May 28, 2005 11:16 AM
> To: [log in to unmask]
> Subject: Re: Trent Franks misuses PAN
>
> Mackenzie, thanks for the info. Christy Hahn at PAN said there was a Mike
> O'Leary from PAN who has been in touch with Franks office. I got the Leary
> part from Ross. Will also go to the site. thanks, Ray
> ----- Original Message -----
> From: "mackenzie"
> To:
>
> Sent: Friday, May 27, 2005 4:30 PM
> Subject: Re: Trent Franks misuses PAN
>
>
>> hi rayilyn,
>>
>> i just took a look at PAN's website and there is no
>> Michael O'Leary listed in the staff section - don't
>> know what that means, but in case you haven't already
>> received contact info for PAN, it is:
>>
>> [log in to unmask], or
>>
>> 800-850-4726 or 202-842-4101
>>
>> mackenzie
>>
>> --- rayilynlee wrote:
>>> Mystery is solved. The facts:
>>>
>>> Yesterday I called my representative Republican
>>> Trent Franks to ask him why he voted "no" on HR 810
>>>
>>> I didn't get to speak to him, but to one of his
>>> aides who asked me if I knew about PAN.
>>>
>>> I was really, really mad and yelled or I should say
>>> squawked at him
>>> Does this sound like me?
>>>
>>> He proceeded to tell me that "Leary" at PAN told
>>> them there were better alternatives, giving the
>>> impression that PAN opposed this bill. By this time
>>> I was having chest pains and had to hang up.
>>>
>>> I emailed Franks asking for the name of this person
>>> at PAN. So far there has been no reply.
>>>
>>> I got my calm and nerve back today and called the
>>> office again. I was told by another aide that it
>>> was Michael O'Leary at PAN and that they had
>>> discussed the issue with him, but (with my
>>> prompting) opposed the bill on moral grounds.
>>>
>>> Now it is one thing to oppose something on moral
>>> grounds, but quite another to misrepresent the views
>>> of a patient's advocacy group. which his office did.
>>> My voice is so bad I probably sounded like a drunk
>>> or the village idiot and I think this young whipper
>>> snapper mis-underestimated (Bush language) my
>>> intelligence.
>>>
>>> I do think PAN and Michael O'Leary should know about
>>> this. It is so difficult to fight both this disease
>>> and these liars.
>>>
>>> www.house.gov/franks or phone 202-225-4576 to
>>> contact Franks. Don't know how to get ahold of PAN
>>> but have emailed Christy.
>>>
>>>
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>>> Ray
>>>
>>
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