And I thought 94 was bad!

>From: "Claudia J. Goldberg" <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Ozzy Osbourne & PD/Claudia
>Date: Wed, 27 Jul 2005 08:06:31 -0700
>
>Ray, thank you for your generous spirit.
>
>I haven't been on this list for very long so I don't know the historical
>threads of most of the posters.  But I see your posts regularly and they
>are
>always interesting and knowledgable.  I really appreciate the info you
>provide all of us.
>
>It seems the subject of chemicals in the environment being a potential
>cause
>of PD comes up more often and in respected and credible sources.
>
>I live in Southern California (15+ yrs) but spent all of my childhood and
>part of my early adulthood in a farming community in Kansas.  Between our
>house and the closest neighbor there was a huge vegetable garden (it was
>commercial and the owner was what we called a "truck farmer" meaning he
>took
>the harvested vegetables to an open air market and sold them from the back
>of his truck).
>
>All that was before the time they learned that DDT was harmful to one's
>health.  I can recall many, many times when they dusted the crops with DDT
>so heavily it left a white powder on the plants and the wind carried much
>of
>it to our yard.  If I think about it now I can still recall the  awful
>smell
>and taste it had when I breathed.
>
>Now, of course, I wonder if it had an impact on my PD.  I am 60 now and was
>diagnosed when I was 54.
>
>Ironically the researchers are also following the possibility that
>environmental chemicals may be the cause of Sarcoidosis.
>
>If it proves true, then I must have gotten a "double whamee".  No one else
>in my immediate family have been diagnosed with either disease. But my
>father had a serious lung condition (not related to smoking) and when he
>passed away the death certificate simply said the cause of death was
>chronic
>obstructive pulmonary disease.  My oldest brother (2 yrs younger than me)
>had serious asthma and other lung problems all his life.  At age 56 he died
>suddenly of a massive heart attack.  The dr. thought the strain of asthma
>and related breathing disorders may have weakened his heart along with his
>lungs.
>
>I have a sister a couple of years older than me who has no lung problems
>but
>she was a very "girly girl" when she was a child and spent most of her time
>inside the house with my mother and was not exposed to the DDT to the
>extent
>my brother, father and I were.  I have two brothers who are much younger
>than me and both have had minor asthmatic bouts but by the time they were
>born DDT had been banned.
>
>Sort of makes you think, doesn't it.
>
>In addition to the Sinemet I take Requip.  I don't know if it is one of the
>agonists that have caused PDers to gamble.  But I may try that out as an
>excuse to my husband for my desire to trek to Las Vegas every few months.
>:-)
>
>Hope all have a wonderful day.  It is supposed to hit triple digits here
>AGAIN!  It was 118 one day last week.  I don't want to hear about how it's
>not so bad because it's a "dry heat"..118 deg. is 118 deg.!
>
>Regards,
>
>Claudia
>----- Original Message -----
>From: "rayilynlee" <[log in to unmask]>
>To: <[log in to unmask]>
>Sent: Tuesday, July 26, 2005 12:33 PM
>Subject: Re: Ozzy Osbourne & PD/Claudia
>
>
>>Claudia, I for one am interested in your condition.    You deserve to
>>complain as much as you like. It is just another reminder that PD is not
>>the
>>only disease one can get.  I know when I survived cancer I thought I was
>>'home free"  Ha! Ray, wondering when the next shoe will drop.
>>----- Original Message -----
>>From: "Claudia J. Goldberg" <[log in to unmask]>
>>To: <[log in to unmask]>
>>Sent: Monday, July 25, 2005 4:16 AM
>>Subject: Re: Ozzy Osbourne & PD
>>
>>
>>>For what it is worth, I once had a neuro-surgeon tell me hat M. Ali did
>>>not
>>>have PD, but rather he had a disease called Shy Drager's Disease and ir
>>>was
>>>indeed caused by too many blows to the head. Although I got the
>>>impression
>>>that other's can get it without having had all the blows.  In fact, for a
>>>brief time they thought I had it.  One of the diagnostic symptoms is an
>>>extreme drop in blood pressure, especially when first standing up.  I do
>>>have PD but the symptoms of Shy Drager turned out to be caused by another
>>>disease I had but had not yet been diagnosed.  It was sarcoidosis.  It's
>>>a
>>>fairly rare auto immune disease that nearly always impacts the lungs then
>>>can go to any organ in the body.  For some they have one episode and then
>>>it
>>>never returns.  For others it is either intermitent or chronic.  The
>>>sarcoidosis was attacking my bone marrow and filling the space with small
>>>tumors (granulomas) thus leaving no room for me to produce new red blood
>>>cells.  That caused the extreme low BP and also serious anemia requiring
>>>blood transfusions.  It is always hard for me to know if any new symptom
>>>I
>>>have is PD related or the sarcoid rearing it's ugly head.  The sarcoid
>>>also
>>>precludes me from participating in clinical trials.  They don't want you
>>>if
>>>you have more than one disease.
>>>
>>>I'm sure this is much more info on sarcoidosis that any of you are
>>>interested in, but it's one of those sleepless nights and I allowed
>>>myself
>>>to blabber on about a subject not related to PD.  Sorry, I'll try to have
>>>more self control in the future.
>>>
>>>I wish you all peace of mind, the serenity to accept your condition and
>>>the
>>>ability to laugh at the arrows life shoots at us.
>>>
>>>In the laugh area, a while back there was a country singer who had a song
>>>called "What Really Turns Me On is the Shake".  I always thought that
>>>should
>>>be the PD Anthem!
>>>
>>>Claudia
>>>----- Original Message -----
>>>From: "M.Schild" <[log in to unmask]>
>>>To: <[log in to unmask]>
>>>Sent: Sunday, July 24, 2005 11:31 PM
>>>Subject: Re: Ozzy Osbourne & PD
>>>
>>>
>>>>>Also, what about Muhammad Ali's too many blows
>>>>>to the head?
>>>>
>>>>
>>>>I should think. M. Ali has traumatic parkinsonism.
>>>>Rotenone is used to induce PD in mice
>>>>Maryse
>>>>
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