CAPS

CALL UR GASTROENTEROLOGIST, SURGEON, NEURO, AND PRIMARY DOC, LICENSED
REGISTERED CARDIAC DIETITIAN .  THEY ARE MORE INTUNE TO PROPER DIET FOR
THE HEART AND NEURO SYSTEM. A SPEECH LANGUAGE PATHOLOGIST MAY HAVE SOME
SUGGESTIONS IF SWALLOWING IS A PROBLEM.  BLOOD WORK HAS TO BE PROPER.
FRIED FOODS ARE BAD NEWS.

I DON'T KNOW UR SWALLOWING OR MOVEMENT LIMITATIONS, BUT I DRINK THE
FOLLOWING:

ENSURE PLUS , ENSURE (ME), OR BOOST( IMPACTS ME)
BROTH ROOM TEMP -SODIUM INTAKE
GATORADE ?
WATER WITH PLAIN LEMON JUICE NOT CONCENTRATE
HEART OR GASTRIC OR DIABETIC PROBLEMS?

WHAT DID THE HOSPITAL TELL U TO EAT?

HOW DO U PROTECT UR TEETH AND MOUTH FROM INFECTION ?

STIFFNESS?
A LIST OF SITTING (?) EXERCISES THAT CAN BE DONE SAFELY DURING THIS TIME
PERIOD FROM A PHYSICAL THERAPIST AND REHAB DOCTOR.
SOMETIMES IT COMES DOWN TO SOMEONE ROTATING ANOTHERS WRIST IF THEY
AREN'T ALLOWED TO DO IT THEMSELVES.

INSURANCE-
MEDICARE AND OTHERS - COVER ENSURE IF THAT IS UR ONLY MEANS OF NUTRITION
MEDICAID - COVERS IT WITH DOCUMENTATION
COMMON PRACTICE.

UNEDITED
NANCY
rayilynlee wrote:

> Diane, I'm glad your sleep apnea was cured after such an ordeal.  I can't
> lose weight since my premature menopause 26 years ago, so am not much
> help.
> I'm assuming your liquid diet is something "nutritious"  like Ensure.
> What
> you need is a cheeseburger and fries - maybe there is a way to grind
> them up
> so you can get some fattening food.
>
> Nope, I haven't done the jaw surgery thing yet.  There is so much to
> look
> forward to.  Sometimes it seems we PWP get everything.  Hope somebody on
> this list can help
> Ray
> ----- Original Message -----
> From: "Diane Nicolaou" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Saturday, September 17, 2005 2:25 PM
> Subject: Suggestions Welcome
>
>
>> Hi.
>> As in other times of difficulty, my friends on "The List" seem to be a
>> good
>> place to turn.  I'll try to be brief.
>> I am 52 Years old - P.D. for 5-7 years.  (Don Mckinley you can jumo in
>> with
>> your two cents worth anytime as I know you've had years of dealing with
>> this
>> disease).
>> This spring I had jaw surg for severe Sleep apnea-HT:5' 4" & WT  (when I
>> started this I was 140 now weigh 107) so as they say I was not typical
>> body build
>> for sleep apnea but it was so severe I was extremely sleep
>> deprived.  My
>> Neuro, whom I trust had me come there (U of Mich) and have  the surg.  I
>> was
>> wired shut 4-5 weeks then an infection (abcess on my gums)  caused
>> them to
>> take
>> out one of the many plates they put in my jaw (it was a  brutal 7 1/2 hr
>> surg.).
>> Over the next two months a bone in my jaw cracked
>
>> and shifted and back to
>> surgery a week ago to put in reinforcement and I signed  a consent for a
>> bone
>> graft from my hip but it ended up not necessary.  WHEW!!!  Here's my
>> problem.
>> I had already los 30 pounds and now  I'm back on a liquid diet,  can
>> only
>> eat
>> what goes thru a straw as my jaw  is wired shut 5-6 weeks total.  I
>> am too
>> thin now and don't want to lose  any more weight but besides that I have
>> to crush
>> up my pills
>
ARE U USING A PILL CRUSHER ?  THEY PULVERIZE PILLS.
MEDICDRUG.COM MAY HAVE THEM.

>> to get them in and  they don't last long that way. (I'm on
>> sinemet 25/100, CR &  Regular, Mirapex, which are the main concern I
>> also
>> take
>> Zoloff,  Clonapan and at night.  Now on Clindomycin every 6 hours which
>> keeps me
>> in a state of nausea but very important and I mase take it so I  do.
>
ASK UR PHARMACIST AND DOC CHECK DRUG INTERACTIONS.  ARE U FOLLOWING THE
DIRECTIONS?

>> I
>> don't
>> mean to whine so I'll quit for now but  any suggetions on what to
>> eat,  I
>> mean
>> drink, and what would help my  meds be more effective (or last longer)
>> would
>> be welcome.  Anyone  with experience with jaw surgery?
>> Oh, by the way I sleep like a kitten, It really did cure my sleep
>> apnea.
>> Diane
>> in Michigan
>>
>>
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>
>
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