Excellent website.


----- Original Message -----
From: "Maxine Krugman" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, October 21, 2005 8:21 AM
Subject: Re: Proffesionals Caring for Us - Please Read


> please people..these tapes are incredible and if you really want to do
> things to help the parkinson community in which you live..i mean really
> make a difference, here is a perfect way with so little effort on your
> part. just do this... and meg, my dear...we are all in san francisco and
> wish you were here too..
> maxine
>
> -----Original Message-----
> From: meg at parkinsonheartland <[log in to unmask]>
> To: [log in to unmask]
> Sent: Thu, 20 Oct 2005 09:38:53 -0500
> Subject: Proffesionals Caring for Us - Please Read
>
>
> Forgive me if I ramble, but please read this and respond with your
> thoughts.  We
> here at the Parkinson Foundation of the Heartland have this Parkinson Care
> Series, which is 8 videos and a seriously substantial 500 page workbook.
> It is
> designed to train care professionals to give optimal care to PWP - and to
> just
> better help them understand PD, which we all know can be pretty baffling.
> The
> professionals recieve CEs for taking the course. At any rate, after a year
> of
> incredibly hard work, we now have a little over 200 facilities who are
> using
> this product.  These facilities train a team as the "go to guys" for all
> things
> PD.  Teams have an SLP, PT, OT, Dietician, RN, the Administrator, and
> rounding
> doc.  So far, so good.  Our thoughts on this are many-fold.  We want all
> care
> facilities to view PD has a market, to give them a reason to offer
> specialized
> care, and to get them involved with us.  We hope that this effort will
> help the
> Parkinson community cohese into a more subst!
> antial group - one that demands specialized and knowledable care
> professionals,
> and we hope that individuals and groups will begin working with these
> communities to fundraise and offer improved services wherever they are. We
> are
> in the midst of surveying our Parkinson Proficient Communities to help
> guage
> their willingness to be sponsors on things like runs, and to offer
> support,
> speech, exercise, balance etc in their facilities and commnities. We are
> getting
> really good responses from these guys.  Here is Kansas City, our first
> communties have become both event sponsors - most at $2500, and are doing
> things
> like free assessments, free balance classes, free speech classes, and are
> hosting some of our support groups.  It has truly been a win-win
> situation.
> These facilities want to know and help PWP!  They are smart enough to see
> us as
> a market and do what needs to be done to get us engaged.  As these surveys
> come
> back about what groups are willing to do, we want to begin hooki!
> ng them up with folks in their communities for services and $!
> $ or volunteer help.  So, I am asking if you guys want to be hooked up
> with
> people in your comunities for whatever.  RIght now, I have a GREAT group
> covering Texas, they are wealthy, enagaged and ready to meet the community
> and
> offer help and services. For some reason, niether HAPS or DAPS has really
> repsonded.  These guys will be corporate event sponsors and do what needs
> to be
> done! Same deal in Arkansas. Our dream is that someday, everyone who has
> to use
> services, home health, CCRCs, nursing care, rehabilitiation, hopsice -
> will be
> able to say "Are you trained in how to care for me" and if the answer is
> No,
> walk away and find someone who is.  Truly, this is my life's work. If you
> are
> interested in hooking up, go to our website, www.parkinsonheartland.org
> and look
> at the Parkinson Proficient Communities.  If there is someone near you who
> would
> like know and work with, email me and I will get you the proper contact
> name.
> We expect to have a good view of this over the next !
> couple of weeks, as the facilities respond and let us know what they are
> willing
> and/or anxious to do!  This is definatly a job for a national
> organization, but
> we just didn't see it getting done.  So, like the little engine that
> could, we
> just got out there.  Now, we need the help of PWP across the country to
> ensure
> that these facilities that have signed on see the value, and to be sure
> that
> every damn facility in the country will see PWP as a force to be reckoned
> with.
> We can use your help to get r done.  Let me know your thoughts, negative,
> positive, if you want to help with this project, if you think its the
> worst idea
> ever.  Thanks so much, Meg  Offlist, you can reach me at
> [log in to unmask],
> or 913-341-8828.  I'd also love to see a discussion of this on the list.
>
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