Sam, I noticed the (Ms) after your name in an email.  Are you female, I go
by Ray instead of Rayilyn because its easier, but I'm often mistaken for a
man.  Once I got  credit cards for Rayilyn Brown, Mrs Rayilyn Brown, and get
this, the Reverend Rayilyn Brown!
Ray

----- Original Message -----
From: "Sam Weber" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, January 04, 2006 3:33 AM
Subject: Re: Welcome Newbies


> Rayinlee
>
> Thank you for this very moving e-mail... your words have touched me
> deeply...
>
> Thank you also for your advice to do what we love doing for as long as we
> can. I intend to take this advice. I also intend to honour you, and
> everybody else who is no longer able to do the thing I can, every time I
> do
> something that makes me happy.
>
> With love
> Sam
>
> -----Original Message-----
> From: Parkinson's Information Exchange Network
> [mailto:[log in to unmask]]On Behalf Of rayilynlee
> Sent: 03 January 2006 20:50
> To: [log in to unmask]
> Subject: Welcome Newbies
>
>
> The addition of so many newbies reminds us that Parkinson's is busy
> claiming
> more people.
>
> You are on an uncertain journey as we are all so different in our
> reactions
> to meds, progression of the disease and our attitude about it.
>
> There has not really been anything new in the way of treatment since I was
> diagnosed ten years ago.  Since the brain is so complicated and little
> understood, it is unlikely, barring a serendipitous event, that  the
> outlook
> will change in the near future, given the squabbles on the state level
> over
> nuclear transfer and ESCR and an impasse at the federal level.
>
> Why did we get it?  Who knows.  My grandfather died of it, I had very
> toxic
> chemotherapy for ovarian cancer and used to flea bomb my condo for my
> dogs.
>
> Some people get relief from PD meds.  Sinemet helped me once on the first
> dose, but never again so I don't take any PD meds.  Two DBS brain
> surgeries
> 2-1/2 years ago control my bilateral tremors but I strangle when I try to
> speak.  Is that due to PD progression or the DBS surgery?  Who knows.
>
> Because I live alone, I keep going because I have to, with help once a
> week.
> Many posters are caregivers and we never hear from the PWP.  When I joined
> the  list 6 years ago, Bob Armentrout welcomed me. He shared his very
> graphic, dark, and reality-based poems about his PD with me.  I have not
> heard from him since.
>
> The only advice I would have for newbies, is do all you really want to do
> and can do NOW!  When I was first diagnosed at 60 I had a  "honeymoon"
> period  for about 3-4 years and could have done more traveling.
>
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
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> Good luck, Ray
> --
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>
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>

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