Our neuro says the same about Permax.  If I were you, I would find another
doctor.

Carole


----- Original Message -----
From: "Beverly Bashe" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, January 20, 2006 7:35 AM
Subject: Re: mirapex and requip / Another Point of View


> I have taken Permax/Pergolide for almost 6yrs;
>> side-effects - vascular
>> damage.
>
> Hi.  I'm very concerned about your statement, because my husband, David,
> has
> taken Permax/Pergolide for at least that amount of time.  His fingernails
> are often blue, his hands very cold, but no one so far has determined why
> this is happening...nor is anyone duly concerned.   Also, his breathing is
> often labored, especially after the least amount of exercise such as
> walking
> from one room to another.
>
> Yesterday, I was at a talk given by the South Florida neurologist, Dr.
> Thomas Hammond.  His statement, "We don't really prescribe Permax anymore
> due to heart valve problems," was scary...especially because David's
> neurologist in NY has been routinely prescribing it for David...and
> actually
> renewed the scrip as early as a couple of weeks ago.
>
> We're seeing an associate of Dr. Carlos Singer's in a couple of weeks in
> order to get David's DBS checked.  I'm going to ask him about the
> med...but
> if this is seriously hazardous, perhaps something ought to be done
> sooner?????  We can't get to see Dr. Singer for months, yet....  Should we
> consider finding another dr?
>
> Does anyone know Dr. Hammond?  He seemed very, very knowledgeable and
> compationate.  David's neurologist in NY had recommended Dr. Singer, whom
> I've heard is widely respected, but....
>
> Bev Bashe  cg to David 69/59/31??
> ----- Original Message -----
> From: "Carole Hercun" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Thursday, January 19, 2006 6:15 PM
> Subject: Re: mirapex and requip / Another Point of View
>
>
>> Well said, Marco. Although, sometimes, I just don't have
>> the energy...Carole
>>
>> --- marco de michiel <[log in to unmask]> wrote:
>>
>>> Carole,
>>>
>>> With respect, I have to disagree with you.
>>>
>>> Yes, we (PWP's) have to take some form of medication to
>>> manage the symptoms,
>>> but we should not allow ourselves to be used by the
>>> Pharmaceutical Co.'s
>>> like specimens in a living laboratory; and continue
>>> accepting  that there
>>> are serious side-effects leading to complications and
>>> subsequent death.
>>> Parkinson's in its self does not cause death. As long as
>>> we remain silent
>>> the Pharma co.'s will continue to go unchecked, making
>>> obscene profits, and
>>> convincing the medical world that fatalities, from
>>> side-effects, are an
>>> acceptable percentage; like a form of collateral damage.
>>>
>>> Like someone else mentioned, there's no drug on the
>>> market which cure's; in
>>> nearly all cases they are designed to control/suppress
>>> the symptoms; and
>>> virtually all have side-effects. The Pharma Co.'s are not
>>> interested in
>>> Cures because there's no long term revenue stream. Yet
>>> they spend billions
>>> in research, supposedly on finding cures but only ever
>>> launch more drug's
>>> that manage/control and sell at ridiculous prices, which
>>> they justify
>>> because of the high R&D cost. A disgusting example of the
>>> consequence of
>>> this, is the denial of a drug for MS, for my neighbour,
>>> because his
>>> age/profile fails the benefit/cost criteria, as set by
>>> the NHS, BECAUSE OF
>>> THE HIGH COST OF THE DRUG. Personally, I think he's
>>> better off without the
>>> drug.
>>>
>>> I have taken Permax/Pergolide for almost 6yrs;
>>> side-effects - vasculor
>>> damage.
>>>
>>> Mirapex - side effects as noted.
>>>
>>> Sinemet -  increased dosage leads to accelerated
>>> depletion of natural
>>> dopamine and subsequent loss of effectiveness.
>>>
>>> We live in an age of technology; we have the power of the
>>> internet to access
>>> data, share findings and prepare/collate results. PD may
>>> affect our ability
>>> to walk but it hasn't taken away our capacity to think
>>> and argue our case.
>>> As long as we have our minds, we can [should]
>>> constructively challenge the
>>> status-quo; and force changes in diagnosis and
>>> alternative therapies. We owe
>>> it to ourselves and to future generations, to do so, tto
>>> contain and sink
>>> this Neurological 'iceberg'.
>>>
>>> Marco [UK]
>>>
>>>
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