Rayilyn:
THanks for your response.

MYdbs /stn was 11/04 .I aMm seeing dr. next wk.I am happy with results
,ithink.BUT I can't  walk or talk.[balance is  poor ].    Ithink it can be
corrected by the nuertransmitter, and freezing is bad.hopefully i'm
correct.I will give up talkng for walking
george

>From: rayilynlee <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: George DBS/tradeoffs
>Date: Sun, 12 Feb 2006 10:41:46 -0700
>
>George, my DBS in 2003 stopped tremors which are sneaking back, I probably
>need to be reprogrammed, but I count my speech difficulties to that time,
>of course it's hard to tell as that is a PD symptom I did not have
>originally.   My left foot was completely turned in by dystonia and is
>still
>straight, but my left leg still draws up and toes are knotted.  My physical
>therapist here does not want to give me any more botox injections which
>really helped.  He is all for exercise although he looks like he could use
>some himself.  Exercise has suffered due to cataract surgeries and while I
>think it helps I tried to tell him it does not cure PD.  PD always wins.
>Ray
>
>- Original Message -----
>From: "g.c. beyer" <[log in to unmask]>
>To: <[log in to unmask]>
>Sent: Saturday, February 11, 2006 3:56 PM
>Subject: Re: rasigilene? & other questions
>
>
>>HI:
>>
>>I'm new to list.I was first diiagnosed in1999 with pd. Had 2 Dtrs
>>involved.ONe was alternative meds, who suggested
>>glutithone[spelling?]injections which i did for a # of yrs.3x
>>awk..Ifinally
>>went on 25/100sinemmet ,first with 1 then 3 a day . The alternative DR.
>>died
>>unexpectivelyand i had my Nuero alone  who was never in favor  of the
>>Glut
>>shots & since they were not of much help,I stopped them.
>>I ALso began  to get painless  spasms in my legs,where the muscle tightens
>>involuntarily  & thenrelaxes.It  goes away when i take sinemet after1 hr &
>>after staslevo100,goes after 1and1/2hrs.
>>Nuero says its pd,however i get cnflicting opinion from rehab Dr.,who says
>>its nerveous leg .Anyone know???
>>
>>.Then i startedd to have freezing and my Nuero put me on stalevo 150 3x a
>>day which stopped the freezing.That occured about 2 yrs & 3mos. ago . I
>>had
>>a fellow pd friend who had DBS which had been successsful.I than had DBS
>>of
>>STN in NOV OF 2004 after being offered the alternative of getting intio a
>>blind study of DBS of GP or of DBS of STN ,&after much research ,I opted
>>for
>>the DBS of STN & didnt participate in the study.IT has been15 mos. since
>>my
>>nuerotransmitter  has been on . with result mixed. They follow:
>>                        GOOD
>>1--THe tremor on left side was gone as was the claw that was my left hand.
>>2-Ive lost stiffness or masked some of the symptoms.
>>
>>                       BAD
>>1-!and 1/2 mos in the period ,since the operation where i had my
>>balance,no
>>freezing but my annunciation was bad. .tHe1and1/2mos were broken up into
>>3periods.the last 2 were in the end of April and the end of Sept .each
>>time
>>I went back it was changed to  help bad slurring in my annuncation.Now,I
>>can"t walk ,except with a walker , or talk &  freezing is intolorable .
>>
>>Now I have been advised to begin[which i have]taking 1mg of rasagaline
>>along
>>with my stalevo100's and 1 sinemet daily.anyone  out there on rasagagline
>>???
>>
>>WERE you helped? HOw?
>>
>>I never have had any other relief except stalevo stopped my freezing for
>>6mos. ANd the DBS gave me 6weeks of relief from freezing but it was a
>>trade
>>off with loss of annunctation.
>>
>>thks,
>>george
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>>From: Don McKinley <[log in to unmask]>
>>>Reply-To: Parkinson's Information Exchange Network
>>><[log in to unmask]>
>>>To: [log in to unmask]
>>>Subject: Re: Don
>>>Date: Fri, 10 Feb 2006 11:04:31 -0500
>>>
>>>THANK U
>>>----- Original Message -----
>>>From: "Beverly Bashe" <[log in to unmask]>
>>>To: <[log in to unmask]>
>>>Sent: Thursday, February 09, 2006 10:00 AM
>>>Subject: Don
>>>
>>>
>>>>Hi, Don.  Here's a post for you.  I also have Outlook Express.
>>>>Sometimes,
>>>>it takes awhile for my message to appear on list.
>>>>
>>>>
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>>>>To sign-off Parkinsn send a message to:
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>>>>In the body of the message put: signoff parkinsn
>>>>Bev
>>>>
>>>
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>>>In the body of the message put: signoff parkinsn
>>
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>>To sign-off Parkinsn send a message to:
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>>In the body of the message put: signoff parkinsn
>>
>
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