Elizabeth:
Perhaps a psychologist could help you deal with your daughter
Inge

On Fri, 9 Jun 2006 04:05:35 -0400 El Che <[log in to unmask]>
writes:
> Hello,
>
> I am more afraid about the new ways of speaking about PD as a
> psychologic
> disease or addiction symptoms resulting of agonist effects...  After
> years
> of studying "physical symptoms" the new trends seems to look on the
> size of
> "psychological effects" or in a view with Parkinson Disease is a
> "demence"
> as some people say in France.  I just come back in Canada (Quebec)
> from a
> trip in my family in France and I could tell you that people with PD
> are not
> open like us in North America  to tell openely they have PD.
> Because the
> diseases relatives to a brain disorder is viewing as "suspect" and
> it is
> sometime a shame in a family to have one person having that.  It's
> almost
> like MST diseases...Disease from my point of view is not a bad
> word... a
> disease, in particular with physical symptoms like mouvment
> disorders is  a
> "clean disease" because it is not something "bad" that  you did to
> have it
> (ex. AIDS should be more problematic to announced it around a table
> in a
> business lunch or at work.  And please, I understand and compatise
> with
> people who had any diseases, I just took AIDS as an example to make
> a point:
>   disease  that we could speak about and, not be proud to have it of
> course,
> but not be ashamed too.
>
> Until now I was very open to talk about PD around me but now I begin
> to feel
> more nervous, anxious...
>
> My personal preoccupation is people using PD effects on humor or
> even not be
> a "stable person because you have tremor and in a nervous situation
> you are
> shaking more and more"...to destroy the confidence in the PD
> person... as I
> recently divorced, my ex-husband still plays with the words about
> "my PD and
> volatility effects" and my daugther, who was very close to me
> younger, is
> now closer to him as he is a very stable person !  I don't know
> exactly to
> in me but I hope you could understand that I am afraid to lost my
> daugther.... I am a good mother and still coult take care on her....
> but
> they began together lifing about somes mistakes I should make... and
> after
> that said some words, but still in a joking way, about my driving
> way (I
> "take" sometime the corner to close and a wheel jump a little bit on
> the
> sideway)  but I am driving prudently and I am not a "public
> danger"....but
> as my daugther became "a little bit afraid to be in my car", she
> preferred
> taking the bus or having his father taking her....inch by inch, day
> by day,
> my ex-husband maid some points and I am not in a good position to
> fight with
> him.
>
> The worst for me now is that they told me recently that maybe next
> year, as
> she has now 14 years old, she could decide to live full time in his
> house.
> Legally divorced just last december, we had the "garde partagée"
> which is
> one week for her to be with me, one week with him.  We live closer
> and even
> if it is not the best way of living, I could not imagine my life
> without ma
> daugther at home, even if she is in a bad mood.
>
> So, I do not want to cry on my condition but I needed to tell
> that... With
> the hope to have some understanding in that place, maybe some of you
> had
> passed by a same way and tell me or give me some hints to do or
> things to
> avoid.
>
> Thanks anyway for having reading me until the end :-)
>
> Elisabeth
>
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