I think you are both right.

Jean Burns


-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]] On Behalf Of Amanda Phillips
Sent: Monday, November 12, 2007 4:59 PM
To: [log in to unmask]
Subject: Re: Research in Arizona.

I agree with Ray.  I fix software bugs for a living - you can't cure a
software fault until you're quite clear about the circumstances that caused
it. In this respect I suspect brains are the same.
Amanda

Quoting rayilynlee <[log in to unmask]>:

> Jean and List Members:
>
> I had an encounter with Dr. Joe Rogers last year.  I was referred to him
by
> Bob Stump, my state rep.
>
> Although his research sounded to me like what Dr. Levesque of Cedars Sinai
> did with Dennis Turner's brain cells over 8 years ago, he was unfamiliar
> with it when I asked  him about it.  Strange, it was a big deal.
>
> To remind you-all Levesque took Turner's brain cells during a DBS surgery,
> "cultivated" them and put them back in Turner's brain and he was
supposedly
> symptom free until about 2004 when his PD returned with a vengeance.  I
> called him on 3-24-06 and he confirmed this, but since refuses to shed
more
> light on this subject.  Last I heard he was still being touted as a "cure"
> by the Family Research Council which opposes embryonic stem cell research.
>
> Jean, this is all documented in Yvonne Perry's book Right to Recover that
I
> gave you at our luncheon meeting several months ago.
>
> Initially, Rogers seemed congenial and fair-minded but got mad at me when
I
> asked Turner by email to clarify his condition.  Rogers later apologized
to
> me but I never did visit his lab, feeling very unwelcome.  Rogers and the
> Arizona state legislature oppose ESCR.
>
> I concluded that if Turner's temporary improvement was due to the stem
cell
> implantation and not DBS, his PD came back because the same disease
process
> that killed his dopamine producing cells in the first place was still
> active.  It led me to believe that if this is true, any kind of  stem cell
> replacement therapy or treatment is only going to be temporary unless the
> cause of PD is addressed.
>
> I am also surprised to hear about the MJFox grant that you can't find.
> Please keep us informed about this. This sounds "suspicious" to me.  Dr.
> Levesque's Phase II never did go into effect (as far as I know) even
though
> the FRC made false claims about it.  Talk about "mad" scientists!!!  I
don't
> think I want to be involved in Roger's trials.  I felt he was fishing for
> subjects when we had our exchange.  Bob Stump may have gotten his bill
> passed that provides $ for adult stem cell research.  This seems to me to
be
> a more likely grant source than MJFox.
>
> Ray
>
>
>
>
>
> Rayilyn Brown
> Board Member AZNPF
> Arizona Chapter National Parkinson's Foundation
> [log in to unmask]
> ----- Original Message -----
> From: "jean" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Sunday, November 11, 2007 3:41 AM
> Subject: Research in Arizona.
>
>
> > At the Power Over Parkinson's Conference in Phoenix, November 10, 2007,
> > Dr.
> > Joseph Rogers, Sun Health Research Institute,  talked about how he had
> > succeeded in growing dopamine producing neurons from human stem cells -
> > from
> > adult stem cells taken from human brains.
> >
> > Dr Rogers and his team worked with donated progenitor cells  gotten
human
> > brains. These cells were actually excess tissues gotten after some
people
> > had gone through brain surgery. Rather than the surgeons tossing these
> > cells
> > (given with permission from the people who had undergone  brain
surgery),
> > Dr
> > Rogers and his team had these human brain cells available for
experiments.
> >
> > They found progenitor adult stem cells in the brain tissue. And from
these
> > Dr Rogers and his team grew neural - dopamine producing stem cells. We
saw
> > amazing photos of both types of cells.
> >
> > His next stem cell experiments will be on primates. And if that testing
is
> > successful, then he and his team will begin trials on humans -with
initial
> > brain surgery on the PWPs to retrieve some brain cells. Those cells will
> > be
> > used to grow dopamine-producing neurons. And then later there will be
> > surgery to implant those autologous cells in the PWP's brain.
> >
> > I was told that he has received a 3.5 million grant from the MJFox
> > Foundation, but I couldn't find any reference to it on the MJFox
website.
> > I'll keep trying using other search terms.
> >
> > He believes there will be a cure in his lifetime (he looks like he is in
> > his
> > 60s).
> >
> > Jean Burns
> > 480.883.3285
> > www.pdplan4life.com
> >
> > order holiday cards on www.azapda.org
> >
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