Ray,

Thank you for posting the article on 'Shadow People'.  I read it out to my
husband, who could relate to it so easily.  I really appreciate the trouble
you take to give us a diversity of articles because there is bound to be
something to interest someone or the other on this list.  'The Neglected
Side of PD' was really good - perhaps you will get around to reading it
sometime.

Moneesha




2008/8/27 rayilynlee <[log in to unmask]>

> Bill and fellow PWP:
>
> I did not write the article on "Shadow People" nor have I ever had a
> hallucination, as I don't take PD meds.  Someone named  "Carl" did, but it
> is not easy to see.
>
> I do understand the importance of citing sources so I always try to do so
> when I prepare an article for posting on PIEN.   It involves copying an
> article from the web while including all important data like the source and
> leaving out pictures, graphics, etc.  90 % of the time it works well,
> especially if the article comes from a newspaper or magazine,but sometimes
> an article slips through (bloggers are especially bad) as due to PD I am not
> as good a wordprocessor as I used to be.
>
> Since the List is a diverse group I do try for a variety of articles:   PD
> and general research, politics affecting research, PD action alerts,
> personal stories and experience.  I hadn't even read all of "The Neglected
> Side of PD" which many people seemed to think I wrote.  I understand that
> hallucinations are a problem for many PWP and that is why I chose that
> article to post, but have not experienced them myself.  I don't join
> conversations about PD drugs as I don't take them.
>
> Keep in mind that 95% of the time I am "reporting" and the opinions
> expressed may not necesarily reflect my own.
>
> In the future I will try to do a better job of citing sources.  I "plain
> text" and copy the articles so you don't have to go to a URL to open them.
> The List will not accept articles over 500 lines or with lots of stuff.  By
> writing a Subject line I try to give you an idea as to what it's about.  If
> the source is omitted you can probably find it by searching using the title
> or subject line.
>
> About 3 years ago Diane Wyshak of Massachusetts approached me with the
> request to post articles she finds daily and that is what I try to do.  We
> have been partners ever since.
>
> Ray
>
> Rayilyn Brown
> Director AZNPF
> Arizona Chapter National Parkinson Foundation
> [log in to unmask]
> ----- Original Message ----- From: "William P. Taggart" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, August 26, 2008 7:25 AM
> Subject: Re: Shadow People
>
>
>  Rayilyn ~
>>
>> Thank you for sharing this with us.  I am taking Seroquel for similar
>> reasons, although you sound much further along than am I.  It's good to
>> know I'm not unique in this matter.
>>
>> I appreciate all the effort you invest in making this list interesting
>> and useful.  THANK YOU also for that.
>>
>> ABT.
>>
>> Bill Taggart
>>
>> ~~~~~~~~~~~~~~~~~~~~~
>>
>> -----Original Message-----
>> From: Parkinson's Information Exchange Network
>> [mailto:[log in to unmask]] On Behalf Of Schaaf Angus /
>> Meadow Creek Ranch
>> Sent: Monday, August 25, 2008 6:01 PM
>> To: [log in to unmask]
>> Subject: Re: Shadow People
>>
>> Gee Ray,
>> Sounds like loads of fun.  Just dont invite me to that party.
>> I'll just keep having fun in my slow motion  ways.
>> Take care and tell Bernie to leave you alone and dont invite others
>> over.
>> Rob
>>
>> ----- Original Message -----
>> From: "rayilynlee" <[log in to unmask]>
>> To: <[log in to unmask]>
>> Sent: Friday, August 22, 2008 1:04 PM
>> Subject: Shadow People
>>
>>
>>  I See Shadow People
>>> Filed under: Parkinson's disease, Sinemet, hallucinations, humor,
>>> medications, paranormal, shadow people, vision - Carl @ 9:01 pm
>>> Tags: antiparkinson, hallucinations, medications, paranormal,
>>> Parkinson's disease, shadow people, vision problems
>>> #26 - Haunted, originally uploaded by John Martz.
>>> One of the most peculiar things about living with Parkinson's disease
>>> has
>>>
>> to
>>
>>> be the hallucinations.
>>> Not everybody has them. However what I can tell from the experiences
>>> of others with PD, hallucinations are the rule and not the exception.
>>> In Parkinson's disease, hallucinations are almost always of the visual
>>>
>> type.
>>
>>> Though usually a side effect of taking antiparkinson medications, it's
>>>
>> often
>>
>>> a secondary symptom of the disease itself.
>>> In my case it seems that I am never alone. I tend to see very odd
>>> shadowy figures darting around me, often looking as if they are trying
>>>
>>
>>  to take
>>>
>> peeks
>>
>>> at me and then quickly hide themselves away lest I see them
>>>
>> face-to-face.
>> In
>>
>>> other words, it's like dealing with my family when I make a visit to
>>>
>> Texas.
>>
>>> According to a publication by the National Parkinson's Foundation,
>>> hallucinations experienced by those with Parkinson's disease "may be
>>> seen darting out of the corner of the eye, or crawling bugs will be
>>> seen in pattered wall coverings or floor tiles, seeing small people,
>>> children and animals."
>>> Welcome to my world. I generally see the phenomenon known as shadow
>>>
>> people.
>>
>>> For you ghost hunters out there, you know what I am talking about. Now
>>>
>>
>>  I believe these are just hallucinations, but a good friend of my who
>>> investigates the paranormal has offered an alternative explanation and
>>>
>>
>>  way of dealing with these things.
>>> You see, there's very little I can do about the shadow people. They
>>> peak around corners and furniture. They climb up the walls. They
>>> sometimes rush up from behind me. I see them in the corner of my eye,
>>> but when I turn to them they disappear. Once in a while they will dare
>>>
>>
>>  to prance out right in front of me, but this is very rare.
>>> I generally ignore these shadow people. In my mind they are
>>> hallucinations caused by either my antiparkinson drugs, my disease, or
>>>
>> both.
>>
>>> My friend who is interested in the paranormal suggests that my
>>> medication and/or the disease make me open to see what I otherwise
>>> would not be able
>>>
>> to
>>
>>> see. He also suggests trying to have conversations with the shadow
>>>
>> people.
>>
>>> I don't know if I'm ever going to have conversations with these
>>> things,
>>>
>> but
>>
>>> I do think I'm going to name one of them. You see, often when I'm
>>> trying
>>>
>> to
>>
>>> watch television one of these shadow people peaks around the corner
>>> from
>>>
>> the
>>
>>> hallway to look at me. It is always the same movement, always the same
>>>
>>
>>  shadowy figure, and it always disappears when I turn to look at him
>>>
>> straight
>>
>>> on.
>>> I shall name him Bernie. I don't think I will talk to Bernie as Bernie
>>>
>>
>>  has no interest in starting up a conversation with me. In fact, Bernie
>>>
>>
>>  is starting to piss me off a little bit. I tried to watch television,
>>> and as those of you who read this blog know I have a hard time with my
>>>
>>
>>  vision as
>>>
>> it
>>
>>> is. I don't need no shadow person named Bernie peeking around the
>>> corners
>>>
>> to
>>
>>> take my attention away from my stories to look at him when all he's
>>> going
>>>
>> to
>>
>>> do is disappear anyway.
>>> Should Bernie do this during some other activity, like when I'm trying
>>>
>>
>>  to read a book, or during an infomercial, sure why not? Otherwise I'm
>>> just going to ignore him.
>>> Of course should Bernie decide to walk up to me and start a
>>> conversation, you folks will be the first to know. after, of course,
>>> I've called a
>>>
>> priest
>>
>>> and had my home exorcised.
>>>
>>> Rayilyn Brown
>>> Director AZNPF
>>> Arizona Chapter National Parkinson Foundation [log in to unmask]
>>>
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