thanks, Susan.
Ray
Rayilyn Brown
Director AZNPF
Arizona Chapter National Parkinson Foundation
[log in to unmask]
----- Original Message ----- 
From: "Susan Kline" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, October 16, 2008 5:26 PM
Subject: Re: Joan's Schuller letter re PD cure


Hi Ray,

Here you go:

Dr. Robert H. Schuller
Crystal Cathedral Ministries
P.O. Box 100
Garden Grove, CA 92842



Best,
Susan



> Date: Wed, 15 Oct 2008 09:56:55 -0700> From: [log in to unmask]> Subject: 
> Re: Joan's Schuller letter re PD cure> To: [log in to unmask]> 
>  > Susan> > Would you have an address for Schuller so we can write to him?> 
>  > Thanks, Ray> Rayilyn Brown> Director AZNPF> Arizona Chapter National 
> Parkinson Foundation> [log in to unmask]> ----- Original Message ----- > 
> From: "Susan Kline" <[log in to unmask]>> To: 
> <[log in to unmask]>> Sent: Tuesday, October 14, 2008 7:36 AM> 
> Subject: Re: Joan's Schuller letter re PD cure> > > Dear Listserv Members, 
> Starting this past Sunday while I was out all day at > an event for 
> Parkinson's, I began getting calls of excitement about Dr. > Schuller's 
> announcement. I got the calls from people not prone to getting > overly 
> convinced at first announcements of the many claims that can be out > 
> there. So first thing yesterday, after more calls coming my way, I called 
>  > the Crystal Cathedral and identified myself. The person answering the 
> phone > apparently had been getting calls...well, you can imagine! She 
> said Dr. > Schuller issued a statement that there was no more information 
> yet. I > jumped on the word "yet"...and then she said that the program was 
> a > rebroadcast of a previously pre-recorded program. She could not give 
> me the > date of the original broadcast...but this is somehow ringing a 
> bell with me > that this was not very recent. To have to report this 
> cruel, cruel follow > up news to those I care about...and especially to 
> have to cradle in my arms > my disappointed PWP loved one who heard the 
> Dr. Schuller cliff hanging > statement on television....has prompted me to 
> also write a letter to the > senior Dr. Schuller. He was completely out of 
> line in the first place to > make such a reckless statement without 
> considering the consequences and > impact this would have on a most brave 
> group of people suffering from PD and > who cling to any bit of realistic 
> hope. But then, to not have anyone > monitor and edit previous broadcasts 
> is completely unacceptable. Leaders > who have won the confidence of those 
> listening to them have the moral > obligation to consider the hearts and 
> hope of those people who trust them. > Reckless carrot dangling without 
> any disclaimer was quite damaging, > regardless of best intentions, and, 
> therefore, I support Joan's comments. > I urge others to contact Dr. 
> Schuller as I will. The Parkinson's Community > deserves an explanation 
> and a most humble apology. Still believing in > verifiable research and 
> realistic hope for victory,Susan KlineExecutive > DirectorThe Hazel 
> Hutchman Memorial Neuroscience CenterReseda, California> > > Date: Tue, 14 
> Oct 2008 09:35:51 +0100> From: [log in to unmask]> > > Subject: Re: 
> Joan's Schuller letter re PD cure> To: > > [log in to unmask]> 
>  > My response - if genuine - come in > > through the front door with 
> proof, don't > sneak around like a cheap > > confidence trickster.> > 
> Quoting rayilynlee <[log in to unmask]>:> > > > > Joan would like to hear 
> your response> > > > Rayilyn Brown> > Director > > AZNPF> > Arizona 
> Chapter National Parkinson Foundation> > > > [log in to unmask]> > -----  
> Original Message ----- > > From: Joan > > Blessington Snyder> > To: 
> rayilynlee> > Sent: Sunday, October 12, 2008 > > 8:07 PM> > Subject: about 
> rev. schullers cure> > > > > > i wanted to know > > what the listserv 
> thinks about it.> > > > Dear Sir:> > I think you do an > > tremendous 
> disservice to your parishioners and also to the> > > > entire > > 
> Parkinson's community by announcing from your pulpit that there is a > > > 
>  > "cure" for Parkinson's Disease.> > > > I think that the way you 
> pronounced > > this news was steeped in innuendos and > > secrecy: not 
> naming the > > researcher, not saying which national PD foundation > > was 
> sent his > > "triple checked" paper and then not even being clear about 
> when> > > > he > > would appear on your show.> > > > Perhaps you do not 
> understand just what > > is at stake here for a desperate > > group of 
> people who live with this > > damn disease daily-for you to actually > > 
> drop this type of verbal > > bombshell and then to not explain yourself is 
>  > > unconscionable. It makes > > my life just that much harder as an 
> advocate for > > awareness and > > fundraiser for PD research.> > > > Now 
> that people have heard it from you, > > they will assume that this another 
>  > > thing they can cross off their list > > of worrisome things to think 
> about and > > assume that all is well in that > > little corner of their 
> world. If this man > > really has made a > > breakthrough in his research, 
> it will take many years for > > his > > treatment to trickle down to the 
> ranks of the patients like myself (dxed> > > > > > for 18 yrs) . And 
> people will still be getting this dreadful > > diagnosis > > daily.> > > > 
> I don't know what you can do to repair the > > damage that your reckless > 
>  > comments have already done...but I hope that > > you can resolve this 
> situation > > quickly.> > Respectfully,> > > > Joan > > Blessington Snyder 
>  > > > > > 
>  > ----------------------------------------------------------------------> 
>  > > > To sign-off Parkinsn send a message to: > > 
> mailto:[log in to unmask]> > In the body of the message put: > 
>  > signoff parkinsn> > > > > > > > 
>  > ----------------------------------------------> This mail sent through > 
>  > http://www.ukonline.net> > > 
>  > ----------------------------------------------------------------------> 
>  > > To sign-off Parkinsn send a message to: > > 
> mailto:[log in to unmask]> In the body of the message put: > > 
> signoff parkinsn> 
> _________________________________________________________________> Check 
> the weather nationwide with MSN Search: Try it now!> 
> http://search.msn.com/results.aspx?q=weather&FORM=WLMTAG> ----------------------------------------------------------------------> 
> To sign-off Parkinsn send a message to: 
> mailto:[log in to unmask]> In the body of the message put: 
> signoff parkinsn > 
>  > ----------------------------------------------------------------------> 
> To sign-off Parkinsn send a message to: 
> mailto:[log in to unmask]> In the body of the message put: 
> signoff parkinsn
_________________________________________________________________
Search from any Web page with powerful protection. Get the FREE Windows Live 
Toolbar Today!
http://get.live.com/toolbar/overview
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn 

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn