I tried a local support group, they're nice people but 20-30  years my senior 
& we've nothing in common (I was a young-ish onset - 47), plus one member 
turned out to be one of my old teachers who did not have fond memories !

Quoting rayilynlee <[log in to unmask]>:

> thanks Kathleen.  I tried several support groups and did not care for them. 
> Same thing when I had cancer - it was very depressing!!
> Ray
> Rayilyn Brown
> Director AZNPF
> Arizona Chapter National Parkinson Foundation
> [log in to unmask]
> ----- Original Message ----- 
> From: "Kathleen Cochran" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Saturday, November 15, 2008 8:00 AM
> Subject: Re: I have just been diagnosed with Parkinson's
> 
> 
> >I believe support groups are not for everyone and can be counterproductive.
> > A positive attitude is of paramount importance in living with this 
> > disease,
> > and support groups can undermine that. It's next to impossible to look at
> > someone whose condition is worse than yours and not imagine that this is
> > your future. That is not only dispiriting, but also wrong. PD is 
> > notoriously
> > variable in symptoms and progression from one person to the next. You 
> > can't
> > predict based on someone else's experience what your course will be.
> >
> > That said, some people thrive on support groups.
> >
> > I also think those who love and care for PD patients may benefit from
> > support groups at least as much as patients do.
> >
> > Kathleen
> >
> > 2008/11/14 Gerry Haines <[log in to unmask]>
> >
> >>
> >> In a message dated 11/12/2008 2:00:33 A.M. Eastern Standard Time,
> >> [log in to unmask] writes:
> >>
> >> The most  important thing a newly diagnosed Parkinson's patient can do is
> >> to
> >> find a  support group.  I know that it can be hard to see how PD affect
> >> those
> >>
> >> who suffer long term disease, but people in a support group generally 
> >> know
> >> where the best movement disorder specialists practice.  It is the one
> >>  regret
> >> I have when I look back on my husband's PD journey (which lasted 28
> >>  years).
> >> We wasted years looking for the 'right' neurologist when that  fellow
> >> practiced right under our noses not more than 15 miles away.   My husband
> >> suffered unnecessarily because he was afraid to go to a support  group.
> >>
> >>
> >>
> >> Been there have done that.  Have to agree, except I think a good  neuro. 
> >> is
> >> first., I lost my husband  in April, after 22 years of  dealing with this
> >> disease.  I have advocated, spoken, been everywhere  trying to find a 
> >> cure.
> >>  I run
> >> a support group, and they are wonderful, but  Brig would not go either 
> >> for
> >> the
> >> first 7 years.  Just please take an active  part.
> >>
> >>
> >> Gerry Haines
> >> Pennsylvania State Coordinator.
> >> Parkinson's Action Network
> >> "Do  something good for someone you least like today."
> >> St. Anthony of  Padua
> >>
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