Tie their ankles together and tell them to walk.  this would be good,  I
think, as they would be forced to take short shuffling steps and would 
trip themselves. One hand tied behind back would be a nice touch.

Ray, this is really a good one. I think this can be a good idea - I will suggest to my colleagues to include this as one of the programs in the next World PD Day event at Malaysia. I am sure the Press will be happy to take a photo of healthy volunteers on the stage taking part in this PD simulation. 

Recently a group of students walked blindfolded in the street to promote awareness of the blind people. 

NK  

> Date: Wed, 19 Aug 2009 11:52:25 -0700
> From: [log in to unmask]
> Subject: Re: Re another simulation
> To: [log in to unmask]
> 
> Sami
> 
> guilty as charged!!  I just think PD is an ornery, wicked disease, not the 
> worst maybe, but bad enough.
> 
> Ray
> 
> Rayilyn Brown
> Director AZNPF
> Arizona Chapter National Parkinson Foundation
> [log in to unmask]
> 
> --------------------------------------------------
> From: "Sami" <[log in to unmask]>
> Sent: Wednesday, August 19, 2009 1:47 AM
> To: <[log in to unmask]>
> Subject: Re: Re another simulation
> 
> > Good grief, Ray.  You really do have a little ornery streak hiding inside,
> > don't you???  LOLOL
> >
> > Sami
> >
> > -------Original Message-------
> >
> > From: rayilynlee
> > Date: 8/18/2009 11:03:24 PM
> > To: [log in to unmask]
> > Subject: Re another simulation
> >
> > tie their ankles together and tell them to walk.  this would be good,  I
> > think, as they would be forced to take short shuffling steps and would 
> > trip
> > themselves.   one hand tied behind back would be a nice touch.
> >
> > Ray
> >
> > Rayilyn Brown
> > Director AZNPF
> > Arizona Chapter National Parkinson Foundation
> > [log in to unmask]
> >
> > --------------------------------------------------
> > From: "Duggan, Meg" <[log in to unmask]>
> > Sent: Monday, August 17, 2009 11:54 PM
> > To: <[log in to unmask]>
> > Subject: Re: A more suitable name for PD. And an idea you can help with!!
> >
> >> Here in KS, we are almost done with something we are calling the "one in 
> >> a
> >> million challenge" tag line: For more than a million Americans with PD,
> >> simple daily tasks can be major obstacles.  What would it be like if you
> >> were in their shoes? Take this simple challenge and find out. (early
> >> thoughts!)
> >>
> >> So, we are still in development, but have a velcro walk - as it sounds,
> >> long velcro carpet with velcro shoes to simulate feet stuck to the floor.
> >> We have a bunch of very cool cognition tests, which we have people do 
> >> then
> >> we distract them or make them much more dificult to simulate loss of
> >> executive function - just trying to show how much harder it is to walk
> >> through the world with PD.  Doing some adl stuff - get coupons, get 
> >> money,
> >> sign a check, timed and with added issues like a pen that vibrates and
> >> super small lines to write in.  Button, buckle, lace, zip - all of it 
> >> just
> >> a bit harder, we've had some gloves made for people to put on for those
> >> tasks.  Anyway, you probably get the idea.  We are going to travel with
> >> this - to places that don't usually care about PD - like outdoor music
> >> fests and places where the young and partyish hang out - hoping to give
> >> them an experience that they will remember and bring them aboard to our
> >> cause. Its fun and quite a moving experience - feedback is all good so
> >> far.
> >>
> >> So - all this is to say that I am thinking the Tshirt, super duper pain 
> >> in
> >> my brain etc.. might really be a fabulous and fun kind of thing.  I'm 
> >> sure
> >> if you did it in some very cool and graphic way, you could get young
> >> people asking other young people ( substitute trendy, engaged, 
> >> interested,
> >> philanthropic, anyone with time. money, energy and passion for young)
> >> asking about the shirt and what it means.
> >>
> >> I'm loving the super duper pain in my brain vibe...
> >>
> >> I'd also love ideas.  We are trying to invent the simulations, trial and
> >> error so far, and would love ideas.  We have some cash to devote to this,
> >> and really want to make it a very professional, profoundly moving
> >> experience.  Thoughts anyone???
> >>
> >> Love you guys one and all! Meg
> >>
> >> ________________________________
> >>
> >> From: Parkinson's Information Exchange Network on behalf of Kathleen
> >> Cochran
> >> Sent: Mon 8/17/2009 7:55 AM
> >> To: [log in to unmask]
> >> Subject: Re: A more suitable name for PD.
> >>
> >>
> >>
> >> I see T shirts!
> >>
> >> Kathleen
> >>
> >>
> >>
> >> 2009/8/17 Moneesha Sharma <[log in to unmask]>
> >>
> >>> Love this!
> >>> Moneesha
> >>>
> >>>
> >>>
> >>> 2009/8/17 MyFirstname Mylastname <[log in to unmask]>
> >>>
> >>> > I totally agree............let's not lose sight of what needs to be
> >>> > done
> >>> > here......a cure and not a  new name.
> >>> > It's difficult enough raising funds for research for a disease we can
> >>> > pronounce...........Try raising awareness for the
> >>> >
> >>> >
> >>> SuperDuperPainInMyBrainStiffBodyShakyQuakyDroolin'WhoAmIFoolin'I
> > veBeenHitByaTruckThisDiseaseReallySucks
> >>> > Research Foundation.
> >>> >
> >>> > ----------------------------------------------------------------------
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> >>>
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