In a message dated 7/21/2009 9:01:43 P.M. Pacific Daylight Time,  
[log in to unmask] writes:

There  are 9 messages totalling 818 lines in this issue.

Topics of the  day:

1. Vision Problems in PD
2. Exercise  Tips
3. Fw: Forced exercise for Parkinson's - video
4.  Lack of Centenarians with PD; DBS Surgery Methods
5. Scolosis  Prevalent in PD
6. coffee: the superdrink (2)
7. Fw:  Azilect, a new weapon to fight against Parkinson's disease |
Everyday...
8. Fw: Azilect, a new weapon to fight  against Parkinson's disease | 
Everyday
Science

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In a message dated 7/21/2009 9:01:43 P.M. Pacific Daylight Time,  
[log in to unmask] writes:
There  are 9 messages totalling 818 lines in this issue.

Topics of the  day:

1. Vision Problems in PD
2. Exercise  Tips
3. Fw: Forced exercise for Parkinson's - video
4.  Lack of Centenarians with PD; DBS Surgery Methods
5. Scolosis  Prevalent in PD
6. coffee: the superdrink (2)
7. Fw:  Azilect, a new weapon to fight against Parkinson's disease |
Everyday...
8. Fw: Azilect, a new weapon to fight  against Parkinson's disease | 
Everyday
Science

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Date:   Mon, 20 Jul 2009 20:07:42 +0530
From:    Moneesha Sharma  <[log in to unmask]>
Subject: Re: Vision Problems in  PD

Thanks Jim,
As always, you have posted something so useful.   Prem has a lot of trouble
with his vision and the neuro-ophthalmologist  whom we consulted said that
his double vision was due to the  Parkinson's.  Apparently he has a squint
that can be either in one eye  or the other so no correction, such as with a
prism, is possible.  He  too suggested covering one lens of his reading
glasses while reading.   Prem is trying to get accustomed to that.  I
imagine, though, that he  will find it difficult to cope with three 
different
pairs of spectacles,  however excellent the suggestion.
Thanks again.
Moneesha
Calcutta,  India

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Date:   Mon, 20 Jul 2009 08:26:51 -1000
From:    Kevin Lockette  <[log in to unmask]>
Subject: Re: Exercise  Tips

Thanks for your note Tom.  Below is another chapter from the  Move It 
projec=
t
(www.parkinsonsmoveit.com) that is relevant to most  folks.  It is the text
version (without  photos/illustrations).

Much aloha,

Kevin


CHAPTER  EIGHT



LEVEL TWO: Moderate symptomatic (Impaired balance   requires assistive
device.)



This group of exercises is good  for those of you with minimal to moderate
impaired balance.  These  exercises may also require more complex movements
involving multiple limbs  that require greater coordination than more simple
exercises.  If you  have a history of falling and/or use an assistive device
that requires just  one hand such as a cane, you may find these exercises
appropriate. You may  also modify the more advanced leg and balance 
exercise=
s
by using some  support of your arms. If your balance is impaired to the 
leve=
l
that  does not allow for you to safely perform exercises in stance,  please
proceed to the sitting and mat exercises (Level  one).



.    The recommendation is to start out with 1  set of 10 repetitions for
each exercise and build up to performing 2-3 sets  of 10 as you can tolerate
it.  I suggest that you also break up the  exercises into different days so
that you are not performing such a large  volume of exercises at one time.  
=
One
suggestion is to perform  the sitting exercise on opposite days of the mat
exercises.  A good  schedule would be to perform the sitting group on 
Monday=
,
Wednesday,  Friday and the mat exercise group on Tuesday and Thursdays.   
The
following week, you can then reverse the days.  I also recommend  that you
limit your time to spending 20-30 minutes maximum per exercise  session.  It
is much better to get into the habit of exercising daily  for 15-20 minutes
than not exercise daily and try to do too much to make up  for missing days.
If you do not get through all of the exercises in the  list, just pick up
where you started on the next day when you perform that  group (sitting or
mat) exercise.



SUGGESTED EXERCISE  LIST:



a.       Modified Standing Exercise  routine.

1.) Static wall standing with chair

2.) Wall standing  arm raise

3.)Wall standing arm diagonals

4.)Wall squats with  chair



b.      Mat exercise  routine

1.      Bridges

2.       Lower Trunk Rotation

3.      Supermans

4.   Airplanes



STANDING WALL EXERCISES

* *The  standing exercises in this category will require the ability for
general  balance with or without the need for upper extremity support.    If
your balance is impaired to the level that does not allow you to  safely
perform the standing exercises, please proceed to sitting and mat  
exercises=
.


* *

Static Wall Standing

*INSERT  Chapter 8 Image 1*

EXERCISE POSITION:  Stand with heels, buttocks,  shoulders and head against
wall and hold posture for 30  seconds.



PURPOSE:  The emphasis is on promoting an erect  posture.  The contact with
the wall gives the postural muscles  feedback and a guide.  The tendency is
for the PD symptoms to want to  pull you forward.  Many of you may feel like
someone is behind you  pushing you forward as your muscles may not be used 
t=
o
holding you up  straight.  If you can retrain your muscles to maintain a  
mor=
e
erect posture, your skeletal system will be more mechanically  stacked
actually requiring less energy to maintain an upright  position.

* *

EXERCISE MODIFICATION FOR DECREASED  BALANCE:*  You c*an also perform the
above exercise with a walker or  tall back chair turned around and in front
of you.  Try to minimize  the weight-bearing through your arms, but you have
the comfort of the  support for safety.

*INSERT Chapter 8 Image 1B static wall standing  with chair*

Wall standing arm raise

*INSERT Chapter 8 Image 2A  and 2B and 2Cwall standing arm raise*

START POSITION:  Stand with  heels, buttocks, shoulders and head against
wall.  Bring up your arms  to where your elbow is same level as your 
shoulde=
r
with your elbow  bent to 90 degrees.  Maintain as much contact of your arms
with the  wall as possible.


ACTION/FINISH POSITION: Pinch your shoulder  blades together and maintain
full contact with the wall as you slowly raise  your arms overhead until 
you=
r
elbows are completely straight.   Hold this position for 10 seconds and
slowly return back to start  position.



PURPOSE:  To stimulate and work the postural  muscles as you move your arms.
This exercise also promotes stability of  your scapular muscles which will
assist in maintaining functional strength  and range of motion in your arms
for activities of daily  living.

Wall standing alt leg lift

*INSERT Chapter 8 Image 3A  and 3B*

START POSITION:  Stand with heels, buttocks, shoulders and  head against
wall.



ACTION/FINISH POSITION: While maintaining  contact with the wall,
purposely shift
your weight to the right leg and  lift the opposite leg (left). Return to
starting position and perform to  opposite side and repeat by alternatly
lifting your  legs.



PURPOSE:  To stimulate and work the postural muscles  as you shift weight to
off load your opposite leg.  This exercise  promotes good posture while you
move dynamically and trains you in  =93anti-freezing techniques=94 by
consciously, purposely engaging in  controlled movement.



EXERCISE MODIFICATION FOR DECREASED  BALANCE:*  You c*an also perform the
above exercise with a walker or  tall back chair turned around and to the
side of you.  Try to minimize  the weight-bearing through your arms, but you
have the comfort of the  support for safety.

* *

Wall Standing Diagonals

*INSERT  Chapter 8 Image 4A and 4B*

Intermediate

START POSITION:   Stand with heels, buttocks, shoulders and head against 
wal=
l
with hands  over opposite hip.



ACTION/FINISH POSITION: Maintaining contact  with the wall during the
exercise. Pinch your shoulder blades together  while  lifting your arms
simultaneously in a diagonal position until  your arms are overhead with
elbows extended.



PURPOSE:   To stimulate and work the postural muscles as you move your arms.
This  exercise also promotes stability of your scapular muscles which will
assist  in maintaining functional strength and range of motion in your arms
for  activities of daily living.



Wall standing squats

*INSERT  Chapter 8 Image 5A and 5B*

START POSITION:  Stand with heels  approximately 18 inches away from the 
wal=
l
with your buttocks,  shoulders and head against wall.



ACTION/FINISH POSITION:  Maintain your buttock, shoulders, and head in
contact with the wall while  you slide down the wall.  The bottom of the
squat position will be  dictated by your strength, but you should not squat
deeper than 90 degrees  at the hip which is when your hip and knees are at
the same level.   The deeper the squat, the greater strength is required.   
O=
ne
modification is to place your feet further away from the wall  which
decreases weight-bearing there to make the exercise  easier.



PURPOSE:  To stimulate and work the postural  muscles, in particular hip
extensors (gluteals)  and knee extensors  (quadriceps).

MAT EXERCISES

*  *The mat exercises do not  require very much balance and are appropriate
for everyone as long as you  can achieve the required positions.  The
positions that may be the  most difficult to achieve are the exercises
requiring for you to lie   on your stomach. The focus of mat exercises are
the same as the wall  exercises, which is to encourage purposeful movement
and to strengthen the  postural muscles to better combat the forward
posturing and other related  PD symptoms.

Supine (Lying on Back)

Bridges

*INSERT  Chapter 8 Image 6A and 6B*

START POSITION:  Lie down on your back  with your elbows in contact with the
bed or mat and arms resting on stomach  or with arms crossed on chest.  
Thes=
e
alternate arm positions  lessen the contact of the upper extremities making
the exercise more  challenging. Bend both of your knees to where your feet
are flat on the mat  or bed.



ACTION/FINISH POSITION: Hold your stomach tight as you  squeeze your 
buttock=
s
muscles and lift your buttocks as high off the  mat or bed as possible.  
Hol=
d
the bridge position for 5 seconds  and return to starting position.



PURPOSE:  This exercise  focuses on the postural muscles for hip and back
extension.  Your hip  and back extensors will aid you in maintaining the
strength and motion for  a more upright posture.

* *

Lower trunk rotation (Wind shield  washers):**

*INSERT Chapter 8 Image 7A and  7B*

Beginning

START POSITION:  Lie down on your back with  your arms extended by your 
side=
.
Bend both of your knees to where your  feet are flat on the mat or bed.



ACTION/FINISH POSITION:  Maintain your shoulders in contact with the bed
during the entire  exercise.  While keeping your knees and feet together,
roll your knees  as far to the right as possible (You will feel a stretch on
the opposite  side). Hold for 3 seconds and then roll your knees as far as
possible to  the left side. Return to starting position and then repeat for
the desired  amount of repetitions.



PURPOSE:  This exercise focuses on  trunk rotation.  Flexibility in your
trunk or pelvic rotation is  essential for maintaining an efficient gait or
walking pattern as well as  general mobility such as getting in and out of a
car or out of  bed.

* *

Superman

*INSERT Chapter 8 Image 8A and  8B*

START POSITION:  Lie flat on your stomach with your arms  hanging down over
the edge of your mat or bed.

ACTION/FINISH  POSITION: Lift your arms straight up in front of you as high
as you can as  if you are flying like superman. Hold this position for 5
seconds and  repeat to complete the desired  amount of repetitions.  Keep
your  head and neck neutral with your eyes gaze straight down.  Do not  look
or gaze forward which will hyper-extend your  neck.



PURPOSE:  To stimulate the postural muscles in your  upper back (posterior
shoulder and scapular muscles.  Strength in  these muscles will greatly aid
your posture and assist you in preventing  the rounded shoulders and 
tendenc=
y
for =93forward posturing=94.   This also aids in maintaining the flexibility
needed in your shoulders for  activities of daily living such as upper
extremity dressing, bathing and  grooming.

* *

Airplane

*INSERT Chapter 8 Image 9A &  9B*

START POSITION:  Lie flat on your stomach with your arms  hanging down over
the edge of your mat or bed.

ACTION/FINISH  POSITION: Lift your arms out to side with your wrist, elbow
and shoulders  in the same plane as high as you can as if you are flying 
lik=
e
an  airplane. Hold this position for 5 seconds and repeat to complete  the
desired amount of repetitions.  Keep your head and neck neutral  with your
eyes gaze straight down.  Do not look or gaze forward which  will
hyper-extend your neck.



PURPOSE:  To stimulate the  postural muscles in your upper back (posterior
shoulder and scapular  muscles.  Strength in these muscles will greatly aid
your posture and  assist you in preventing the rounded shoulders and 
tendenc=
y
for  =93forward posturing=94.  This also aids in maintaining the  
flexibility
needed in your shoulders for activities of daily living such as  upper
extremity dressing, bathing and grooming.


On Sun, Jul 19,  2009 at 1:56 AM, Tom Clift <[log in to unmask]> wrote:

>  Kevin,
>
> This post is most timely for me.  I would  appreciate any other 
informatio=
n
> you would be willing to  share.
>
>
>

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Date:   Mon, 20 Jul 2009 18:31:05 -0700
From:    rayilynlee  <[log in to unmask]>
Subject: Fw: Forced exercise for Parkinson's -  video

Rayilyn Brown
Director AZNPF
Arizona Chapter National  Parkinson Foundation
[log in to unmask]


From: Diane  Wyshak=20
Sent: Monday, July 20, 2009 5:35 PM
To: ray ; chew Nee  Kong=20
Subject: Forced exercise for Parkinson's - 7/20/09 - New York News  and =
Tri-State News -  7online.com



http://abclocal.go.com/wabc/story?section=3Dnews/health&id=3D6924201  

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Date:   Mon, 20 Jul 2009 15:05:39 +0200
From:    Maryse Schild  <[log in to unmask]>
Subject: Re: Lack of Centenarians with PD; DBS  Surgery Methods

> If two things were true of PD, that it increases  with age and contributes
> to
> an earlier death than normal, then  might we not find few if any cases of
PD
> in centenarians?
>  -Ken
> 


in a way yes but you would have to take into account  the ones starting
around 80 years old and there doesn't seem to be many. so  if you reach a
ripe old age without PD, chances are you will not develop it  although it is
supposed to be an old age disease
maryse (still without a  computer)

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Date:   Mon, 20 Jul 2009 06:52:51 -0500
From:    PATTI ZAPF  <[log in to unmask]>
Subject: Re: Scolosis Prevalent in  PD

That's alright.  Thank you for reaching out to  help:>)
kind regards
patti

On Jul 19, 2009, at 10:58 AM,  [log in to unmask] wrote:

> Sorry Patti:
>
> I just saw the  link to the brace and the promotion about it and  
>  forwarded
> it without any examination of cost.
>
>  Paul
>
>
>
> In a message dated 7/18/2009 2:00:39 A.M.  Eastern Daylight Time,
> [log in to unmask] writes:
>
>  thank  you.  the SpineCor brace is $5000!!!
> we  called...
> right now alan is  getting home health physical therapy  3x week, along
> with  chiropractic 1x wk, due to a small auto  accident over the 4th.
> these providers are coming to our home.
>  the pt has used an ultrasound  instrument on alan's lower back and  was
> able to bring some  relief!!!  he has also done  resistance exercises  
> on
> alan.   we have a  massage table in our library that makes this
> possible.  bought  the table on craigslist for $150 .
> i think the  ultrasound  instrument costs around $1500 and you have to
> be licensed  to use  it (pt said).  alan says the chiropractor brings
> him the   most relief.  this chiropractor is the only one he has found
> that  brings him relief.  i don't think it makes a difference that   she
> is a female:>)  he has tried several chiropractic   doctors in our town
> and none brought relief like this gal. she is  a  fairly young, hands  
> on
> doctor and has taken a  special interest in  alan's needs.  lucky us:>)
> alan said  last night he feels the best  he's felt in a long time.  too
>  bad these therapies won't last  for ever, as the insurance will  run
> out.  alan will go back to  square one, when the  therapies end i  
> suppose.
> i wish i could add a  picture  to this list serve and show you what the
> mucana bean  looks  like.  it has a huge leaf and grows 12-15" a day!
>  curls  around everything in its path.  i have tall tomato cages  around
> most of them and keep the runners inside the cage.
> no  flowers yet, but  soon:>)
> patti cg15
>
> On Jul  16, 2009, at 4:07 PM, [log in to unmask]  wrote:
>
>> Hope  this link opens
>>
>> _Home Page -   SpineCor_  (http://www.spinecorporation.com
> /English/index.htm
>>  )
>>
>>
>> Paul H.   Lauer
>>
>>
>>
>>
>> In a message  dated 7/15/2009  2:00:43 A.M. Eastern Daylight Time,
>>  [log in to unmask]  writes:
>>
>> thank  you  everyone for your input and  help:>)
>> my whole life has  been when i  grow up i'll figure it  out, well  
>>  now i
>> am grown up and figuring it  out is a whole lot   easier, with the  
>> help
>> on this amazing   exchange.
>> best  regards to all of you~
>> patti cg  15
>>
>> On Jul 14,   2009, at 1:31 AM, mschild  wrote:
>>
>>>> an xray taken from  the side   view last week , showed an s shape to
>>>>  his
>>>> spine, .  a view  from the center back was  not  available.
>>>> there is a brace called  spine  cor that we are  trying to find
>>>> availability.   has  anyone used this  or bought it? or know how
>>>>  much it
>>>>  costs?
>>>
>>>
>>> I have seen many long  time PWP with  a scliosis.  PD very often
>>> affects  one side
>>> more  than the other so  there is an  imbalance between the muscles
>>> maintaining
>>> the  spine. At first it seems it is only malposition  but with time   
>>> it
>>> develops
>>> into a fixed  scoliosis. The  leaning on one side can  be corrected   
>>> at
>>> first  with
>>> adequate  medication but in  the long run it becomes more    
>>> pronounced,
>>> especially
>>> when  tired. Some days worse  than others that is why I don't think  a
>>> brace
>>> would be  very helpful unless you  have a lot of  exercise. Braces
>>> usually  tend
>>> to weaken muscles since  they don't have to  work  anymore to keep
>>> posture.
>>> JOhn   ,after 20 years of  PD has a fixed scoliosis. no need to   
>>> Xray or
>>> MRI to
>>> confirm  something that is obvious. It can also be painful,
>>>  obviously.
>>> The best prevention is exercises for the   back. Massage of  painful
>>> spinal
>>> muscles  will  relieve some of the  pain
>>> maryse cg JOhn   80  /+-60
>>>
>>>  ----------------------------------------------------------------------
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>>
>>  **************S T R E T C  H  your technology dollars with  great  
>> laptop
>> deals from   Dell!
>>
>  
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Date:   Mon, 20 Jul 2009 18:35:36 -0700
From:    rayilynlee  <[log in to unmask]>
Subject: coffee: the superdrink

Coffee:  the daily superdrink
July 20, 9:05 AM

Coffee has been in the news as  being a good-for-you and bad-for-you 
substance, and nobody really knows  what to believe. There's good news for 
java drinkers, which is coffee is  good for you as long as you don't drink 
five cups in one sitting.   What are the benefits?

Brain: Antioxidants help prevent cell damage  associated with Parkinson's 
disease, and caffeine prevents inflammation  associated with Alzheimer's 
disease.

Teeth: Coffee that is  caffeinated breaks loose bacteria on teeth that 
cause 
enamel  erosion.  Oral cancer risk is also greatly diminished for coffee  
drinkers.

Skin: Caffeine does more than stimulate your nervous  system.  It also 
stimulates your body's white blood cells to kill  pre-cancerous cells, and 
the ability to inhibit tumor growth. As little as  2 cups of coffee each 
day 
can lower your risk of melanoma.

Lungs:  Caffeine helps to open constricted airways of asthma patients.  The 
 
warmth of a cup of coffee also is more soothing to the respiratory system.  
Cold often shocks the body and makes it want to restrict.

Author:  Elaina Lee

Rayilyn Brown
Director AZNPF
Arizona Chapter National  Parkinson Foundation
[log in to unmask]  

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Date:   Mon, 20 Jul 2009 09:39:52 EDT
From:    Tabatha Dagata  <[log in to unmask]>
Subject: Re: Fw: Azilect, a new weapon to fight  against Parkinson's 
disease | Everyday...

I've been taking Azilect for  2-yrs with no side affects or problems. I am  
on the max dose.  

Smiles,
Tabatha
**************What's for dinner tonight?   Find quick and easy dinner ideas 
for any occasion.  
(http://food.aol.com/dinner-tonight?ncid=emlcntusfood00000008)

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Date:   Mon, 20 Jul 2009 06:23:08 -0400
From:    Norine Stark  <[log in to unmask]>
Subject: Re: Fw: Azilect, a new weapon to  fight against Parkinson's 
disease | Everyday Science

I was also  prescribed a dosage of 0.5 mg a day

On Mon, Jul 20, 2009 at 2:40 AM,  Moneesha Sharma
<[log in to unmask]>wrote:

> Norine,  what dosage were you prescribed?  My husband has been prescribed 
 it
> too - a 0.5 mg/day dosage.
>  Moneesha
>
>
>
> 2009/7/19 Norine Stark  <[log in to unmask]>
>
> > Interesting - however if  you are
>
>
>
> > being prescribed Azilect please  read the
> > food and drug avoidance list - ir's ewtremely  long.  Also the lit of
> > possible uncommon side affects is  quite long & I thought scary.
> >
> > I was prescrived  Azilect in late June and within a 2-3 days of taking 
it
> my
>  > skin began to peel - no I had not been out in the sun.  My GP gave  it
> > a diagnosis of epidural dermatatis & referred me to a  dermalogidst who 
I
> > see
> > tomorrow
> >
>  >
>
>   ----------------------------------------------------------------------
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Date:   Tue, 21 Jul 2009 16:41:14 +0800
From:    chew nee kong  <[log in to unmask]>
Subject: Re: coffee: the  superdrink

Dear Ray

This is a very interesting article. Whenever  I tell people that regular 
cof=
fee / drinking is associated with a lower  risk of getting Parkinson's=2C 
mo=
st people don't seem to believe me. It  seems that the "side effects" of 
cof=
fee have overshadowed its advantages.  Some people told me that they 
develop=
palpitation after drinking coffee  but I think this is probably in their mi=
nd - the effect of coffee on  heart rhythm has been over-publicized and  
over=
-emphasized.=20

There are even some people who avoid drinking  more than one cup of coffee 
-=
"coffee-phobia".

I am a coffee lover  - I drink at least four cups per day.

Dr Chew=20

> Date:  Mon=2C 20 Jul 2009 18:35:36 -0700
> From: [log in to unmask]
>  Subject: coffee: the superdrink
> To:  [log in to unmask]
>=20
> Coffee: the daily  superdrink
> July 20=2C 9:05 AM
>=20
> Coffee has been in  the news as being a good-for-you and bad-for-you=20
> substance=2C and  nobody really knows what to believe. There's good news 
f=
or=20
>  java drinkers=2C which is coffee is good for you as long as you don't  
dri=
nk=20
> five cups in one sitting.  What are the  benefits?
>=20
> Brain: Antioxidants help prevent cell damage  associated with Parkinson's=
=20
> disease=2C and caffeine prevents  inflammation associated with 
Alzheimer's=
=20
>  disease.
>=20
> Teeth: Coffee that is caffeinated breaks loose  bacteria on teeth that 
cau=
se=20
> enamel erosion.  Oral cancer  risk is also greatly diminished for 
coffee=20
>  drinkers.
>=20
> Skin: Caffeine does more than stimulate your  nervous system.  It also=20
> stimulates your body's white blood  cells to kill pre-cancerous cells=2C 
a=
nd=20
> the ability to  inhibit tumor growth. As little as 2 cups of coffee each 
d=
ay=20
>  can lower your risk of melanoma.
>=20
> Lungs: Caffeine helps to  open constricted airways of asthma patients.  
Th=
e=20
> warmth  of a cup of coffee also is more soothing to the respiratory  
system=
.=20
> Cold often shocks the body and makes it want to  restrict.
>=20
> Author: Elaina Lee
>=20
> Rayilyn  Brown
> Director AZNPF
> Arizona Chapter National Parkinson  Foundation
> [log in to unmask]
>=20
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End  of PARKINSN Digest - 20 Jul 2009 to 21 Jul 2009  (#2009-238)
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