In a message dated 11/3/2009 12:00:43 A.M. Eastern Standard Time,
[log in to unmask] writes:

There are 8 messages totalling 599 lines in this issue.

Topics of the day:

1. Exercise & PD
2. (no subject)
3. Fwd: FW: Extraordinaire Instrument (3)
4. Newbie's introduction (3)

----------------------------------------------------------------------
To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
In the body of the message put: signoff parkinsn

----------------------------------------------------------------------

Date: Sun, 1 Nov 2009 16:23:25 +0500
From: Haroon Basheer Shaikh <[log in to unmask]>
Subject: Re: Exercise & PD

Dr chew ray, have had two 45 min sessions with an ehergy healer feeing
light and face relaxed. Any experience anyone pl share
Haroon Basheer


On 11/1/09, rayilynlee <[log in to unmask]> wrote:
> I agree totally.
>
> Rayilyn Brown
> Director AZNPF
> Arizona Chapter National Parkinson Foundation
> [log in to unmask]
>
> --------------------------------------------------
> From: "chew nee kong" <[log in to unmask]>
> Sent: Thursday, October 29, 2009 9:59 PM
> To: <[log in to unmask]>
> Subject: Re: Exercise & PD
>
>> Dear Ray
>>
>> Just like other treatments of PD (e.g. medications), the benefit of
>> exercise in PD is difficult to prove. On the other hand, there is no
>> evidence that exercise does not help in Parkinson's.
>>
>> For a progressive illness such as PD, absence of improvement does not
>> necessarily mean that the treatment (e.g. exercise) is not effective.
The
>> very fact that the condition has stabilized or the deterioration is
slower
>>
>> is already suggestive of a positive benefit of a treatment.
>>
>> Yes, the cure for PD will not arrive so soon. You have the right
>> attitude - while you are still alive, you make the best of whatever you
>> have in life. And all of us should do our best to make life better for
>> others who suffer from PD.
>>
>> All of us should remain hopeful - it doesn't hurt to keep this hope
alive.
>>
>> Dr Chew
>>
>>> Date: Wed, 28 Oct 2009 23:24:21 -0700
>>> From: [log in to unmask]
>>> Subject: Re: Exercise & PD
>>> To: [log in to unmask]
>>>
>>> John
>>>
>>> I think you are just being realistic, I don't think there will be a
>>> "cure"
>>> in my lifetime either, but we need to push for it. It gives me
something
>>>
>>> to
>>> do while I wait to die. Since I don't know when that will be, I
want
>>> to
>>> do all I can to help myself. You've perhaps heard the saying "if I had
>>> known I was going to live this long I would have taken better care of
>>> myself". Since I can barely walk I don't think I will be competing
in
>>> any
>>> sports events, but will keep on pedaling, just because it can't hurt.
>>> DBS
>>> in 2003 has controlled my tremors.
>>>
>>> Ray
>>>
>>> Rayilyn Brown
>>> Director AZNPF
>>> Arizona Chapter National Parkinson Foundation
>>> [log in to unmask]
>>>
>>> --------------------------------------------------
>>> From: "john thomas" <[log in to unmask]>
>>> Sent: Wednesday, October 28, 2009 12:51 PM
>>> To: <[log in to unmask]>
>>> Subject: Re: Exercise & PD
>>>
>>> > Personally I don't think there will be a "cure" in my lifetime.
>>> > I have had the dbs surgery and am "cured" of major symptoms. I need
to
>>> > work
>>> > o n my speech, my balance and my bike riding. In fact I wish I could
>>> > ride
>>> > for 3-4 hours per day then I could enter the Hawaii iron man team's
>>> > event
>>> > The simple fact is this is a disease of unknown etiology. As a
>>> > consequence
>>> > it gets umbrella diagnosis.
>>> > Until the origins are truly y found which is most probably a genetic
>>> > breakdown rather than a genetic hereditary trait, there will be no"
>>> > cure
>>> > ".
>>> > Not to say the origins of the disease won't be found when the human
>>> > genome
>>> > project finally makes sense, just that the cure may be worse the
>>> > disease.
>>> > I don't wish to be so negative on this but when everyone begins to
>>> > realizes
>>> > that the symptoms relief is th best we have at the moment from
>>> > degenerative process then he better weal will be roach this dieses
>>> > with
>>> > the focus on quality of life rather than a simplistic notion of
disease
>>> > therefore cure approach.
>>> > So I would say to you keep up the good work and plan on the Hawaii
>>> > ironman
>>> > event.
>>> > John Thomas
>>> > BAPS MEDICAL RADIATION
>>> >
>>> > -----Original Message-----
>>> > From: Parkinson's Information Exchange Network
>>> > [mailto:[log in to unmask]] On Behalf Of rayilynlee
>>> > Sent: Tuesday, October 27, 2009 7:04 PM
>>> > To: [log in to unmask]
>>> > Subject: Exercise & PD
>>> >
>>> > I've gotten my forced exercise of cycling up to 3 and 4 hours a day
>>> > with
>>> > no
>>> > improvement in symptoms after 3 months; however I've managed to lose
>>> > about
>>> > 5
>>> > lbs. This University of Pittsburg study claims great promise for
>>> > exercise
>>> > as PD treatment. I'm kinda hooked on it as I can watch TV and do it.
>>> >
>>> > What think you Dr. Chu?
>>> >
>>> > Ray
>>> >
http://www.barchester.com/Healthcare-News/New-Parkinson's-breakthrough-is-%2
>>> > 2tantalising%22/376/3062
>>> >
>>> >
>>> >
>>> > Rayilyn Brown
>>> > Director AZNPF
>>> > Arizona Chapter National Parkinson Foundation
>>> > [log in to unmask]
>>> >
>>> >
----------------------------------------------------------------------
>>> > To sign-off Parkinsn send a message to:
>>> > mailto:[log in to unmask]
>>> > In the body of the message put: signoff parkinsn
>>> >
>>> >
----------------------------------------------------------------------
>>> > To sign-off Parkinsn send a message to:
>>> > mailto:[log in to unmask]
>>> > In the body of the message put: signoff parkinsn
>>>
>>> ----------------------------------------------------------------------
>>> To sign-off Parkinsn send a message to:
>>> mailto:[log in to unmask]
>>> In the body of the message put: signoff parkinsn
>>
>> _________________________________________________________________
>> New Windows 7: Find the right PC for you. Learn more.
>> http://windows.microsoft.com/shop
>> ----------------------------------------------------------------------
>> To sign-off Parkinsn send a message to:
>> mailto:[log in to unmask]
>> In the body of the message put: signoff parkinsn
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>

--
Sent from my mobile device

Best
Haroon Basheer

----------------------------------------------------------------------
To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
In the body of the message put: signoff parkinsn

------------------------------

Date: Sun, 1 Nov 2009 14:59:34 EST
From: Jim Finn <[log in to unmask]>
Subject: (no subject)

commands


----------------------------------------------------------------------
To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
In the body of the message put: signoff parkinsn

------------------------------

Date: Mon, 2 Nov 2009 00:36:34 GMT
From: "[log in to unmask]" <[log in to unmask]>
Subject: Fwd: FW: Extraordinaire Instrument

Non PD. This is really amazing....A friend described it as "your brain =
on music"
=

Turn your sound on for this. Read this first, then watch. This is alm=
ost unbelievable. See how all of the balls wind up in catcher cones. =
=

=
=

This incredible machine was built as a collaborative effort between the =
Robert M. Trammell Music Conservatory and the Sharon Wick School of Engi=
neering at the University of Iowa .. Amazingly, 97% of the machines comp=
onents came from John Deere Industries and Irrigation Equipment of Bancr=
oft , Iowa ..Yes, farm equipment! =

=
=

It took the team a combined 13,029 hours of set-up, alignment, calibrati=
on, and tuning before filming this video but as you can see it was WELL =
worth the effort. =

=
=

It is now on display in the Matthew Gerhard Alumni Hall at the Universit=
y and is already slated to be donated to the Smithsonian. =


----------------------------------------------------------------------
To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
In the body of the message put: signoff parkinsn

------------------------------

Date: Sun, 1 Nov 2009 08:44:44 -0500
From: Jennifer Gaudio <[log in to unmask]>
Subject: Newbie's introduction

Hello all=2C=20

=20

My name is Jen Gaudio. I'm 38 and was just diagnosed with YOPD on October
1=
4th. I'm doing fairly well as I suspected it for a while and had time to
pr=
epare. I've been experiencing tremors=2C muscle weakness=2C spasms and
rigi=
dity in my left side since 2007. The diagnosis got confused as the worst
sy=
mptoms popped up after I had tendon repair surgery on both my legs. It
seem=
s tremors run in my family--seven have them all ranges of age--but I am
the=
first to knowingly develop into pd. I'm working on participating in some s=
tudies. I figure if I can help someone else down the line it may be worth
i=
t.=20

=20

I'm in the research and planning stages. I think that's where most of my
fr=
eakout energy is going. I found out about this listserv from "When
Parkinso=
n's Strikes Early" and here I am. I'm most interested in how to maintain
so=
me normalcy while losing independence as it progresses (I'm single and
like=
ly staying that way) work and ADA issues (I'm a museum curator) and
anythin=
g that may help slow progression and keep some level of fitness (brfore
the=
surgery I was a yoga and tai chi student and loved swimming).

=20

As a newbie I'm grateful that this listserv exists=2C thank you to all who
=
developed and support this resource.

=20

Best=2C

Jen
=20
_________________________________________________________________
Hotmail: Trusted email with Microsoft's powerful SPAM protection.
http://clk.atdmt.com/GBL/go/177141664/direct/01/
http://clk.atdmt.com/GBL/go/177141664/direct/01/

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto
:[log in to unmask]
In the body of the message put: signoff parkinsn

------------------------------

Date: Mon, 2 Nov 2009 01:17:48 -0700
From: Sami <[log in to unmask]>
Subject: Re: Fwd: FW: Extraordinaire Instrument

You forgot to send the URL so we could watch it.=0D
Sami=0D
=0D
-------Original Message-------=0D
=0D
From: [log in to unmask]
Date: 11/2/2009 12:05:25 AM=0D
To: [log in to unmask]
Subject: Fwd: FW: Extraordinaire Instrument=0D
=0D
Non PD. This is really amazing....A friend described it as "your brain =
on
music"=0D
=0D
Turn your sound on for this. Read this first, then watch. This is almo=
st
unbelievable. See how all of the balls wind up in catcher cones.=0D
=0D
This incredible machine was built as a collaborative effort between the
Robert M. Trammell Music Conservatory and the Sharon Wick School of
Engineering at the University of Iowa .. Amazingly, 97% of the machines
components came from John Deere Industries and Irrigation Equipment of
Bancroft , Iowa ..Yes, farm equipment!=0D
=0D
It took the team a combined 13,029 hours of set-up, alignment, calibratio=
n,
and tuning before filming this video but as you can see it was WELL worth
the effort.=0D
=0D
It is now on display in the Matthew Gerhard Alumni Hall at the University
and is already slated to be donated to the Smithsonian.=0D
=0D
----------------------------------------------------------------------=0D
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
=2Eca=0D
In the body of the message put: signoff parkinsn=0D
=0D
____________________________________________________________=0D
=0D
=0D
No virus found in this incoming message.=0D
Checked by AVG - www.avg.com=0D
Version: 8.5.423 / Virus Database: 270.14.44/2475 - Release Date: 11/01/0=
9
19:39:00=0D
=20

----------------------------------------------------------------------
To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
In the body of the message put: signoff parkinsn

------------------------------

Date: Mon, 2 Nov 2009 10:53:21 +0200
From: Nic Marais <[log in to unmask]>
Subject: Re: Fwd: FW: Extraordinaire Instrument

It's nonsense anyway...

See:

http://www.snopes.com/photos/arts/musicmachine.asp

Nic 57/15

On Mon, Nov 2, 2009 at 10:17 AM, Sami <[log in to unmask]> wrote:

> You forgot to send the URL so we could watch it.
> Sami
>
> -------Original Message-------
>
> From: [log in to unmask]
> Date: 11/2/2009 12:05:25 AM
> To: [log in to unmask]
> Subject: Fwd: FW: Extraordinaire Instrument
>
> Non PD. This is really amazing....A friend described it as "your brain
on
> music"
>
> Turn your sound on for this. Read this first, then watch. This is
almost
> unbelievable. See how all of the balls wind up in catcher cones.
>
> This incredible machine was built as a collaborative effort between the
> Robert M. Trammell Music Conservatory and the Sharon Wick School of
> Engineering at the University of Iowa .. Amazingly, 97% of the machines
> components came from John Deere Industries and Irrigation Equipment of
> Bancroft , Iowa ..Yes, farm equipment!
>
> It took the team a combined 13,029 hours of set-up, alignment,
calibration,
> and tuning before filming this video but as you can see it was WELL worth
> the effort.
>
> It is now on display in the Matthew Gerhard Alumni Hall at the University
> and is already slated to be donated to the Smithsonian.
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:
> [log in to unmask]
> In the body of the message put: signoff parkinsn
>
> ____________________________________________________________
>
>
> No virus found in this incoming message.
> Checked by AVG - www.avg.com
> Version: 8.5.423 / Virus Database: 270.14.44/2475 - Release Date:
11/01/09
> 19:39:00
>
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:
> [log in to unmask]
> In the body of the message put: signoff parkinsn
>

----------------------------------------------------------------------
To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
In the body of the message put: signoff parkinsn

------------------------------

Date: Mon, 2 Nov 2009 01:10:04 -0800
From: Haroon Basheer Shaikh <[log in to unmask]>
Subject: Re: Newbie's introduction

Dear Jen,
Here is what is working for me
age 62 retired banker
diagnosed age 56
What has worked for me
Slide 22
nFighting depression
nPositive thinking/take charge
nGood doctors, professional medical assistance
nSpiritual help
nFamily and spouse support
nDesire to help others (Formation of Society)
nUnderstanding the condition
nMaking friends with PD, jokingly call it =91pinkypd=92
nNot losing hope


Best
Haroon Basheer
www.parkinsons.org.pk




On Sun, Nov 1, 2009 at 5:44 AM, Jennifer Gaudio <[log in to unmask]> wrote:

> Hello all,
>
>
>
> My name is Jen Gaudio. I'm 38 and was just diagnosed with YOPD on October
> 14th. I'm doing fairly well as I suspected it for a while and had time to
> prepare. I've been experiencing tremors, muscle weakness, spasms and
> rigidity in my left side since 2007. The diagnosis got confused as the
wo=
rst
> symptoms popped up after I had tendon repair surgery on both my legs. It
> seems tremors run in my family--seven have them all ranges of age--but I
 =
am
> the first to knowingly develop into pd. I'm working on participating in
s=
ome
> studies. I figure if I can help someone else down the line it may be
wort=
h
> it.
>
>
>
> I'm in the research and planning stages. I think that's where most of my
> freakout energy is going. I found out about this listserv from "When
> Parkinson's Strikes Early" and here I am. I'm most interested in how to
> maintain some normalcy while losing independence as it progresses (I'm
> single and likely staying that way) work and ADA issues (I'm a museum
> curator) and anything that may help slow progression and keep some level
=
of
> fitness (brfore the surgery I was a yoga and tai chi student and loved
> swimming).
>
>
>
> As a newbie I'm grateful that this listserv exists, thank you to all who
> developed and support this resource.
>
>
>
> Best,
>
> Jen
>
> _________________________________________________________________
> Hotmail: Trusted email with Microsoft's powerful SPAM protection.
> http://clk.atdmt.com/GBL/go/177141664/direct/01/
> http://clk.atdmt.com/GBL/go/177141664/direct/01/
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:
> [log in to unmask]
> In the body of the message put: signoff parkinsn
>

----------------------------------------------------------------------
To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
In the body of the message put: signoff parkinsn

------------------------------

Date: Mon, 2 Nov 2009 01:16:23 -0800
From: Haroon Basheer Shaikh <[log in to unmask]>
Subject: Re: Newbie's introduction

my life with PD


Slide 27
*Dance as if no one were watching,
**sing as if no one were listening,
**and live everyday as if it were to **be your last.=94 *


Best
Haroon Basheer




On Sun, Nov 1, 2009 at 5:44 AM, Jennifer Gaudio <[log in to unmask]> wrote:

> Hello all,
>
>
>
> My name is Jen Gaudio. I'm 38 and was just diagnosed with YOPD on October
> 14th. I'm doing fairly well as I suspected it for a while and had time to
> prepare. I've been experiencing tremors, muscle weakness, spasms and
> rigidity in my left side since 2007. The diagnosis got confused as the
wo=
rst
> symptoms popped up after I had tendon repair surgery on both my legs. It
> seems tremors run in my family--seven have them all ranges of age--but I
 =
am
> the first to knowingly develop into pd. I'm working on participating in
s=
ome
> studies. I figure if I can help someone else down the line it may be
wort=
h
> it.
>
>
>
> I'm in the research and planning stages. I think that's where most of my
> freakout energy is going. I found out about this listserv from "When
> Parkinson's Strikes Early" and here I am. I'm most interested in how to
> maintain some normalcy while losing independence as it progresses (I'm
> single and likely staying that way) work and ADA issues (I'm a museum
> curator) and anything that may help slow progression and keep some level
=
of
> fitness (brfore the surgery I was a yoga and tai chi student and loved
> swimming).
>
>
>
> As a newbie I'm grateful that this listserv exists, thank you to all who
> developed and support this resource.
>
>
>
> Best,
>
> Jen
>
> _________________________________________________________________
> Hotmail: Trusted email with Microsoft's powerful SPAM protection.
> http://clk.atdmt.com/GBL/go/177141664/direct/01/
> http://clk.atdmt.com/GBL/go/177141664/direct/01/
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:
> [log in to unmask]
> In the body of the message put: signoff parkinsn
>

----------------------------------------------------------------------
To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
In the body of the message put: signoff parkinsn

------------------------------

End of PARKINSN Digest - 1 Nov 2009 to 2 Nov 2009 (#2009-375)
*************************************************************



----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn