I agree totally.

Rayilyn Brown
Director AZNPF
Arizona Chapter National Parkinson Foundation
[log in to unmask]

--------------------------------------------------
From: "chew nee kong" <[log in to unmask]>
Sent: Thursday, October 29, 2009 9:59 PM
To: <[log in to unmask]>
Subject: Re: Exercise & PD

> Dear Ray
>
> Just like other treatments of PD (e.g. medications), the benefit of 
> exercise in PD is difficult to prove. On the other hand, there is no 
> evidence that exercise does not help in Parkinson's.
>
> For a progressive illness such as PD, absence of improvement does not 
> necessarily mean that the treatment (e.g. exercise) is not effective. The 
> very fact that the condition has stabilized or the deterioration is slower 
> is already suggestive of a positive benefit of a treatment.
>
> Yes, the cure for PD will not arrive so soon. You have the right 
> attitude - while you are still alive, you make the best of whatever you 
> have in life. And all of us should do our best to make life better for 
> others who suffer from PD.
>
> All of us should remain hopeful - it doesn't hurt to keep this hope alive.
>
> Dr Chew
>
>> Date: Wed, 28 Oct 2009 23:24:21 -0700
>> From: [log in to unmask]
>> Subject: Re: Exercise & PD
>> To: [log in to unmask]
>>
>> John
>>
>> I think you are just being realistic, I don't think there will be a 
>> "cure"
>> in my lifetime either, but we need to push for it.  It gives me something 
>> to
>> do while I wait to die.   Since I don't  know when that will be, I want 
>> to
>> do all I can to help myself.  You've perhaps heard the saying "if I had
>> known I was going to live this long I would have taken better care of
>> myself".  Since I can barely walk I don't  think I will be competing in 
>> any
>> sports events, but will keep on pedaling, just because it can't hurt. 
>> DBS
>> in 2003 has controlled my tremors.
>>
>> Ray
>>
>> Rayilyn Brown
>> Director AZNPF
>> Arizona Chapter National Parkinson Foundation
>> [log in to unmask]
>>
>> --------------------------------------------------
>> From: "john thomas" <[log in to unmask]>
>> Sent: Wednesday, October 28, 2009 12:51 PM
>> To: <[log in to unmask]>
>> Subject: Re: Exercise & PD
>>
>> > Personally I don't think there will be a "cure" in my lifetime.
>> > I have had the dbs surgery and am "cured" of major symptoms. I need to
>> > work
>> > o n my speech, my balance and my bike riding. In fact I wish I could 
>> > ride
>> > for 3-4 hours per day then I could enter the Hawaii iron man team's 
>> > event
>> > The simple fact is this is a disease of unknown etiology. As a 
>> > consequence
>> > it gets umbrella diagnosis.
>> > Until the origins are truly y found which is most probably a genetic
>> > breakdown rather than a genetic hereditary trait, there will be no" 
>> > cure
>> > ".
>> > Not to say the origins of the disease won't be found when the human 
>> > genome
>> > project finally makes sense, just that the cure may be worse the 
>> > disease.
>> > I don't wish to be so negative on this but when everyone begins to
>> > realizes
>> > that the symptoms  relief is th  best we have at the moment  from
>> > degenerative process then he better weal will be roach  this  dieses 
>> > with
>> > the focus on quality of life rather than a simplistic notion of disease
>> > therefore cure  approach.
>> > So I would say to you keep up the good work and plan on the Hawaii 
>> > ironman
>> > event.
>> > John Thomas
>> > BAPS MEDICAL RADIATION
>> >
>> > -----Original Message-----
>> > From: Parkinson's Information Exchange Network
>> > [mailto:[log in to unmask]] On Behalf Of rayilynlee
>> > Sent: Tuesday, October 27, 2009 7:04 PM
>> > To: [log in to unmask]
>> > Subject: Exercise & PD
>> >
>> > I've gotten my forced exercise of cycling up to 3 and 4 hours a day 
>> > with
>> > no
>> > improvement in symptoms after 3 months; however I've managed to lose 
>> > about
>> > 5
>> > lbs.  This University of Pittsburg study claims great promise for 
>> > exercise
>> > as PD treatment.  I'm kinda hooked on it as I can watch TV and do it.
>> >
>> > What think you Dr. Chu?
>> >
>> > Ray
>> > http://www.barchester.com/Healthcare-News/New-Parkinson's-breakthrough-is-%2
>> > 2tantalising%22/376/3062
>> >
>> >
>> >
>> > Rayilyn Brown
>> > Director AZNPF
>> > Arizona Chapter National Parkinson Foundation
>> > [log in to unmask]
>> >
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