The mail was about goals and whether an organisation has lost focus.

Quoting rayilynlee <[log in to unmask]>:

> Sophie
> 
> the PD organization was celebrating the fact they had been in existence 40 
> years.  people know we are far from a cure so were asking what's to 
> celebrate?  we want a world where these groups don't exist.
> 
> Ray
> Rayilyn Brown
> Past Director AZNPF
> Arizona Chapter National Parkinson Foundation
> 
> 
> --------------------------------------------------
> From: "Sophie Macleod-Whitehouse" <[log in to unmask]>
> Sent: Wednesday, January 27, 2010 5:21 AM
> To: <[log in to unmask]>
> Subject: Re: Celebrating what ? failure?
> 
> > WHAT IS THIS EMAIL ABOUT ? I KNOW ITS A BOUT PARKINSONS DISEASE BUT WHAT 
> > IS ABOUT CELEBRATING/FAILURES CAN SOME ONE EXPLANE PLEASE ?
> >
> >> Date: Tue, 26 Jan 2010 18:14:43 -0700
> >> From: [log in to unmask]
> >> Subject: Re: Celebrating what ? failure?
> >> To: [log in to unmask]
> >>
> >> Good for you, Amanda! We all need to start pushing (and a little yelling
> >> doesn't hurt either)....not just the English PD Society but to everyone 
> >> who
> >> just shrugs us off. We have to be squeaky wheels.
> >>
> >> Sami
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >> -------Original Message-------
> >>
> >>
> >>
> >> From: [log in to unmask]
> >>
> >> Date: 1/25/2010 3:10:36 AM
> >>
> >> To: [log in to unmask]
> >>
> >> Subject: Re: Celebrating what ? failure?
> >>
> >>
> >>
> >> Oh, I'm a supporter, but more an impatient than a patient;
> >>
> >> all being patient has ever got me is a lot of waiting (& sometimes 
> >> ignored).
> >>
> >> My New Year resolution was to start pushing.
> >>
> >> Amands
> >>
> >>
> >>
> >> Quoting Sean C McMurray <[log in to unmask]>:
> >>
> >>
> >>
> >> > I like to try and keep things positive. I suspect this organization is
> >>
> >> > trying to do this as well.
> >>
> >> >
> >>
> >> > Good for them that they have been working for this cause that is so 
> >> > close
> >> to
> >>
> >> > "our hearts" for the past 40 years. Has a cure been found in those 40
> >> years
> >>
> >> > ... No. But is it not possible that some of the research funding we are
> >>
> >> > taking advantage of today may in part or in whole be the result if the
> >>
> >> > promotion, issue awareness and networking of this organization in 
> >> > concert
> >>
> >> > with other similar groups some perhaps older and others of only recent
> >>
> >> > establishment. We are closer to a cure now than we have ever been 
> >> > before
> >>
> >> > this is good and worth dwelling upon and celebrating.
> >>
> >> >
> >>
> >> > No cure yet ... THERE WILL BE! Be patient and rather support others 
> >> > with
> >> PD
> >>
> >> > and the organizations that work for us in their various capacities.
> >>
> >> >
> >>
> >> > So yes I would celebrate this 40th anniversary of this English PD 
> >> > Society
> >>
> >> >
> >>
> >> > Respectfully
> >>
> >> >
> >>
> >> > Sean
> >>
> >> > Peterborough, Ontario, Canada
> >>
> >> >
> >>
> >> >
> >>
> >> >
> >>
> >> >
> >>
> >> > -----Original Message-----
> >>
> >> > From: Parkinson's Information Exchange Network
> >>
> >> > [mailto:[log in to unmask]] On Behalf Of 
> >> > [log in to unmask]
> >>
> >> > Sent: January 23, 2010 7:31 PM
> >>
> >> > To: [log in to unmask]
> >>
> >> > Subject: Celebrating what ? failure?
> >>
> >> >
> >>
> >> > I just sent the email text below to the English Parkinsons disease 
> >> > society
> >> -
> >>
> >> >
> >>
> >> > wonder if some people are too comfy with current conditions -
> >>
> >> >
> >>
> >> > As one of your members, I'm puzzled and irritated by the frequent
> >> references
> >>
> >> >
> >>
> >> > in your literature to "celebrating" the 40 th anniversaryof your
> >>
> >> > organisation. Have you thought that that means celebrating 40 years of
> >>
> >> > failure to find a cure. I hope no subscription money went on parties.
> >>
> >> >
> >>
> >> > amanda
> >>
> >> >
> >>
> >> >
> >>
> >> >
> >>
> >> >
> >>
> >> > ----------------------------------------------
> >>
> >> > This mail sent through http://www.ukonline.net
> >>
> >> >
> >>
> >> > ----------------------------------------------------------------------
> >>
> >> > To sign-off Parkinsn send a message to: 
> >> > mailto:[log in to unmask]
> >> ca
> >>
> >> > In the body of the message put: signoff parkinsn
> >>
> >> >
> >>
> >> > ----------------------------------------------------------------------
> >>
> >> > To sign-off Parkinsn send a message to: 
> >> > mailto:[log in to unmask]
> >> ca
> >>
> >> > In the body of the message put: signoff parkinsn
> >>
> >> >
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >> ----------------------------------------------
> >>
> >> This mail sent through http://www.ukonline.net
> >>
> >>
> >>
> >> ----------------------------------------------------------------------
> >>
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> >> mailto:[log in to unmask]
> >>
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> >>
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> >
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----------------------------------------------
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