Why not a wheelchair  with pedals ?
Lots of people, who can use their legs but find walking a struggle (like me)
would find that handy.
anybody know of such a thing?

Quoting Rayilyn Brown <[log in to unmask]>:

> yes, I know, although they cannot tell exactly there is a formula they can 
> use.  I'm confident my new neuro can handle  it, unlike my old one.
> 
> my "bike" just has motorized pedals.   I pull up to it in my wheelchair and 
> watch TV while it helps  me pedal.
> 
> --------------------------------------------------
> From: "Marti Coleman" <[log in to unmask]>
> Sent: Sunday, October 17, 2010 4:44 PM
> To: <[log in to unmask]>
> Subject: Re: New member
> 
> > Your neurologist/DBS person should be able to see how much battery you 
> > have left
> > at any given time so that you are not put in a position where the battery 
> > dies
> > and you are without stimulation.  The battery gets used up depending upon 
> > how
> > high your voltage is, and they can measure that.
> >
> >
> > By the way, I assume when you say "forced cycling" that you mean 
> > stationary
> > biking?
> >
> >
> >
> >
> >
> > ________________________________
> > From: Rayilyn Brown <[log in to unmask]>
> > To: [log in to unmask]
> > Sent: Sat, October 16, 2010 8:09:48 AM
> > Subject: Re: New member
> >
> > It is the batteries that die; the neurostimulators are in my brain; sorry,
> 
> > I
> > have to get new batteries every 3  years now.  This whole treatment is so 
> > hard
> > to explain to people I've gotten mixed up on what I call stuff.
> >
> > I do forced cycling for 2 hours a day and after a year and a half have 
> > lost
> > about 12 lbs.
> >
> > --------------------------------------------------
> > From: "Marti Coleman" <[log in to unmask]>
> > Sent: Friday, October 15, 2010 6:46 AM
> > To: <[log in to unmask]>
> > Subject: Re: New member
> >
> >> I take the regular C/L now, although I've tried all of them at one time 
> >> or
> >> another.  I get nauseous, too, but I don't see any alternative.  Thanks 
> >> for
> > the
> >> tip about ginger ale--I've tried that before, but maybe I'll try it 
> >> again. I'm
> >> sorry you have had trouble with your DBS-what makes the stimulators stop
> >> working?  I thought the battery rook care of that.  You are not alone--we
> 
> >> have
> >>a
> >> small support group in Bloomington, IN, and there is one other person 
> >> besides
> >> myself who has had DBS, and he is not doing well at all.  I hope the
> >> reprogramming helps you.  It just goes to show how very individualized 
> >> this
> >> disease is.  I wish my meds would help ME lose weight!!
> >>
> >>
> >>
> >>
> >> ________________________________
> >> From: Rayilyn Brown <[log in to unmask]>
> >> To: [log in to unmask]
> >> Sent: Thu, October 14, 2010 9:52:07 PM
> >> Subject: Re: New member
> >>
> >> Hi  Marti
> >>
> >> I  had 2 DBS in 2003 (one was redo of one side) at age 67. I've had the
> >> stimulators replaced twice now.  I never took PD  meds much as they 
> >> didn't
> > seem
> >> to help, but when I "crashed" when  my stimulators died in August
> >> carbidopa/levadopa enabled me to move a little.  My new neuro gave me CR
> >> carbi/leva but I 'm waiting to try it again after I stabilize after some
> >> reprogramming.  Do you take the regular  C/L or do you have the 
> >> controlled
> >> release kind?  it gives me slight nausea but  helps me lose weight.  my 
> >> neuro
> >> said to drink ginger ale.
> >>
> >> Although I can barely speak, at least I can move and don't tremor.  I'm a
> 
> >> big
> >> DBS booster but I guess some PWPs have not had good results.
> >>
> >> --------------------------------------------------
> >> From: "Marti Coleman" <[log in to unmask]>
> >> Sent: Wednesday, October 13, 2010 4:35 PM
> >> To: <[log in to unmask]>
> >> Subject: New member
> >>
> >>> Hi all!!  I was a member of this group several years ago but let my
> > membership
> >>> lapse because I didn't have time to read all the input.  Now I'm 
> >>> semi-retired
> >>> and think maybe I can keep up with it.
> >>>
> >>>
> >>> I am a 61 year old female, and this is my 24th year with Parkinson's. 
> >>> Two and
> >>> a
> >>> half years ago, I had the deep brain stimulation operation on both sides
> 
> >>> of
> > my
> >>> brain.  I still take carbidopa/levadopa 10 /100 and Amantadine, but I 
> >>> quit
> >>> everything else cold turkey because the meds were making me feel sick 
> >>> all the
> >>> time.  I've tried just about everything in the arsenal of meds during my
> 
> >>> 24
> >>> years with PD, but for now this combination seems to be adequate.  I 
> >>> would
> >>> encourage anyone who is interested to look into DBS seriously, as it has
> >>> definitely proven helpful to me.
> >>>
> >>>
> >>> I would welcome any questions about the operation, or anything else for 
> >>> that
> >>> matter.
> >>>
> >>> Thanks for listening.
> >>>
> >>> Marti Coleman
> >>> Bloomington, Indiana
> >>>
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