Dirk could you expand on "a host of other remedies?" I am a big fan of non traditional ways of healing, but quite many ingestibles can be contraindicated with sinemet. I'd be happy to do some research, I'm also friendly with a young movement disorder specialist who is willing to think outside the western medical parameters. Meg

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On Jan 3, 2011, at 3:33 PM, Dirk Kukler <[log in to unmask]> wrote:

> Last weekend I sent a letter to this esteemd group with a request for
> feedback. I got one reply for which I am very thankful.
> In the meantime I updated her list of symptoms. Please, you regular
> contributors and others, tell me if you heard or experienced similar.
> We are in Puerto Vallarta for the winter and will not meet Veronika's
> neurologist until April and this uncertainty about her progress is 'killing'
> me. Thank you. Dirk
> 
> Here is my updated letter again:
> 
> 
> 
> 
> After my wife's (69) diagnosis with PD 2 1/2 years ago I noticed  over time
> dramatic changes in her symptoms and would like to know if this is
> considered normal.
> 
> 2 years ago she:
> 
> 1. had a very hard time climbing in and out of bed
> 2. her arms were stiff when walking
> 3. her handwriting became smaller and smaller
> 4. her upper lip would curl up
> 5. getting up from a chair or sofa took up to five tries
> 6. her right foot lower leg would shake a lot
> 7.complained about brain fog
> 8. ringing in the ear stopped (99% of the time, don't know if it has
> anything to do with Parkinson's)
> 9.couldn't do phone conversations w. her kids or friends for more than
> 3-5min
> 10. abt. 8 months ago, when walking, her upper body would tilt slightly to
> the left
> 11. if she got (negatively!) exited about something, her left hand would
> shake very fast  abt. 10" and she would stop it with her other hand
> 
> All these symptoms have more or less reversed back to normal. However now
> she suffers:
> 
> 1. weightloss, down from 108lbs to 82lbs
> 2. moving toes, particularly at night before going to bed , moving up and
> down, while her feet try to roll left to right
> 3.breathing troubles, similar to Asthma, mostly at night
> 4. early mornings we take a walk, up to an hour and she walks fairly fast
> without any help. Then - like a deflated  balloon - she looses power and she
> can't walk
>  straight any more. But if I ask her to jog, while I walk beside her, she
> can do so for abt. 100m or so slow but very straight without loosing any
> balance.....???
> She stays more or less  like that for the rest of the day. Her brain
> capacity is diminished somewhat and she can't multitask.
> 
> She takes 1 1/2  Sinemet 3x a day and a host of other remedies outside trad.
> western medicine. I was always under the impression that PD symptoms get,
> over time,  gradually worse and don't disappear. Anyone with similar
> experiences? Thank you.
> 
> Happy New Year and hoping, that a remedy for PD is just around the corner.
> 
> Dirk
> 
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