I read your book a few months ago.  I had a successful DBS  in  
February 2009 and am doing great.
Pam Robillard


On Mar 23, 2011, at 9:08 AM, Jackie Christensen wrote:

> At the risk of sounding self-serving, I am going to recommend my  
> book, "Life
> with a Battery-Operated Brain: A Patient's Guide to Deep Brain  
> Stimulation
> for Parkinson's Disease." It follows my journey from evaluation to  
> living
> with the device years after surgery. I surveyed 55 others who'd had  
> DBS so
> it includes info from their experiences too. I wrote it because  
> there isn't
> much written from a patient's perspective FOR patients. Anyway,  
> I've gotten
> a lot of good feedback that it's been helpful. YOu can probably  
> find it at
> your library to see if it would be helpful. If you want to buy it,  
> you can
> get it on Amazon or at www.lifewithbobbook.com. Your situation  
> sounds very
> similar to mine. DBS has been a godsend for me but is definitely  
> not for
> everyone. It also is NOT a cure and doesn't halt progression of the  
> disease.
> Another great resource is www.dbs-stn.org, a website run by The  
> Parkinson
> Alliance.
>
>  call me if you'd like: 612-325-0372.
>
> Best wishes,
>
> Jackie Hunt Christensen
>
> On Tue, Mar 22, 2011 at 12:40 PM, <[log in to unmask]> wrote:
>
>> I am writing for some advise and support. I am 58 and have been  
>> diagnosed
>> for 10 years. I was taking sinemet 4x day 25/250 and comtan 200 mg  
>> 4x. My
>> doctor recently changed me to stalevo 200mg. 5x per day.  My  
>> dyskiniseas on
>> all the medications are getting bad and my on time is getting less  
>> and less.
>>  If lucky I might get 2 hours of on time between each dose.  When  
>> tired or
>> under stress sometimes the medicine doesn't even work.  My doctor is
>> recommending DBS but I don't know what to do.  I live on Long  
>> island outside
>> of Manhattan.  My question is, has anyone had the surgery and did  
>> it help?
>>  What is everyone's experience with the surgery?   I     plan on  
>> getting a
>> second opinion can anyone recommend someone in this area?  My  
>> movement
>> disorder doctor and the surgeon are associated with North Shore  
>> University
>> Hospital.  By the way, I am still working as a teacher but think I  
>> will have
>> to give it up shortly.
>>
>> Janet
>>
>> --------------------------------------------------------------------- 
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>
>
>
> -- 
> Jackie Hunt Christensen
> Parkinson's disease and environmental health activist and author
>
> cell phone: 612-325-0372
> e-mail: [log in to unmask]
>
>
>
> "What shall we choose? Violence or non violence? …We have to choose  
> knowing
> that when we are violent to our enemies, we do violence to  
> ourselves. When
> we brutalize others, we brutalize ourselves. And eventually we run  
> the risk
> of becoming our oppressors.
> -- Arundhati Roy
>
>
>
> “To answer brutality with brutality is to admit one's moral and  
> intellectual
> bankruptcy.”
>
> - - Gandhi
>
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