Michele

I have had Parkinson's for 22 years and I can appreciate what you are  
going thru.  It is not a fun disease.  I found out that exercise was  
the best way to handle it and it was before exercise was promoted for  
PD patients.  My friends  used to say I didn't look like I was sick  
but I used to freeze a lot.  I was a real estate broker until I had  
to stop that position and moved back to New York to be close to  
family.  I suggest that you find a support group to  help you through  
this nightmare.  Also check the Internet for the hundreds of sites on  
PD.  I was on Stavelo 6 times a day and then I had DBS surgery and  
now I  take a minimum dosage of Sinemet.  The surgery was a miracle  
for me.  Not everyone is a candidate for it and some times it doesn't  
work, but if your neuro suggests in somewhere down the road, I would  
go for it.

Pam


On Jul 14, 2011, at 12:33 AM, beebabyangels wrote:

> Hello. I hope I am doing this correctly or I even get responses. :)
>
> My name is Michele and I am 35 years-old, mother and wife from  
> Montana. I just got from my trip to University of Utah Hospital to  
> see my new movement disorders specialist. The words from them  
> (after 3 trips to my local neurologist and needed help with a  
> diagnosis of a possible young-onset parkinson's) was this was not  
> the death sentence etc. etc. but won't right down the actual word  
> parkinson's for a year due to getting long term insurance later on.  
> Never heard that before but ok... They are starting me on new  
> medication (I was on Azilect but insurance won't cover it so had to  
> stop) and have a plan for medications if need added, etc. They will  
> be working one-on-one with my local neuro and will see her at least  
> every 3 months and go back to Salt Lake every year - unless needed  
> sooner. I also have direct email contact with them - which I love  
> since I don't have the best luck contacting my local neuro.
>
> All this is very scary for me and my family. So, here I am  
> searching out support. Already afraid to be seen in public and  
> trying to be strong!!
>
> Michele
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:  
> mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn