Thank you again for very pertinent articles.  It is so encouraging to gain 
more understanding.  I find I really need to have a strong sense of what is 
right for me so that I don't get confused by different takes on my issues 
from the health profession.  I live in Alaska about 150 miles from Anchorage 
so we have far more generalists than specialists.
----- Original Message ----- 
From: "Rayilyn Brown" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, October 05, 2012 10:37 AM
Subject: Re: back, neck and leg pain


> thank you, Linda, for making my day with your kind comments.  Your support
> gives me the strength  to carry on.
>
> Ray
>
> -----Original Message----- 
> From: Linda
> Sent: Friday, October 05, 2012 12:18 AM
> To: [log in to unmask]
> Subject: Re: back, neck and leg pain
>
> Thanks for your input, Ray.  And many, many thanks for the articles you
> post.  You are the best source of information on this disease I have found
> anywhere.  So glad I found you and this list!      Linda
> ----- Original Message ----- 
> From: "Rayilyn Brown" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Thursday, October 04, 2012 10:22 PM
> Subject: Re: back, neck and leg pain
>
>
>> Linda
>>
>> I have had PD 16 years and can't remember when my pain started, but it 
>> has
>> gotten  bad this  last year.  My right hip area hurts when I walk 
>> probably
>> because my left leg is drawn up and I'm on my left toes.   When I sit or
>> don't  move I'm OK, so I'm convinced it is PD; also it varies,  I never
>> know just what it will be like.  I get leg pain when I move in bed.
>>
>> In my opinion, I think you are wise to be wary of invasive procedures. 
>> It
>> sounds like you have a number of things going on at once.
>>
>> I think I'm learning what it is  like to turn to stone.
>>
>> Ray
>>
>> -----Original Message----- 
>> From: Linda
>> Sent: Thursday, October 04, 2012 3:09 PM
>> To: [log in to unmask]
>> Subject: back, neck and leg pain
>>
>> I would appreciate some input from other people with Parkinson's in 
>> regard
>> to the issue of pain. I have been told that I have degenerative disk
>> disease with a narrowing of the spinal column in the lumbar area. I was
>> also told that my left knee was bone on bone in 2006 and would need a
>> replacement sometime in the future. I was diagnosed with fibromyalgia in
>> 1997's and diagnosed with Parkinson's disease in May of 2010.
>>
>> It seems like there are so many factors that I am very hesitant to do or
>> have done any invasive measures such as knee replacement or back surgery
>> because I feel like it will not resolve enough of the pain issues to be
>> worth the risk and the attempted rehabilitation. The neurologist I have
>> just been seeing recently made the statement that the pain would not be
>> from Parkinson's. I'm not sure if she thinks that pain is not a part of
>> the disease or that she feels that the pain I described wouldn't be from
>> the disease. My current back pain appeared to become acute after swimming
>> a few days in a row. It felt very good in the water to twist and turn my
>> body but after that, movement became more difficult than my pain level
>> increased radically.
>>
>> It was very helpful to be on this list and receive the information about
>> briefings through the Parkinson's organization. I was able to get the
>> briefing on Parkinson's and pain and found that most informative. I plan
>> to be reviewing many of those articles. The recent stem cell article was
>> also very interesting.
>>
>> I would appreciate any input from others as to their experiences and
>> thoughts on the little bit of information that I have given here.
>>
>> Thanks, Linda
>>
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