Good luck, Margaret! Hope the condom catheter works for him.

Kathleen

On 21 June 2013 12:20, <[log in to unmask]> wrote:

> YOU ARE SO RIGHT!!!!! WE REACHED THE SAME CONCLUSIONS AS YOU  DID AND WE
> ARE
>  GOING TO GIVE THE CONDOM CATHATHER---A TRY.  PARKINSON, OF  COURSE IS THE
> REAL PROBLEM--HE IS SO SLOW AND CANNOT REACH HIS URINAL FAST
> ENOUGH----ANYMORE.
>
>
> In a message dated 6/20/2013 11:00:19 P.M. Pacific Daylight Time,
> [log in to unmask] writes:
>
> Hi  Margaret,
>
> I'm not a health care professional, but for what it's worth,  here is my
> response to your situation.
>
> Have diapers actually caused  sores, or is this something the cg thinks
> MIGHT happen? If the latter, then  why not give it a try?
>
> And what's the problem with the external  catheter? Infection? Is that also
> a MIGHT happen issue that could be  avoided with care and vigilance?
>
> Sounds like the doctors and the cr are  saying "no" but offering no
> solutions.
>
> In the meantime, it's you and  your husband struggling with wet clothing
> and
> bedding, and losing healing,  restorative sleep. There are health
> consequences of sleep deprivation—no  maybe about it.
>
> Can you tell them loud and clear that you need help. If  they won't address
> your needs, find doctors and a cg who will work with  you. If you have
> other
> family members who can help you navigate this  situation, enlist their aid.
>
> It is so important that you take care of  yourself.
>
> Best wishes,
>
> Kathleen
>
>
>
>
> On 19 June  2013 15:07, <[log in to unmask]> wrote:
>
> > DEAR RAY,
> >  WHAT DO OTHER PARKINSON MEN AND WOMEN DO ABOUT THE URINE   INCONTENANCE
> > PROBLEM DURING THE NIGHT HOURS, IN PARTICULAR---TWO  DOCTORS  HAVE SAID
> > "NO" TO
> > THE EXTERNAL CATATHER AND  ANOTHER DOCTOR AND CAREGIVER  HAS SAID "NO" TO
> > DIAPERS, DUE TO  PRESSURE SORES,  AT NIGHT????
> >
> > I KNOW HE DOES NOT HAVE A  BLADDER INFECTION OR KIDNEY  PROBLEM--I KNOW
> > -IT'S PARKINSON AND  JUST BEING TOO SLOW TO GET UP TO GET  TO HIS CHAIR
> SIDE
> > URINAL OR  THE BATHROOM, AT NIGHT  WHEN HIS  BRAIN WAKES HIM UP AND
>  TELLS
> > HIM HE
> > NEEDS TO URINATE-----BUT IF THE DOCTORS  ARE  SAYING "NO" TO EITHER THE
> > EXTERNAL CATATHER OR THE  DIAPERS---------WHAT ELSE  IS THERE TO DO?
>  WHAT
> > DO  YOU
> > HEAR FROM THE  OTHER PARKINSON PAITENTS  THAT HAVE THIS  EVIDENTLY
> > FAIRLY--COMMON PROBLEM WITH LATE TERM   PARKINSON?
> >
> > THANKS,
> > MARGARET
> >
> >
> > In  a message dated 6/18/2013 11:00:09 P.M. Pacific Daylight Time,
> >  [log in to unmask] writes:
> >
> >
> >
>
> http://www.popsci.com/science/article/2013-06/artificial-sweetener-could-hel
> >  p-treat-parkinsons-disease
> > Ray
> > Rayilyn  Brown
> >  Past Director AZNPF
> > Arizona Chapter National Parkinson   Foundation
> >
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