BRAVO
Tony

> On Jul 30, 2016, at 2:16 AM, Rayilyn Brown <[log in to unmask]> wrote:
> 
> -----Original Message----- From: Nick Sent: Friday, July 29, 2016 10:00 PM To: Rayilyn Brown Subject: Re: MJFF Subterfuge 
> Ray.
> 
> Post the following:
> 
> I posted the below on the MJFF website after I read the bs he posted,
> curtesy of the web address you posted on PARKINSN:
> https://www.michaeljfox.org/foundation/news-detail.php?nilotinib-update-
> where-we-stand-with-cancer-drug-for-parkinson&et_cid=624998
> &et_rid=61638552&et_lid=Read+Moreem_cid=
> 
> MJFF you are a phony, big time, and so is your CEO. Your bs about
> finding out if nilotinib is harmful to parkies. What, parkies are different
> humans than the cancer patients who have been taking nilotinib for
> 9 years now? Plus Drs. Moussa and  Pagan already ran a phase 1 trial
> with outstanding success.
> 
> Guess what, Michael, some of those cancer patients are parkies, and
> the nilotinib is helping their Parkinson's disease.
> 
> DO YOUR HOMEWORK, AND STOP FEEDING US BS!!
> 
> Why are you, VARI, and CPT planning for a phase 2 next year, when
> Georgetown Medical, Drs. Moussa and  Pagan, already have FDA
> approval for a phase 2 study. Why are you duplicating their effort,
> and delaying phase 2 by at least 6 months?
> 
> I smell $money$, Michael. You are continuing parkies pain just so
> you can line your pocket!
> 
> Shame on you, Michael.  SHAME ON YOU!
> 
> Nick
> 
> 
> 
> 
> Rayilyn Brown wrote:
>> Nick
>> 
>> As a retired teacher I get  my  pension and medical benefits courtesy of Los Angeles  City  Schools.  Last Jan 2016  they changed my drugs from Medicare/CVS to Medicare/SilverScript I think because I earned Medicare myself.    I went through a big ordeal to find out  how much Tasigna would cost me, forgot what it was  because it was under  $60 for a 3 month supply of 150 mg.  I still get Rx mailed to   me from  CVS  but SilverScript is my insurance carrier through   Medicare.  I don't understand all this but it has something to do with  LA City Schools and the fact that unlike most other retirees I earned  my Medicare before and after teaching.  While teaching I paid into LAUSD pension plan, no SS.
>> 
>> 1-844-819-3075, available 24-7 is  number for SilverScript. It has a Medicare contract, enrollment depends on contract renewal.
>> 
>> I don't think my neuro will write prescription for  Tasigna, but I can ask.
>> 
>> do  u  want  me to post what I've put quotations around  around below?  Let me know what u want posted
>> 
>> -----Original Message----- From: Nick
>> Sent: Friday, July 29, 2016 6:17 PM
>> To: Rayilyn Brown
>> Subject: Re: MJFF Subterfuge
>> 
>> Hi Ray,
>> 
>> I can't post on PIEN, as they refuse my post, saying that I'm using the
>> wrong text format.  Liars.
>> 
>> Please post for me.
>> 
>> "Fox doing it because of $$$ they will lose when Tasigna proves out in
>> phase 2.  They are delaying their phase 2 for this reason.  Dr. Pagan's
>> phase 2 is FDA approved and ready to go. But he needs more funds. Fox
>> won't join with him because of donation $$$ they will lose when Tasigna
>> proves out.
>> 
>> Ray, get a prescription and start taking Tasigna. My wife has been
>> taking 100mg/day for 3+ months now, and it has reduced her gait problems
>> by at least 50%. And she falls much, much less. I started her off at
>> 50mg/day to see if she could even tolerate Tasigna.  Then upped it to
>> 75mg/day for 10 days. No problems at all.  Then upped it to 100mg/day. I
>> plan to up it to 125mg/day next week.  I'm going slow so that she will
>> easily be acclimated to the increases. Her primarycare doc is monitoring
>> this process, and she is consulting with an oncologist friend.  The
>> oncologist said her leukemia patients have had no problems with Tasigna,
>> at the 600mg/day dosage level.
>> 
>> Viartis only makes 150 and 200mg sizes, so I split the capsules up,
>> powder inside, using an electronic scale I bought at Amazon. It's a bit
>> of a pain, but easily done now that I have several months doing it. If
>> my wife transitions to 150mg, I won't have to split capsules anymore.
>> The people in Dr. Pagan's phase 1 study must have started with 150mg
>> capsules. Again, Viartis only makes 150 and 200mg caps."
>> 
>> Can you tell me more about your insurance SilverScript?  I'm having to
>> go to Tijuana to buy Tasigna, $23/capsule.
>> 
>> Nick
>> 
>> Rayilyn Brown wrote:
>>> Hi Nick    are u going to post this on PIEN?
>>> 
>>> How discouraging!!   I even found out that  my insurance  SilverScript would pay for   Tasigna with out   costing  me and arm and a leg.
>>> after 20+  years I am getting so bad I need something soon.
>>> 
>>> why would Fox do this to us?
>>> 
>>> I survived ovarian cancer and the CA drugs have bad side effects, but so do approved PD drugs.  all drugs have side effects 4 some  people
>>> 
>>> -----Original Message----- From: Nick
>>> Sent: Wednesday, July 27, 2016 10:39 PM
>>> To: [log in to unmask]
>>> Subject: MJFF Subterfuge
>>> 
>>> Hi Ray,
> 
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn