---------- Forwarded message ----------
Date: Tue, 6 Dec 1994 10:51:57 -0500 (EST)
From: Jayne Butler <[log in to unmask]>
To: Barbara Patterson <[log in to unmask]>
Cc: Tom Ferguson <[log in to unmask]>
Subject: Re: Researchers
 
Barbara,
        Thanks for the note. The issue raised is one that I am concerned
about. My own particular area of interest is as stated below. However, I
am also compiling summaries of the 25 best self-help mailing lists for a
doctor (Tom Ferguson) who lives in Texas. Tom is writing a book and has
asked me to include quotes from the list to give a flavour for typical
postings to the group. I will not include a posting from PARKINSN without
permission of the person who wrote the note. I do not have to include
PARKINSN in the 25 at all if that is the wish of the members of the list.
I certainly don't want to upset anyone. Frances raises a very important
issue and I hope I have clarified it.
 
        The whole area of ethics in research on the Internet is of growing
concern. I know of two Canadians researchers who are studying
this very area. If anyone would like to e-mail me their concerns rather
than clutter up the list with this topic I would be happy to hear about
it. Replies will help me understand the perspective of list members in an
area that I believe needs a lot of consideration. Replies will also help me
plan an ethical review for any future research I do related to my own
topic of interest. I will also forward a copy of this note to Tom.
        Thanks very much Barbara.
                Jayne
 
 
 
 On Tue, 6 Dec 1994, Barbara Patterson wrote:
 
> Frances:  No one is going to lift intimate stories without asking
> individual permission.  I have cc'd this message to Jayne so she is aware
> of your position.  What Jayne wants to know is 'how' a list like this
> works and if our type of list would be useful in other cases.  Barb
>
> On Mon, 5 Dec 1994, Frances Taira wrote:
>
> > 1. Invite researchers to post abstract and goals  and invite members
> > to respond by e-mail.
> > 2. If you allow writers to lurk  and lift intimate stories without
> > asking individual permission
> > ou could start bitter family
> > fights over what someone wrote about their Mom on the list. The
> > writer has your permission and a fun story--names changed. The
> > list member is cut out of the will.
> > article  was shown to  Mom  by someone who recognised the incident.
> > 3. I refuse permission for anyone to lift what I say here without
> > asking me.  Anybody can  lurk but giving a writer  blanket permission
> > to publish lurking info could cost you legal fees.
>
>
>
> ============================================================================
> Barbara Patterson                             [log in to unmask]
> HSC 2J22                                      905-525-9140, ext. 22403
>                       School of Nursing
> ============================================================================
>
>
>