Greetings!  Your case is much like ours.  With a change in neurologist and
style, my husband's "restless leg syndrome" is improved with a lowered dose
of sinemet CR, now down to 1.5 daily, with a corresponding increase in
Permax (Parlodel, bromocryptine, etc.).  This change has been very healthy
for him, in that he spends less of each day dealing with dynkinesia, etc.  I
realize these are not your problems, but the notion of reducing sinemet in
favor of bromocryptine may interest you.  Good luck.
 
k.
 
 
>Hello--this is being sent by Peter's wife/caregiver, Camilla.  We heard
>about this list at our local support group meeting Tuesday, and are glad
>to join, for ourselves and for the group (it seems noone else has e-mail
>access, so we'll pass things along, and relay queries from others in group)
>Peter was diagnosed (or rather, diagnosed himself)    five and a half years ago
>but of course suspects he "had it" many years earlier. He retired in 1978
>from his job as Head Humanities Librarian at Miami University here in Oxford
>OHIO (not Florida!) because of poor health. Camilla retired 10 years ago
>from a counseling job. Our two daughters and their families also live here,
>so that's a great comfort. At present, P's major problems are exhaustion
>constipation, and concern over cognitive loss. He has very little tremor and
>has never had dyskinesia. Currently he takes 4 Sinemet CR daily, and is a
>"slow-responder", according to his neurologist--can miss a pill with no
>immediate effects noticable. Over several days, he would get slower and more
>stooped, if he continued to miss doses. We walk outside in good weather (no pro
>blem with that) but his voice is weakening, and in combination with my own
>hearing loss, that IS a problem.  I am curious whether others out there have
>similar experience with medication--no one else in our group seems to.
>We'll be glad for any input, and will share info with our  support group
>also. Hope this brief "bio" is what you wanted. Thanks--
>Peter & Camilla Flintermann, Oxford,OH
>
>
 
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Mrs. Karin M. Beros, MSO                     [log in to unmask]
International and Area Studies               voice:  (510) 642-8542
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