Dear Simon;
I wonder if the service should not be offered on floppy's also for all
the people who do not have a CD rom drive. What do you think?? That
would also be less costly for a low volume initially.
Sincerely ,
Henry Guttentag ( [log in to unmask])
 
 
You wrote:
>
>Hi,
>
>Update on the CD ROM of PD information on the Internet.
>        - I've had enough people express an interest to make it worth
doing
>          more work on.
>        - I did an initial download of web pages, and there's about
5Mb of
>          stuff on the web so far.
>        - I have just mailed people running those web sites to ask
their
>          permission. If you run a PD related web site and haven't got
a mail
>          from me, it's either because:
>                - I mailed someone else on your team
>                - I don't know about your pages
>          Either way, it would be nice to hear from you! (copy of
letter I
>          sent out is below).
>        - Problems I haven't solved yet are:
>                - How people can order the CD (i.e. getting money to
me to pay)
>                - The cheapest way of doing it
>
>At the moment it looks like a CD will cost $35 of I can sell 20. But
there
>are thorny issues like risk, capital (I can't afford to fund this!),
taxes,
>P&P,  etc. This is proving to be an education in commerce!
>
>As well as the web sites, I would also like to include anything PD
related
>I can get my hands on. Some people have already volunteered stuff
>(thanks!), but if you have anything PD related in electronic form, I'd
>really like to hear from you. There will be plenty of space on the CD.
>
>I hope to include the archives of the PARKINSN list on the CD. As well
as
>providing them in their "raw" form, I'll try and run some of our
agents
>over them to sort the wheat from the chaff. Does anyone have any
objection
>to me including the PARKINSN archives on the CD?
>
>Oh yeah - I think "PD CD" sounds like a good name. Then as updates
arrive
>they can be "PD CD 2" etc. Comments?
>
>
>Thanks very much, and a Happy Christmas to you all,
>
>
>Simon
>
>
>
>PS - It would make everyone's (especially mine!) life easier if when
>creating web sites, authors could please please please on every page:
>        - include a pointer to the top page of their collection
>        - include a single identified person to be mailed to about the
site
>I realise it is hard work writing web sites, but at the moment I must
admit
>to feeling a little overwhelmed by the amount of material :-)
>
>
>------ begin note I sent to people running web sites -------
>
>>I would like to create a CD ROM of all the Parkinson's Disease
related
>>information on the Internet. I have done an initial trawl of web
sites and am
>>now trying to contact the people who run those sites to ask their
>>permission to
>>carry their pages on this CD.
>>
>>I am producing this CD ROM so people who cannot access the Internet
(or have
>>limited access because of cost/security reasons) can benefit from the
work
>>that we have all done in putting Parkinson's information up.
>>
>>My intention is to run a program called "Web Whacker" over your PD
related
>>pages which will copy all those pages onto a disk. I will then add:
>>        - the archives of the PARKINSN list
>>        - anything else I can get my hands on
>>
>>And produce a CD ROM of PD information (provisionally called "PD CD")
>>
>>I intend the information on the CD to be covered by a copyright which
says
>>something like:
>>        - you can copy all this information as much as you want
>>        - as long as you don't claim it as your own
>>        - and credit the original authors
>>
>>I feel this approach satifies the general wish to inform as many
people about
>>PD as possible, although if you wish to include your own restrictions
I will
>>of course comply.
>>
>>Therefore:
>>        - would you mind if I copied your web site onto the CD?
>>        - are there any other (Non-web) sources of information you
think
>>          I should carry?
>>
>>To help you locate the information I wish to copy, one of the URLs I
found on
>>your site is:
>>
>><insert their URL here>
>>
>>I have no idea how much the CDs will cost to end users at the moment,
as
>>demand is unknown - I think I will have to get them made on demand,
which is
>>quite expensive. At the moment I am investigating how easy all this
is to do.
>
>--------- My opinions are my own, NIP's opinions are theirs ----------
>Simon J. Coles                                 Email: [log in to unmask]
>New Information Paradigms                  Work Phone: +44 1344 778783
>http://www.nipltd.com/                     Work Fax:   +44 1344 772510
>=============== Life is too precious to take seriously ===============
>