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		LISTSERV Archives
		PARKINSN Home
		PARKINSN May 1996, Week 2

Subject:

Udall bill

From:

[log in to unmask][log in to unmask][log in to unmask], 10 May 1996 13:36:30 -0400380_- My wife, 76/10+, had such a severe allergic reaction to a single dose of
Parlodel that it had to be discontinued without further attempts to use it.
One moral of the story: When a new Rx is prescribed, ask the pharmacist to
package only 10 of the new tablets in order to make sure they can be
tolerated before a big expendiyure is made. Good luck -- Bob Howard [...]44_10May199613:36:[log in to unmask][log in to unmask], 10 May 1996 13:36:22 -0400423_- My wife took amantadine briefly a few years ago. She was taking
Sinemet at the time, and amantadine was supposed to enhance its effect. It
was not of help, and it had no bad side effects.
She took artane for 2 or 3 years around 1990, at which time she had
had PD for about 3 or 4 years. It ultimately affected her sensorium so
badly - delusions, disorientation, etc. - that it had to be discontinued. [...]44_10May199613:36:[log in to unmask][log in to unmask], 10 May 1996 13:36:19 -0400627_- I have read the various postings re PD and occupation with much
interest. In my wife's case, we have no particular culprit we suspect. She
was wife, mother, and nursing home chaplain, none of which exposed her to
anything other than what all of us encounter in modern living.
One of the members of our support group, however, raises an
interesting question. He is a relatively young-onset Parkie, early 50's,
and was a fireman. He says, without citing figures, that PD is common in
firemen,supposedly owing to their high exposure to carbon monoxide. Does
anyone have any information re this?
[...]44_10May199613:36:[log in to unmask][log in to unmask], 10 May 1996 13:36:24 -0400603_- >I am new to the list, as my father was diagnosed with Parkinson's about a
>year ago at age 73. I have a question about his behavior. He has never
>been the most reasonable person around, however lately my mother has
>noticed that he has been acting very unreasonable lately. For instance,
>one of my cousins, her brother's daughter, died recently and she wanted to
>travel from Ohio to New York to attend the funeral. My father didn't want
>her to go. He finally made the comment that she would do anything to get
>out of the house.
>
>Does [...]44_10May199613:36:[log in to unmask][log in to unmask], 10 May 1996 12:47:37 -0400483_- Hi Everyone,

The list serve is wonderful but it is also taking a fair chunk of time to
read through it, and more to fully take it in. But at least I've learned
Downloading 101 and where to convert it on my machine so I can peruse the
whole thing!

I am among those who believe that trauma to the nervous system esp. the
brain often triggers PD or PD-like symptoms. If I understand what you mean
by secondary PD, I believe this is my situation too. [...]38_10May199612:47:[log in to unmask][log in to unmask], 10 May 1996 15:57:44 -0400560_- > A study in Sweden, published in the
> British Journal of Industrial Medicine, did a statistical analysis of the
> probability of developing neurodegenerative diseases in various
> occupations. This study was the most detailed mathmatically that I have come
> across. The results rated the the likelyhood of coming down with

Reply-To:

Parkinson's Disease - Information Exchange Network <[log in to unmask]>

Date:

Mon, 13 May 1996 10:38:58 -0400

Content-Type:

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This morning I read the messaages about the PAN lobbying in DC and was so
inspired by the work of those who atttended the Forum!  The least we back
home can do is to make a few phone calls.

Our local PD support group has already succeded in getting the two Representatives in our area to become co-sponsors, but from the DC reports, it sounds
like one can lobby congresspersons outside one's own district and they will
be responsive.

So, I decided to give it a try this morning.  I called the US Capitol
Switchboard (202-224-3121) and asked for the phone number of John Tanner
- the representative from west TN.  I called his office, asked to speack
to his aid for health affairs, and was put through to Vicki Walling.
Asked her if Tanner had a position on the Udall bill.  She said he was
considering it along with a big stack of other bills, and that they were
familiar with the bill.  It seemed like that was the end of the conversation,
but I asked her if I could tell her why we felt the bill is important.  I
began talking about it, and happended to ask if she knew anyone with
PD.  Turns out her grandmother was a Parkie, died recently, and she helped
care for her.  Everyone in her family contributes to APDA.

At the end of the conversation, she said she would put the Udall bill
at the top of the Congressman's pile, and give him the additional info
that I offered to send her.

I don't know if he'll co-sponsor, but we certainly have made it to first base.
I offer this rather long story as additional evidence that there are
many congresspersons/staffers out there who will be responsive to us if
we just pick up the phone.

Lynn Walker

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