Hello all,

I've also had a message returned, apparently from a German location. Did the
following post make it to the list? Can anyone less "technically challenged"
than I explain what is going on?

Curiously,
Gaylon
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Post Master wrote:
>
> Ihre Nachricht an: [log in to unmask]
> mit der Message-Id <[log in to unmask]>
> und dem Betreff "Re: amitriptyline hcl (Elavil, Endep)" ist unzustellbar.
> User ist in der Box unbekannt!
> -------------------------------------------------------------------------------
>
> Hi Linda & all,
>
> Thought I would relate my experience re: PD and fibromyagia, for what it
> might be worth.
>
> Linda S. Breedlove wrote:
>
> > A couple of months ago Ed's doctor prescribed amitriptyline for him, as
> > he does not have tremors but has *much* pain, especially in the mornings,
> > along with stiffness.  (He had already been on Sinimet, permax and
> > eldepryl for three years).
>
> I DO have tremor, primarily in my left hand, which has been managed pretty
> well with Sinemet and Sinemet CR. In recent months my right hand, foot and
> head have become more involved, especially when stressed or very tired. A
> different neuro has been trying to help me with the progression. He gave me
> Permax first. It put me "in a fog" somewhere between reality and the twilight
> zone. It did help the tremor. Two weeks ago the neuro stopped the Permax and
> put me on Parlodel, 1/2 tab twice a day. It has helped the tremor, somewhat,
> without the other problems.
>
> Prior to my diagnosis of PD, 18 years ago, I had been told by doctors that I
> had arthritis. *Much* pain and stiffnes has been part of my experience also.
> I was told that pain wasn't a PD symptom and that it was probably arthritis
> related. Taking four aspirin up to four times a day for the pain was the Rx.
>
> About six or seven years ago I began having burning sensation and pain in my
> biceps. I heard a report about fibromyalgia that sounded a lot like what I
> was experiencing. I told my neuro at the time about it and he put me on
> Fenoprofen (sp?) which helped the burning feeling. The general muscle pain
> continued to be a problem.
>
> > He hasn't taken any yet, as he's somewhat reluctant to, so I don't know
> > if they'll work...but here's my question:  I've been reading some about
> > the disorder Fibromyalgia (or fibrositis, its new 90's name) and
> > discovered this amitriptyline is the drug given for that disorder, as it
> > promotes "deep" muscle-restorative sleep.  It's about the only effective
> > drug for fibromyalgia patients.
>
> About a year ago I got to the point that I wanted to try and find out whether
> or not I had fibromyalgia. I thought I probably did based on my own research.
> I went to see a rheumatologist for help. After several visits and
> examinations he concluded that I didn't fit the complete profile of symptoms
> (tender to painful at _?_ number of joint touch points etc.) to have
> fibromyalgia. He tried a couple of meds, but I ended up taking 2 Daypro
> daily. This helps some, but I still have general soft tissue pain in most of
> my body. My family doctor tells me to take Tylenol for the pain. It does
> little or no good. Anacin seems to help most, but because the Daypro is an
> anti-inflammatory the doctor doesn't want me to take it.
>
> I don't recall amitriptyline being mentioned by any of my doctors. Is that
> the name it is dispensed under or are there other name(s) for the drug?
>
> > Has anyone on this list had any experience with getting incorrectly
> > diagnosed with Parkinson's Disease, when, in fact, they had
> > fibromyalgia?  Or vice versa?
>
> I said all of that to basically say, I still don't know for sure. With moving
> from Ohio to Florida, changing insurance providers etc. I've seen several
> neurologists over the years. All of the them have agreed with the PD
> diagnosis, a couple of them, however, somewhat questioningly. And me, I've
> accepted the PD diagnosis, also somewhat questioningly, and, by God's grace,
> try to deal with the aching etc. one day at a time. It gets worse this time
> of year, here in Florida, where we have almost daily afternoon thunderstorms.
> My body tells me the storm is approaching long before it gets to us. It's
> often more accurate than the weatherman.
>
> > Ed's symptoms sure fit the fibromyalgia syndrome more than PD.
> > If anyone knows about *both* these disorders, please let me know what you
> > know.  Thanks.
>
> That's about all I "know", and I'm not sure about that......but then neither
> are the doctors I've seen.
>
> I wish you and Ed the best. If you, or anyone reading this, know or learn
> anything more definitive, I would sure like to hear about it.
>
> SOON!
> Gaylon Johnson
> <[log in to unmask]>
>
> --
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>                    * On the Suncoast of Florida *
>                      ~~~~~~~~~~~~~~~~~~~~~~~~~~
>             "When the outlook is dark, try the UPlook!"
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
> -------------------------------------------------------------------------------
>
> - ihr Prometheus-Mailbox-System