Bill's ideas for coordinating action through Washington state support
groups is exciting.  Is anybody else doing this in other areas?  I am
relatively new at all this and just finding my way around.  Looking for
models and ways to plug in.

Emily Jackson CG Jim 69/1
[log in to unmask]

>At 07:45 PM 7/2/97 -0700, you wrote:
>>
>>
>>Hi,
>>My name is Bill Nowell,(57/2). I have received a list of names and
>>E-mail listings. I am trying to contact you and everyone else interested
>>to establish some type of Parkinson's Support Group communications
>>network in Washington.  I happen to believe that the primary reason that
>>only two of our Congressmen, at this time, have co-sponsored the Udall
>>Bill is because we have not effectively communicated and concentrated our
>>total effort and energy on those representatives who are not on board. I
>>think that our representatives want to do the right thing, but we have to
>>tell them what that really  is.   I think that it is great that Senator
>>Patty Murray and Slade Gorton, along with Congressman Norman Dicks and
>>Jim McDermott have done the right thing. Unfortunately, the remaining
>>representatives (in my opinion) haven't. It is hard to understand why,
>>during the last Congress Jennifer Dunn (8th Dist) was a cosponsor (HR
>>1462), but she hasn't signed up yet this year.  If there are any of her
>>constituents out there reading this, it might help if she were reminded
>>that we need her support again.  Let's help Jennifer and all of  our
>>representatives who have not cosponsored the Udall Bill by reminding them
>>we and their voters are counting on them.
>>
>>I am going to see if we can establish a list of Parkinson's Support
>>Groups around the state. We will then be able to coordinate and be more
>>effective. I think it would be fantastic if every support group in the
>>state received a copy of every groups newsletter. This would certainly
>>educate and open up the lines of communications. There are so many of you
>>doing such great things that we could all use if we only share the
>>information and knowledge. I will be more than glad to act as the point
>>of contact and
>>would ask you to send me your comments, suggestions and recommendations
>>concerning this undertaking. I am sure that there are many of you that
>>are more qualified to do this than me and if you step forward I will
>>assist you as much as possible. In the meantime I will plug on because
>>there is no time to loose in our battle.
>>
>>Some of the questions I have are do you belong to a Parkinson's Support
>>Group, where is it located?
>I do not belong to a PSG.  Are you a veteran, if so, which branch of
>>service? I am not a veteran.  Do you have contact and communications with
>other groups?  I do.  However, nothing to do with health or politics.  Is
>>there someone who has E-mail capability to act as a Network Point of
>>Contact (POC)?  What does a POC do?  Is there a telephone number of FAX
>available? I have a FAX.  When and
>>where do you meet, approximately how many members do you have? Do you
>>have contact with your congressional representatives? Only when I'm angry.
>As you can see
>>there are a multitude of questions, but we can make this happen and make
>>sure that the Udall Bill is passed. There is a great deal of help
>>available from the NPF, PAN, APDA and others.  Let's make our WA
>>Parkinson's voice be heard loud and clear around the state and into the
>>chambers of congress.
>
>Okay, what's the next step to getting the Udall Bill passed in WA state?
>Sharon ([log in to unmask])
>
>> If we don't make it work and get the Udall Bill passed then who will?  I
>>look forward to hearing from you, reading your comments and suggestions
>>and making our undertaking a total success. Let's make "The Fighting
>>Flame" Burn Brighter in Washington.
>>
>>Bill Nowell
>>[log in to unmask]
>>(360)412-0950
>