TO those who suffer from sleeplessness.  I take trazadone, lorazapam, and
paxil at bedtime.  I am asleep within 5 minutes, take one trip to the potty
during the night, sleep soundly and wake up refreshed in six hours. And I
have wonderful dreams. Have you asked your dr for sleeping aids? John Gugel
(New to y'all)



At 12:00 AM 7/25/97 -0400, you wrote:
>There are 9 messages totalling 246 lines in this issue.
>
>Topics of the day:
>
>  1. CALL TO ACTION--Udall (2)
>  2. HP-200
>  3. Hard Times
>  4. Delete THIS!.
>  5. what to say for Don
>  6. Don & Friends
>  7. liver detox
>  8. SEN. WILLIAM H. FRIST'S #s
>
>----------------------------------------------------------------------
>
>Date:    Thu, 24 Jul 1997 20:45:42 -0400
>From:    "Walter O. Huegel" <[log in to unmask]>
>Subject: Re: CALL TO ACTION--Udall
>
>[log in to unmask] wrote:
>>
>> IMMEDIATE ACTION!
>>
>> FRIDAY, July 18, 1997
>>
>> Just met with the legislative staff of Senator McCain and Wellstone. The
>> meeting was most productive. Attending and participating in a very
>> complimentary fashion were Bill Turenne, Paul Smedberg, Ed Long, Mike
>> Claeys and myself.
>>
>>  Senator McCain would like Senator Frist of Tennessee, Chairman of the
>> Senate subcommittee having jurisdiction over NIH, to hold hearings
>> immediately on the Udall Bill. This would pave the way for the Senate
>> Commerce committee to report the Udall Bill to the Senate floor for a
>> vote, where it will pass!
>>
>>  It would be very helpful if as many persons from Tennessee would write,
>> call, and visit Senator Frist and his staff urging that he hold such a
>> hearing ASAP. Remind them that the Udall bill was introduced in
>> April...and hearings should be held NOW. Our efforts with Senator Frist
>> with strengthen Senator McCain's hand considerably. It is also important
>> for ALL persons interested in the Udall bill make their desires for these
>> hearing known to Senator Frist. Work should begin this weekend....if not
>> sooner.
>>
>> GOOD LUCK!!
>Sen. Frist's E-mail, phone, fax addresses. Thanx!
>
>------------------------------
>
>Date:    Thu, 24 Jul 1997 20:47:23 -0400
>From:    "Walter O. Huegel" <[log in to unmask]>
>Subject: Re: CALL TO ACTION--Udall
>
>[log in to unmask] wrote:
>>
>> IMMEDIATE ACTION!
>>
>> FRIDAY, July 18, 1997
>>
>> Just met with the legislative staff of Senator McCain and Wellstone. The
>> meeting was most productive. Attending and participating in a very
>> complimentary fashion were Bill Turenne, Paul Smedberg, Ed Long, Mike
>> Claeys and myself.
>>
>>  Senator McCain would like Senator Frist of Tennessee, Chairman of the
>> Senate subcommittee having jurisdiction over NIH, to hold hearings
>> immediately on the Udall Bill. This would pave the way for the Senate
>> Commerce committee to report the Udall Bill to the Senate floor for a
>> vote, where it will pass!
>>
>>  It would be very helpful if as many persons from Tennessee would write,
>> call, and visit Senator Frist and his staff urging that he hold such a
>> hearing ASAP. Remind them that the Udall bill was introduced in
>> April...and hearings should be held NOW. Our efforts with Senator Frist
>> with strengthen Senator McCain's hand considerably. It is also important
>> for ALL persons interested in the Udall bill make their desires for these
>> hearing known to Senator Frist. Work should begin this weekend....if not
>> sooner.
>>
>> GOOD LUCK!!
>Sen Frist's numbers (phone, fax, E-mail)  Thanks!
>
>------------------------------
>
>Date:    Thu, 24 Jul 1997 20:49:43 -0400
>From:    "Walter O. Huegel" <[log in to unmask]>
>Subject: Re: HP-200
>
>P. Schark wrote:
>>
>> Wendy,
>>
>> I'm home from DC and read your other message.  I wanted to respond to this
>> one because I found fava beans in my supermarket and wanted to try them.
>> However, when I got them home I couldn't figure out how to get them out of
>> the shell.  Any suggestions?
>>
>> As you can see from the other postings on the listserv, our visit was
>> quite a success.  The next step is to get Sen. Frist to hold hearings.
>> This bill is really do-able!  If all goes according to plan, maybe we can
>> meet in DC next year to lobby for appropriations.
>>
>> Pat
>Sen. Frist's numbers (phone, fax, E-mail)  Thanks1
>
>------------------------------
>
>Date:    Fri, 25 Jul 1997 00:10:55 -0400
>From:    George Andes <[log in to unmask]>
>Subject: Hard Times
>
>        Several recent posts to this list have been complaints, not
>complaints about the list, but complaints about our common condition,
>Parkinsons.  The person complaining often sounds half-apologetic about his
>or her condiion.  Taken  all in all this list has well over 1000 PWP in
>various stages of affliction, from the trembling green recruit clutching
>for any word of assurance that things won't really become as bad as rumor
>has it, to the grizzled and battle weary veterans who know the truth
>first-hand.  And yet, the number of posts complaining about our situation,
>bleak as it may be, are relatively few.  Are we really that brave or
>stoical?
>
>       We all know with cetainty that if we do complain we will be buried
>under an avalanche of sympathetic replies, both public and personal.  We
>turn no one away.  Yet personal physical complaints are sufficiently scarce
>that I have left my self imposed silence to comment on the matter.
>
>        One of the important messages the list and its membership
>continually reinforces is that there is life after diagnosis.  The world
>doesn't end with the bad news.  As Dolly Parton sings (with Billy Dean)
>"You got me over a heart ache tonight..."  She's singing about a romantic
>crisis, but we all could sing of this list and its members "You got me
>through a hard time tonight, today, this week, ...."
>
>        The Brian Collins's, Camilla Flinterman's, Charlie Meyer's,
>Margaret Tuchman's, and the many helpful Barbara's, to name a few, but not
>at the cost of slighting any not named, have found a new avocation in
>helping all of us.
>
>      The recent few complaints have concerned sleep or the lack thereof.
>I personally wake up every two hours or less to take my personal sanitary
>plumbing to the bathroom.  If my bladder were better, however, my sleep
>would be less restful than it is.  I don't move or turn over in my sleep
>and more than two hours in the same position (left side, right side, or
>back) would cramp my muscles so that I might have difficulty getting my
>plumbing to the bathroom in time.  All things work together for good !?!
>
>      As for the other uses of personal plumbing: when my neurologist asked
>me if I had any problems with my genitals, I said "no," except that they
>don't work anymore.  He smiled at my answer.  By the way to pursue this to
>its bitter end; my prostate is very small for a man my age, so the cause of
>my problem can be laid entirely at Dr. Parkinson's door.  I guess its nice
>to know.  End of personal confession.
>
>My final words, for now, concern time. If there is any single symptom I
>would call characteristic of my PD it is my altered perception of time.
>Time just doesn't pass more slowly or more rapidly; it is just out of
>control. "Hours creep. Days fly."   My body is enslaved to a rigid pill
>schedule which is not capable of comfortably regulating my symptoms.  Does
>anybody have any wisdom for me?
>
>George Andes  63/15 and counting
>
>------------------------------
>
>Date:    Thu, 24 Jul 1997 23:32:03 -0400
>From:    Ken Becker <[log in to unmask]>
>Subject: Re: Delete THIS!.
>
>Sue, I am glad you liked it too! ken B
>
>------------------------------
>
>Date:    Thu, 24 Jul 1997 23:46:03 -0400
>From:    Henry Guttentag <[log in to unmask]>
>Subject: Re: what to say for Don
>
>Dear Don:
>Please hang in there, we need you. Continue to post we read you loud
>and clear.
>
>Hope you will feel better soon.
>Henry Guttentag CG for wife 63/9
>
>___+++++++++____________+++++++++++++++++
>
>[log in to unmask] wrote:
>>
>>  i have been crying for last 2hrs i don't undarstand some of the problen
>> some pmp are talking about. only got 2/1/2hr sleep last night. even i got
>> bed i can change. i am gettin afraid to post any thing.as i might some one
>> out there. not sure what i am talking about now. my legs hurt. falling down
>> all moring . how can i help ypu when i can't help my self. i need the net
>> now bad. i for got my grils name today. gusse i will close. sorry tobother
>> any one. I.Y.Q. don      [log in to unmask] com  72/25
>
>------------------------------
>
>Date:    Thu, 24 Jul 1997 23:54:04 -0400
>From:    cln <[log in to unmask]>
>Subject: Don & Friends
>
>Don...Nothing wrong with a good cry.  It relieves tension and lets our
>emotions speak for themselves.  It's a cleansing feature we humans use
>to get rid of the blues.  Try to relax and get yourself some rest.
>After reading all the "well" wishes you are receiving from your friends on
>this listserv, tomorrow is bound to look brighter.
>
>Best wishes from Eugene, OR.
>
>Clara Nistler
>Gene Nistler 63/10
>[log in to unmask]
>_____________________________________________________________________________
>It is not difference which immobilizes us most, but silence.
>                                                    -Andre Lorda
>
>------------------------------
>
>Date:    Fri, 25 Jul 1997 11:54:38 -0400
>From:    burnham <[log in to unmask]>
>Subject: liver detox
>
>Catching up since we were in Spokane for five days.  Had 21 digests waiting.
>I get one or two read each day and receive two or three, not making much
>progress!!
>
>I was interested in the subject of liver detox.  Over a month ago, we had
>some testing done by a person specializing in applied clinical nutrition and
>contract reflex analysis.  She told Don that his liver needed to be
>detoxified.  She sold him a product put out by the Standard Process Inc.
>Hopefully he will be tested again this weekend. (if I can get him out of the
>field long enough)  Since the last 35 years have been spent farming and
>ranching I feel quite sure that his PD could be caused by the many chemicals
>that he has used over the years.  Nancy B cg for Don 63/13.
>
>------------------------------
>
>Date:    Fri, 25 Jul 1997 00:54:41 -0400
>From:    MR SEYMOUR GROSS <[log in to unmask]>
>Subject: SEN. WILLIAM H. FRIST'S #s
>
>WALTER, PAT AND OTHERS,
>
>
>
>PHONE #:  202-224-3344
>
>FAX #:  202-228-1264
>
>E-MAIL:  [log in to unmask]
>
>AT THIS POINT TIME IS OF THE ESSENCE IF A HEARING IS TO BE SCHEDULED
>BEFORE ADJOURNMENT.
>
>REGARDS,
>DOLORES
>
>------------------------------
>
>End of PARKINSN Digest - 24 Jul 1997
>************************************
>
>