janet paterson wrote:
>
> hi faye
>
> you wrote:
> >I pray for continuation of our list discussions
> >with the love and friendship of a family atmostphere
> >(thanks, Janet ..  what a great idea!)
>
> you are most welcome!
>
> i guess the significance of the sharing that goes on here
> is much more important to me
> on this beautiful but limited island
> because of what is not here:
> no neurosurgeons
> no neuros of any kind
> no 'movement disorder clinics'
> no support groups
>
> i have YET to meet a parkie in person
> [after nine years!]
>
> i have admitted to being spoiled by living on my own
> enjoying the luxury of solitary mulling time
>
> but the only reason that luxury doesn't become a prison
> is that i have
> 'you lot'
> through the miracle that is the internet
>
> we each one of us are individuals
> with our own chemical 'stew', granted,
> but also with our own unique talents or strengths
>
> i think the dynamic of this medium
> plus all of our strengths pooled together
> is the miracle of our time
>
> if i had pd
> and still lived here
> but with no internet in existence
> ... i can hardly bear to think about it
>
> i think i can declare without hesitation
> the only reason i feel so comfortable with having pd
> and so optimistic about the future
> is due to this miracle
>
> >If that is not possible for all,
> >then perhaps we can maintain at least
> >the polite and collegial atmosphere
> >of people working together toward a common goal
> >of surviving, fighting and learning as much as possible about PD.. :)
>
> i'm glad that ron felt 'safe' enough with us to express his frustration
> this isn't a 'public forum'
> it's a group of people brought together
> by an uncommon condition
> which is progressive, incurable, and degenerative
>
> we are not the average joe or jane on the street
> we and the people we care about
> have been through and are still going through
> a test by fire
>
> at times we need to share what we are really feeling
> because this may be our only outlet
> this may be the only group we have access to
> who might understand
>
> being a family doesn't mean 'happy days'
> being a family doesn't necessarily mean being 'polite'
> being a family doesn't mean we're 'on the prowl' or 'lookin fer luv'
> it means facing ups and downs together for the long haul
> knowing that we can just be us no act no pretense
> knowing we're not alone
>
> and if that's not a miracle
> i'll eat my hat
>
> your syber-sis
>
> janet
> [log in to unmask]

Hi Janet!

Until now, I have chosen not to post my opinion in regard to "splitting"
this list subscription.  However, upon reading your post, I feel
compelled to offer this brief
response.

In regard to all those who prefer to "split", I respect your opinions
and even empathize with some of your reasoning.  However, I believe that
within the contents of Janet's writing, one will see a finely
articulated rationale for closing this issue.  Because this list was
created for the purpose of offering a forum for issues relating to
Parkinson's, we must remember that there are faces behind those issues,
all with varying needs and abilities.  I believe that the humanistic
side is definately worthwhile therapeutically for the vast majority of
list members.

Janet, thanks for your perspective!

Jay Henkelman 47/7
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