Folks:

Sorry, I'll have to leave the list, but I'll keep in touch with the CARE
Digest.  I can't keep up with the volume of messages - especially since I
also have a full time job.  However, I've benefited from your expertise --
thanks a heap!

Esther Abe CG for Davis 74/5


t 12:00 AM 4/7/98 -0400, you wrote:
>There are 8 messages totalling 454 lines in this issue.
>
>Topics of the day:
>
>  1. Mirapex
>  2. Kava and PD Drugs (2)
>  3. Question
>  4. feedback needed
>  5. remission
>  6. who makes the list
>  7. Barb M.'s thoughts on April 11
>
>----------------------------------------------------------------------
>
>Date:    Mon, 6 Apr 1998 20:25:02 EDT
>From:    Tenaga <[log in to unmask]>
>Subject: Mirapex
>
>In the past I noticed some discussion of this list about a difference in some
>of PD medications between those mfg. in Canada and those mfg. in USA.  I am
>interested mainly in Mirapex.  Would like to have comments especially if
there
>is any truth to the statement.  Thanks Y'All
>Eldon Green
>
>------------------------------
>
>Date:    Mon, 6 Apr 1998 19:36:06 -0500
>From:    Bryce Jones <[log in to unmask]>
>Subject: Kava and PD Drugs
>
>My mother who has had PD for 8 years has suffered through substantial
>depression and anxiety the last two years.  Right now she is taking
>Remeron for the depression (it has helped some) and small dose of
>Klonopin for the anxiety.
>
>While I realize that Klonopin is much stronger stuff than Kava, I am
>wondering how Kava interacts with typical PD drugs, if at all.
>Kava is an herbal remedy that helps some with anxiety.
>Thanks,
>Bryce Jones
>
>------------------------------
>
>Date:    Mon, 6 Apr 1998 21:32:42 EDT
>From:    JON A MEYER <[log in to unmask]>
>Subject: Re: Question
>
>On Mon, 6 Apr 1998 12:26:07 EDT craig n eggerman <[log in to unmask]>
>writes:
>>I have a question on behalf of my father (78/2 months). About 3 weeks
>>ago he had an episode of being extremely hot, his vision blurring, and
>>left side feeling tingly and numb. He had an ultra sound of his neck
>>and those veins are surprising clear for a man of his age and weight.
>>Yesterday during church he had another 'attack'. Same symptoms. Last
>>time they changed his medication. (I do not know what he is on then or
>>now. It is not Sinemet.)
>>Does anyone know if this is another Parkinson symptom?
>
>Jean,
>I work as an EMT on a volunteer ambulance service. If someone told me
>those symptoms I would suspect a T.I.A. (like a mini-stroke). Questions I
>would ask would be does he have a history of hypertension (high blood
>pressure)? How long do the symptoms last. etc.
>It seems that there might have been some suspicion in that direction as
>they did an ultrasound of his neck veins.
>Keep on the Drs. till you have an answer.
>
>Jon Meyer 41/2 ([log in to unmask])
> another Hoosier
>
>------------------------------
>
>Date:    Mon, 6 Apr 1998 19:23:44 -0700
>From:    "J. R. Bruman" <[log in to unmask]>
>Subject: Re: Kava and PD Drugs
>
>Bryce Jones wrote:
>>
>> My mother who has had PD for 8 years has suffered through substantial
>> depression and anxiety the last two years.  Right now she is taking
>> Remeron for the depression (it has helped some) and small dose of
>> Klonopin for the anxiety.
>>
>> While I realize that Klonopin is much stronger stuff than Kava, I am
>> wondering how Kava interacts with typical PD drugs, if at all.
>> Kava is an herbal remedy that helps some with anxiety.
>> Thanks,
>> Bryce Jones
>
>Schelosky L et al:
>Journal of Neurology, Neurosurgery, and Psychiatry, 1995;58:639-640:
>Kava, a tranquilizing herbal beverage popular in the South Pacific
>and also sold in Europe, seems to aggravate PD by antagonizing
>dopamine and should therefore be avoided by PD patients. Cheers,
>Joe
>--
>J. R. Bruman   (818) 789-3694
>3527 Cody Road
>Sherman Oaks, CA 91403-5013
>
>------------------------------
>
>Date:    Mon, 6 Apr 1998 21:43:40 -0400
>From:    Debbie White <[log in to unmask]>
>Subject: Re: feedback needed
>
>My mother Joyce (68/14 months) is now up to 6mg Requip 3x/day (along with
>10 mg. Paxil and 25/100 Sinemet 2x/day). She recently experienced red
>swollen feet. She attributed it to Requip, but it then got better on its
>own (without a drug adjustment).
>
>She, too, is experiencing more tremor and this seems to have started with
>Requip. Before Requip she had occasional tremor in her left hand. Now the
>tremor is more pronounced.
>
>
>
>
>Debbie White
>[log in to unmask]
>
>
>> Ineed information from any and everyone that  has taken requip.  I am now
>on
>> 2.5 mgs and my hands and feet and ankles are swollen.  I am taking it to
>> control tremor but it seems to be exaccerbating the tremor noticibly.  My
>> doctor wants me to increse up to 3.0mgs before I see him again.  The only
>> other medication I am on Is one eldepryl  a day.  Did anyone have any
>similar
>> experience.?  Does anyone have a suggestion as to how I should proceed.
>I
>> will be grateful for any input.
>
>------------------------------
>
>Date:    Mon, 6 Apr 1998 23:33:01 -0400
>From:    "Camilla H.Flintermann" <[log in to unmask]>
>Subject: Re: remission
>
>Don-- glad for the remission, and hope you continue to feel better. That
>neuro of yours is one for the book!
>Requip will be built up slowly--Peter is doing OK with it, has had some
>wearing off but is now adding slowly again.  His Neuro says the best dose
>for someone who is on Sinemet  is maximum 6 mg daily--those who are only
>taking Requip may go as high as 24. Just don't get in a hurry, and listen
>to Vivian and that nice doctor!
>We YQ2...
>
>
>>my computer has a week of remission al so i was taken of mirax misspelt now
>>on requip and one other. so i should of paid more attion about what the
>>family had to say. got to put on some wait and eat more even if vivian got
>>to blind fold holed my nose to eat. i asked for his pics. he said he would
>>think about it but want every one to under stand he is my friend not my
>>nero. as not every one is close to him. said he can't get to close to his
>>patients. guess he is right. don't know how long i will be on it. so some
>>of you remind me how good or bad it is
>>
>>                               [log in to unmask]
>>                               73/26  lima,oh
>>
>>                                I.Y.Q.  DON  &  VIVIAN
>>                             LOVE OF MY LIVE -53
>>
>>                                 BEST MEDS FOR PD IS
>>                                   LOVE  &  HOPE
>
>
>
>***   ***   ***   ***   ***   ***   ***   ***   ***   ***   ***   ***
>                        This is for YOU!!
>
>
>        ____                  ____                  ___
>   ____(   \              .-'    `-.              /   )____
>  (____     \_____       /  (O  O)  \       _____/     ____)
> (____            `-----(      )     )-----'            ____)
>  (____     _____________\  \____/  /_____________     ____)
>    (______/              `-.____.-'              \______)
>
>
>        From Camilla                    [log in to unmask]
>
>***   ***   ***   ***   ***   ***   ***   ***   ***   ***   ***   ***
>
>------------------------------
>
>Date:    Mon, 6 Apr 1998 22:02:19 -0500
>From:    Ivan M Suzman <[log in to unmask]>
>Subject: Re: who makes the list
>
>Kees,  and the gang,
>
>I'm real tired- A GOOD TIRED, THOUGH, after a wonderful 30 min TV show
>today, with Karen and Jon Bardo.  I don't know how on Earth I found the
>energy, but thank you God--I did.
>
>As far as who can be the "listkeeper" of which states/cities /countries
>are Proclaiming Parkinson's Awareness Daygoes, I was only suggesting
>Helen because she's such a GREAT Udall Bill advocate.
>
>She just phoned me, and we both agree----Kees, THANK YOU for  jumping
>right in, and doing the work of listing the proclamations!  GO FOR  IT!!
>
>Ivan
>^^^^^^WARM GREETINGS  FROM^^^^^^^^^^
>Ivan Suzman      48/11                 [log in to unmask]
>Portland, Maine   land of lighthouses      36   deg. F  a little bit more
>like spring
>***********************************************************
>
>On Mon, 6 Apr 1998 16:02:46 -0700 kees paap <[log in to unmask]>
>writes:
>>Hi Helen and other listfriends,
>>
>>
>>In my enthousiasm I must have missed Ivan's suggestion that you should
>>keep
>>track of the activities. I'm sorry for my actions and I would love to
>>give
>>my list to you or anybody else who is willing to make this list. It is
>>not
>>my intention to do something which I shouldn't, so if anybody wants to
>>take
>>over, I will be happy to send the info I gathered:)
>>
>>Warm greetings from a happy Dutchman in Texas, 48/9,
>>Sinemet 1x 62.5, Sinemet 3x 125CR, Permax 3x 1.0, Tasmar 3x 100
>>
>>**** Life is a loan, to live is an art, to live happily is a gift, to
>>give
>>is to live, to love is to give and to live, to cope with PD is all, I
>>thank
>>God daily that He gives me this loan and I will pay him back***
>>
>
>------------------------------
>
>Date:    Mon, 6 Apr 1998 22:23:04 -0500
>From:    Ivan M Suzman <[log in to unmask]>
>Subject: Barb M.'s thoughts on April 11
>
>^^^^^^WARM GREETINGS  FROM^^^^^^^^^^
>Ivan Suzman      48/11                 [log in to unmask]
>Portland, Maine   land of lighthouses    36    deg. F  springlike
>***********************************************************
>Dear Barb,
>
>    You've touched on something real deep.  I guess, dear barb, I am
>playing my life by the rule that it really is OK to "celebrate" a joyous,
>very FIRST-ever gathering of all of Maine's support groups. Just the
>feeling of looking around a room of bravery and courage-- the willingness
>to be VISIBLE--overpowers and outpaints the sadder, more grey tones of
>Parkinson's.
>
>     For me, my first April 11 is, I hope, a COMMUNITY day of  hope and
>reflection.  This includes hope, sadness, acceptance, pride, courage and
>maybe, wisdom; more importantly, I truly hope, EMPOWERMENT..  It's
>suddenly eclipsed even my birthday in importance!  or does THAT come with
>the territory of being in my late 40's??
>
>     Anyway, dear california cybersis, I NEEDa celebration, sort of like
>I DESERVE it, I EARNED it and I am gonna have a GREAT time, despite the
>hardships, no matter what!
>
>     I might even eat an extra hot fudge sundae just for YOU!!  Or a
>maple-flavored whoopee pie!
>
>     Thank you for all you do for us.,,,
>
>i<<<BARB>>>s
>
>(  Ivan gives Barb a cyberhug )
>
>On Mon, 6 Apr 1998 22:12:35 UT Barbara Mallut <[log in to unmask]>
>writes:
>>Ivan, m'dear...... I've gotta call ya on your use of the term
>>"celebrate" in
>>reference to "World Parkinson's Day."  It makes me nauseous to  see
>>the word
>>"celebrate" when we're talking about this horrific disease.
>>
>>I looked up "celebrate" in the thesaurus, and was astounded to find
>>hundreds
>>of ways to express that word - and virtually ALL used it to define
>>some joyful
>>event.  JOYFUL event?
>>
>>YIKES!!   THAT'S not how I feel about PD or the events of the day on
>>April
>>11!!!!!!
>>
>>I see April 11 as a day for reflection, a day to honor those who have
>>so
>>valiantly and publicly carried the Parkinson's banner for ALL to see,
>>instead
>>of remaining invisible.  I see the day as a collective, public
>>SCREEEEEEAM of
>>frustration made by people who otherwise would NEVER exhibit
>>themselves in
>>such a manner - people who were brought up by both parents and society
>>to not
>>"air their dirty linen" where the whole world can see it.
>>
>>By "going public," about having a terrible disease and calling the
>>"public
>>conscience" on the carpet by reminding that self-same public that once
>>out of
>>the closet, we're not going BACK - we're visible and we're going to
>>STAY
>>visible till there no longer is a reason to do so IS "airing dirty
>>linen" by
>>many.
>>
>>So Ivan, dear friend, I suggest you grab your thesaurus and come up
>>with a
>>replacement word  to describe World Parkinson's Day, and when we next
>>have a
>>REASON to "celebrate" vis a vis PD, let's pray we'll be celebrating
>>the CURE!
>>
>>Go get 'em, tiger!
>>
>>With love....
>>
>>Barb Mallut
>>[log in to unmask]
>>
>>
>>
>>----------
>>From:   Parkinson's Information Exchange on behalf of Ivan M Suzman
>>Sent:   Monday, April 06, 1998 3:50 AM
>>To:     Multiple recipients of list PARKINSN
>>Subject:        House-Senate RESOLUTIONS-any other states?
>>
>>^^^^^^WARM GREETINGS  FROM^^^^^^^^^^
>>Ivan Suzman      48/11                 [log in to unmask]
>>Portland, Maine   land of lighthouses    34   deg. F overccst
>>***********************************************************
>>MAINE House-Senate RESOLUTION (S. 868)
>>**************************************************************************
****
>>******
>>Dear Listmembers,
>>
>>Karen Bardo and I will be on WCSH-TV in Portland, Maine at 12:30
>>today.
>>The RESOLUTION below will be mentioned, as will our APRIL 11
>>celebration
>>of World Parkinsons' Day.
>>
>>Have  any other states adopted Parkinson's Awareness legislative
>>resolutions?
>>
>>Ivan
>>
>>
>>
>>On 20 Mar 1998 16:52:13 -0500 "Delfranco, Judi"
>><[log in to unmask]> writes:
>>>JOINT RESOLUTION RECOGNIZING PARKINSON'S
>>>DISEASE AWARENESS MONTH
>>>
>>> WHEREAS, Parkinson's disease is a brain disorder that usually
>>affects
>>>
>>>adults over 40, although it can appear in younger persons; and
>>>
>>> WHEREAS, Parkinson's disease, or Paralysis Agitans, is a
>>devastating,
>>>
>>>painful and incurable brain disorder of unknown origin that disrupts
>>>and
>>>can end the lives of those who suffer from it as well as overwhelming
>>>the
>>>lives of their families and friends; and
>>>
>>> WHEREAS, more individuals suffer from Parkinson's disease than
>>>multiple
>>>sclerosis, muscular dystrophy and Lou Gehrig's disease combined; and
>>>
>>> WHEREAS, Parkinson's disease often takes an enormous emotional,
>>>psychological and physical toll on the families surrounding their
>>>suffering loved ones; and
>>>
>>> WHEREAS, Parkinson's disease appears eventually in approximately one
>>>of
>>>4 persons older than 80 years of age and in one of 10 persons older
>>>than
>>>60 years of age, thereby directly touching the lives of at least one
>>>of
>>>10 families in the State; and
>>>
>>> WHEREAS, according to the American Parkinson Disease Association
>>>there
>>>are approximately 1.5 million people in the United States diagnosed
>>>with
>>>Parkinson's disease, of which 7,000 or more are in the State of
>>Maine;
>>>
>>>and
>>>
>>> WHEREAS, the symptoms of Parkinson's disease - stillness, tremors,
>>>slowness, poor movement and difficulty with balance and speaking are
>>>
>>>often mistaken as a normal part of the aging process; and
>>>
>>> WHEREAS, the cause of the disease is unknown, and drugs can only
>>>control
>>>some of the symptoms of Parkinson's disease for a short period of
>>>time;
>>>and
>>>
>>> WHEREAS, the historic and crucial Morris K. Udall Parkinson's
>>Disease
>>>
>>>Research Act of 1997, which would provide up to $100,000,000 of
>>>funding
>>>specifically for Parkinson's disease, has recently been passed by the
>>>
>>>Congress after a courageous 4-year struggle by Parkinson's sufferers
>>>
>>>usually too sick to go to Washington; and
>>>
>>> WHEREAS, the entire congressional delegation from Maine was the
>>first
>>>
>>>delegation from any state to join in cosponsoring the Udall
>>>Parkinson's
>>>legislation; and
>>>
>>> WHEREAS, April 11th has been proclaimed to be World Parkinson's Day,
>>>a
>>>day for all to recognize the need for more research and help in
>>>dealing
>>>with the devastating effects of Parkinson's disease; and
>>>
>>> WHEREAS, increased education and research are needed to help find
>>>more
>>>effective treatments and ultimately a cure for Parkinson's disease
>>and
>>>to
>>>provide more effective support programs and services to Parkinson's
>>>disease patients and their caregivers and families; and
>>>
>>> WHEREAS, the leading public officials of the State and leading
>>>officials
>>>in the State's medical community are now called upon to aid in
>>>reversing
>>>the invisibility and voicelessness of its citizens suffering from
>>>Parkinson's disease; now, therefore, be it
>>>
>>> RESOLVED:  That We, the Members of the One Hundred and Eighteenth
>>>Legislature, now assembled in the Second Regular Session, recognize
>>>the
>>>month of April as Parkinson's Disease Awareness Month throughout the
>>>
>>>State of Maine; and be it further
>>>
>>> RESOLVED:  That a suitable copy of this resolution, duly
>>>authenticated
>>>by the Secretary of State, be transmitted to the American Parkinson
>>>Disease Association, Maine State Chapter.
>>>
>>
>
>------------------------------
>
>End of PARKINSN Digest - 6 Apr 1998
>***********************************
>