hi all

rick and i agreed to share this dialogue with the list

janet

>Subj:  Re: Help and info for pd friend of friend - alarm bells
>Date:  98-06-19 11:57:15 EDT
>From:  Janet313
>To:    [log in to unmask]
>
>In a message dated 98-06-19 11:24:44 EDT, you write:
>>Hi Janet,
>>Your response brought up a related issue with me. I just visited
>>my neurologist yesterday for a medication check and we talked
>>about young PWPs--he sees about 4 of them including me. He
>>contends that YOPs "decline" faster than older Parkinsons people.
>>I am not sure if that's just his experience with his patients
>>(excluding me) or whether there's some basis in fact for this view.
>>I'll be damned if I'm going to start projecting my imminent demise
>>just because of something a doctor says!! Your experieince
>>is clearly not following my doc's opinion.
>>
>>Rick 47, 6 months or so
>
>
>hi rick
>
>and... absolutely!
>
>as one who has suffered with gallstones for 8 years
>which were misdiagnosed [and treated]
>as nerves, stomach ulcers, lack of self esteem, and infectious hepatitis,
>in that order
>
>and also as one whose father's throat cancer
>was brushed off as a bad cough for six months
>
>i have to admit to a certain cynicism
>when it comes to the 'doctor as god' medical training
>that seems to have been rampant in the past
>[and seems to be declining at present]
>
>your doctor's comments that younger parkies decline more quickly
>has not been borne out by what i have read
>
>i believe that yoppers tend to have the 'rigidity type' of pd
>[which is the 'type' more suitable for pallidotomy]
>rather than the 'tremour type'
>and that they [we] are more prone to clinical depression than oopers [?]
>
>it's also likely that yoppers are more prone
>to have developed pd as trauma-related
>[i suffered a head injury and a pesticide exposure in the same year
>in 1981 when i was 34, and noticed the beginning symptoms
>three years later]
>rather than as a part of general aging and deterioration
>[if everyone lived long enough, they would all develop pd]
>
>but if there's any one thing that i have learned about pd
>is that it is as individual as the body-bag [!]
>that it moves in with
>
>we all have our own unique bio-chemical 'signatures'
>as unique as our fingerprints
>and the chemical imbalance that is pd
>is equally varied in its manifestation of symptoms
>and its response to pharmaceutical chemicals
>
>i refuse to listen to anyone, expert or no, try to forecast the future
>none of us are in the driver's seat and none of us have a map
>but i have complete faith in the bus-driver
>
>which is not to say that i can't make the trip
>as positive and as rewarding as i can
>for myself and for others
>
>your cyber-sis
>
>janet
>
>ps
>whew
>you must have hit a nerve!
>would you mind if i posted this to the list?
>i think our dialogue  is important enough to share

a new voice: http://www.newcountry.nu/pd/members/janet/index.htm
pwp event calendar: http://newww.com/cgi-bin/do_cal?c:pwpc
51/10 - endocarb/selegiline/fluoxetine - [log in to unmask]
janet paterson, eic, ccs