hi it has been a long time since i've written or chatted,I was trying to get
away but the truth is there is no way to get away.   i DON'T WANT TO SOUND
dEPRESSED    but I am not as up as usual .iLife keeps going on but nothing
changes and I realize I am expecting something it's like always waiting for
a package.iThis is not fair we deserve a miracle.Let's put our spirts
together let's try heaven instead of washington. every sun. aft, at three
pray for a cure for ten minutes.why not? Ruth Spielberger

-----Original Message-----
From: Automatic digest processor <[log in to unmask]>
To: Recipients of PARKINSN digests <[log in to unmask]>
Date: Monday, June 01, 1998 11:07 PM
Subject: PARKINSN Digest - 1 Jun 1998


>There are 18 messages totalling 457 lines in this issue.
>
>Topics of the day:
>
>  1. Need help surfing
>  2. chit chat 2
>  3. Internet Message (in the subject line?)
>  4. Washington full, any suggestions? (2)
>  5. lost again (3)
>  6. e mail
>  7. Non PD fact and comment
>  8. breathing problems and bloodpressure
>  9. Kava - herbal product
> 10. New member
> 11. New Member
> 12. Blood Pressure,Salt,PD
> 13. Breathing problems-new ? (2)
> 14. Need Source of Leather Sole Slippers
>
>----------------------------------------------------------------------
>
>Date:    Mon, 1 Jun 1998 16:50:09 EDT
>From:    William Heitman <[log in to unmask]>
>Subject: Re: Need help surfing
>
>In a message dated 6/1/98 2:35:15 AM Central Daylight Time,
>[log in to unmask] writes:
>
><<
> Barb Mallut ("cat mama" to Scooter 'n Buzzy)
> [log in to unmask]
>  >>
>Barb,
>Yikes, that kisser swipe hurt... yelp!, ike! ike! ike!
>
>Sometime in DC remind me to tell you about Tinkerbell and the two Icabods.
>
>WHH
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 15:56:50 -0500
>From:    Nita Andres <[log in to unmask]>
>Subject: chit chat 2
>
>Darwin, I forgot to put your name on this.
>
>I received J R Brumans CSR-then there was Barb Mullets NIH and Research
>post. Janet Petersons calenders and other notices.
>
>It doesn't take long to get through the messages. The Calenders. If you
>look for good you will find it.
>
>Nita ANdres
>[log in to unmask]
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 17:40:01 EDT
>From:    Bonnie Rowley <[log in to unmask]>
>Subject: Re: Internet Message (in the subject line?)
>
>To those using "Internet Message" in the subject line,
>
>I don't want to belittle anyone, but that subject line is so broad that it
can
>refer to every subject on the list. Please be more specific with what your
>topic is really about.
>
>Thanks
>
>Bonnie
>daughter of Jim76/2.75
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 17:37:43 -0700
>From:    ERVIN J MCCARTHY <[log in to unmask]>
>Subject: Re: Washington full, any suggestions?
>
>Barb, be sure to advise them to have $100,000.00 stuffed in their pockets.
>
>Ervin
>
>-----Original Message-----
>From: Barbara Mallut <[log in to unmask]>
>To: Multiple recipients of list PARKINSN <[log in to unmask]>
>Date: Monday, June 01, 1998 10:24 AM
>Subject: Re: Washington full, any suggestions?
>
>
>>Kees....
>>
>>Ya might  give Bill 'n Hilary a call and see if the Lincoln Bedroom's
>>available a the White House.... <smile>
>>
>>Barb Mallut
>>[log in to unmask]
>>
>>----------
>>From:   Parkinson's Information Exchange on behalf of kees paap
>>Sent:   Monday, June 01, 1998 7:07 AM
>>To:     Multiple recipients of list PARKINSN
>>Subject:        Washington full, any suggestions?
>>
>>Hi listfriends,
>>
>>many of you I hope to meet soon, at the PAN forum in Washington. I will
>>represent the Waco supportgroup here in the heart of Texas. I have one
>>problem/question. Hotel Washington appears to be full in that period. Any
>>suggestions for a neighbouring hotel?
>>
>>Kees Paap
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 17:54:11 -0400
>From:    Don <[log in to unmask]>
>Subject: lost again
>
> as lot of you know i am 74/30 i try to do what is right a darin hawkins
>post has me mixt up. i don't wgen to email,put on post or to reply to one
>or all so when i do wrong just let me know as of now i am having lot of
>trouble in under stand lot of things even vivian is worred about me. at
>times i can take folks complaing other times no or just don't under stand
>so i again i hope i did not offend any one              i.y.q.
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 19:15:16 EDT
>From:    Janet Paterson <[log in to unmask]>
>Subject: Re: lost again
>
>hi cyber-dad-don
>
>>as a lot of you know, i am 74/30
>>i try to do what is right,
>
>and as long as you try, that's all that counts
>whether you are 'successful' or not
>
>>but darwin hawkins' post has me mixed up.
>
>one of the blessings of this list
>is that we are all 'cyber-family' members with equal voices
>
>so if darwin feels like complaining about anything, he is free to
>and if other list-members feel like complaining about darwin, they are free
to
>
>we are all entitled to our own opinions
>and we are all free to express them
>
>>i don't wgen to email, put on post or to reply to one or all
>>so when i do wrong, just let me know.
>
>you have done nothing 'wrong'
>and i am sure that virtually all the other list members
>would agree with me
>
>>as of now, i am having a lot of trouble understanding a lot of things;
>>even vivian is worried about me.
>>at times, i can take folks complaining;
>>other times, no,  or I just don't understand.
>
>pd tends to heighten our emotional reactions to everything
>but there is nothing 'wrong' with that...
>
>>so again, i hope i did not offend any one
>
>...and there's absolutely no need
>to apologise for anything
>
>>i.y.q.
>
>I.Y.Q.2!
>
>your adopted cyber-daughter
>
>sis
>
>janet paterson aka calendar control supervisor
>51/10 - sinemet/selegiline/prozac - [log in to unmask]
>quotations: http://newww.com/cgi-bin/do_cal?c:newvoice
>pwp event calendar: http://newww.com/cgi-bin/do_cal?c:pwpc
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 19:13:47 -0500
>From:    Nita Andres <[log in to unmask]>
>Subject: e mail
>
>Don, you never offend anyone-don't worry. Everyone loves to hear from
>you.
>Nita Andres
>
>------------------------------
>
>Date:    Tue, 2 Jun 1998 00:42:10 UT
>From:    Barbara Mallut <[log in to unmask]>
>Subject: Re: Washington full, any suggestions?
>
>Ervin...
>
>Heck... I'm gonna tell Bill since his gang is taking so
>darn long to get the Parkinson's research money
>into the system at the NIH, that we've decided to
>charge 'em interest on it.  At the rate it's going, THAT'LL
>mean there'll be multi-millions MORE available for
>PD research when the funds are FINALLY released.
>
>*@^!((*&& politicians!
>
>Barb Mallut
>[log in to unmask]
>
>
>----------
>From:   Parkinson's Information Exchange on behalf of ERVIN J MCCARTHY
>Sent:   Monday, June 01, 1998 5:37 PM
>To:     Multiple recipients of list PARKINSN
>Subject:        Re: Washington full, any suggestions?
>
>Barb, be sure to advise them to have $100,000.00 stuffed in their pockets.
>
>Ervin
>
>-----Original Message-----
>From: Barbara Mallut <[log in to unmask]>
>To: Multiple recipients of list PARKINSN <[log in to unmask]>
>Date: Monday, June 01, 1998 10:24 AM
>Subject: Re: Washington full, any suggestions?
>
>
>>Kees....
>>
>>Ya might  give Bill 'n Hilary a call and see if the Lincoln Bedroom's
>>available a the White House.... <smile>
>>
>>Barb Mallut
>>[log in to unmask]
>>
>>----------
>>From:   Parkinson's Information Exchange on behalf of kees paap
>>Sent:   Monday, June 01, 1998 7:07 AM
>>To:     Multiple recipients of list PARKINSN
>>Subject:        Washington full, any suggestions?
>>
>>Hi listfriends,
>>
>>many of you I hope to meet soon, at the PAN forum in Washington. I will
>>represent the Waco supportgroup here in the heart of Texas. I have one
>>problem/question. Hotel Washington appears to be full in that period. Any
>>suggestions for a neighbouring hotel?
>>
>>Kees Paap
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 20:51:37 -0400
>From:    "p. l. maddux" <[log in to unmask]>
>Subject: Non PD fact and comment
>
>Fact # 1--Per Forbes magazine , 40% of all internet traffic either
>originates or terminates in the state of Calif.
>
>Fact # 2-- Barb Mallut lives in Calif!
>
>Comment--I wonder if there is any relationship between these two
>facts,LOL or HiHi as we used to say on ham radio.
>I emphasize, just kidding Barb.
>
>Lanier Maddux
>
>------------------------------
>
>Date:    Tue, 2 Jun 1998 03:35:39 +0200
>From:    Hans van der Genugten <[log in to unmask]>
>Subject: Re: breathing problems and bloodpressure
>
>Sun, 31 May 1998 18:53:14 EDT "M.Dawn Legan" <[log in to unmask]>
>wrote about breathing problems:
>
>>It seems that as time approaches for next PD meds, I become aware of my
>>breathing.  I wouldn't call it "shortness of breath"; it's more a thing of
>>becoming aware of breathing deliberately -- pulling air in & pushing it
>out.
>>What is this?
>>M.Dawn 55/6
>
>AND on another occasion M.Dawn Legan wrote:
>
>> I'm wondering if some you have had fluctuating blood pressure due
>> to the PD or its meds. My doctor is speculating that some of my low
>> energy problem could be related to low blood pressure, and is
>> recommending salt tablets.  I can't find these, but am filling
>> capsules with table salt.  Can someone, perhaps our nutritionist
>> Katherine, tell me, in terms of fractions of a teaspoon, what the
>> recommended intake of salt per day is, and what would be a toxic
>> level?
>
>Hello M. Dawn,
>
>I would like to suggest, that BOTH problems (breathing and energy) are
>related to the low bloodpressure.
>
>Low bloodpressure can be caused by PD itself and/or by PD-meds or both.
>Also there is something called "static hypotension" (=if you suddenly stand
>up after having been laying down, or if you suddenly stand up straight
after
>having been bending over, with some people (not-PD related) this causes a
>sudden drop of the bloodpressure). Any physician can do a simple test to
>measure if someone is sensitive to "static hypotension". Low bloodpressure
>on it's own or both above mentioned reasons for a lower bloodpressure
>combined, could IMHO lead to the energyproblem. The energyproblem of course
>can also directly be caused by PD itself. (And: bloodpressure-problems are
>more frequent in the starting- or adjustingperiod of a new med.).
>
>The breathing: if the bloodpressure is low or suddenly drops, the transport
>of oxygen relatively isn't sufficient. This relative lack of oxygen sets
off
>an alarm, that says: more oxygen needed!!! So naturally you start deeper
>breathing to take in more oxygen!
>
>As for the possible solution:
>IMHO the extra salt-intake won't give you a permanent positive result.
>If your kidneys are oke they will just get rid of the surplus of salt above
>the daily needed uptake just as fast as you take it in! As to the suggested
>more or less drinking of water: if you need water, you'll get thirsty and
>drink; if you don't need water, you won't get thirsty and you don't have to
>drink!! As you suggested, you better don't take my word for it, but ask
>Kathrynne Holden or your own dietitian.
>Keep in mind that a change or adjustment of your meds might have a positive
>result; also keep in mind something besides PD might cause the problems:
>e.g. chronic bronchitis or an allergy.
>
>Consult a qualified physician before making any changes in your meds!!
>
>Hope this helps, Hans.    Hans van der Genugten <[log in to unmask]>
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 22:03:30 -0400
>From:    Sid Roberts <[log in to unmask]>
>Subject: Kava - herbal product
>
>Contraindicated!
>There has been much publicity lately for Kava, a newly popular herbal
>product that is being praised for its ability to relieve anxiety and
>insomnia.  The Wall Street Journal has called Kava the "Next Herbal Star."
>Tests have supported claims made for Kava.  Be warned,however.  Do not take
>Kava if you have PD for it may cause an increase in PD symptoms such as
tremors.
>
>
>
>
>
>     __________
>
>     Sid Roberts   68/3   <[log in to unmask] >     Youngstown, Ohio
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 22:03:32 EDT
>From:    Sue Whitmore <[log in to unmask]>
>Subject: Re: New member
>
>Hi Gladys,
>
>Welcome to the list
>Sue W.
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 22:05:34 EDT
>From:    Sue Whitmore <[log in to unmask]>
>Subject: Re: New Member
>
>Hi Danny,
>
>Welcome to the list.  You will find it to be most informing and lots of
>support.
>Sue W.
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 22:38:37 -0500
>From:    Phil Tompkins <[log in to unmask]>
>Subject: Re: Blood Pressure,Salt,PD
>
>Bent Willow wrote:
>
>> Sodium is a normal body electrolyte that is *decreased* by excessive
>> fluid intake.  Contrary to what you have written here, sodium helps
>> to *retain* fluid - hence the understanding  that too much salt
>> increases blood pressure by increasing fluid volume.
>
>Yes.  But I think the person who raised the original question was
>advised to take salt tablets without being told what quantity or any
>maximum.  I was referring to what can happen when you overdo it.
>Like when you drink sea water.
>
>Phil Tompkins
>Hoboken NJ
>60/9
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 22:38:37 -0500
>From:    Phil Tompkins <[log in to unmask]>
>Subject: Re: Breathing problems-new ?
>
>William Heitman wrote:
>
>> catastrophize???
>>
>> izzataword?
>
>Yes.  It's what a catastrophile does.  ;-)
>
>Seriously, though, it can be scary to feel the start of a new
>symptom, such as slight difficulty breathing.  And imagination
>inspired by anxiety can go to extremes (picturing oneself in a
>respirator).  It's the opposite of denial, which is what I do.
>(What, me shaking?  Doesn't everybody?)  Maybe "don't catastrophize"
>is too easy for me to say.
>
>Phil Tompkins
>Hoboken NJ
>60/9
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 23:09:43 EDT
>From:    Nancy E Yarrison <[log in to unmask]>
>Subject: Re: Breathing problems-new ?
>
>Hi Phil. I'm a relatively silent newer member( my mom has just been
>diagnosed) anyway I like the word catastrophize, it made perfect sense to
>me.
>Keep up the good work I am learning so much from this list and am trying
>to get my Mom on the computer and on this list.
>  I get afraid she'll just accept the pd symptoms as they come and fade
>fast, I hope she'll realize that she needs to fight back and can fight
>back.
>take care
>nancy y
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 23:14:30 -0400
>From:    Judith Richards <[log in to unmask]>
>Subject: Re: lost again
>
>Don wrote:
>>  as lot of you know i am 74/30 i try to do what is right a darwin hawkins
post has me mixed up.
>
>Don,
>        Post whatever you want, whenever you want, and however you want,
and
>don't worry about it. You are a treasure and an inspiration, and I'm
>ALWAYS glad to see something from you.
>
>Judith
>--
>Judith Richards, London, Ontario, Canada
>[log in to unmask]
>
>------------------------------
>
>Date:    Mon, 1 Jun 1998 23:31:26 EDT
>From:    John Dempsey <[log in to unmask]>
>Subject: Re: Need Source of Leather Sole Slippers
>
>I am presently wearing a pair of leather sole slippers purchased at
Brooslin
>Shoe store in Springfield Ma. They are L.B. Evans slippers and have been
>available for years at Brooslin's at 455 Sumner Ave., Spfld. 413-732-0465.
If
>you are unable to
>acquire a pair in Toronto, I would suggest that you give the Brooslin shop
a
>call as they have been handling  Evans slippers and can probably help
locate a
>store in Toronto.   DEMPSEYJJD@ AOL.COM " JACK  DEMPSEY"
>
>------------------------------
>
>End of PARKINSN Digest - 1 Jun 1998
>***********************************
>