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From Mike Claeys, Parkinsons Action Network
>Action Alert
>August 11, 1998
>
>IT'S TIME TO USE THE MEDIA TO GET THE PARKINSON'S MESSAGE OUT!>
>
>     Although direct meetings with your Member are the most effective tool,
the
>media is also an excellent way to deliver a message.  With Members of
Congress
>out of Washington and back in their districts and states, August is a key
time
>to deliver the message that Parkinson's disease needs increased research
funding
>from home.
>
>     In working with the media it is best to use your personal story and
anecdotes
>to make the message compelling.  Explain how Parkinson's disease has affected
your
>life, and the promise that developments in Parkinson's research, as a result
of
>increased funding, would hold for you and your family.  When writing pieces
to
>submit to the media, assume the reader knows nothing about Parkinson's and
keep
>your message simple and to the point, while also being persuasive.
>
>     Below is a checklist of suggested activities to work with the media to
get
>out the message that Parkinson's disease needs increased federal research
funding
>for FY 99.
>
>
>Send a Letter to the Editor of Your Local Newspaper
>
>     Draft a letter to the editor which explains the need for increased
Parkinson's
>research by incorporating your personal story into the letter.  (Contact the
Parkinson*s
>Action Network for a  sample)
>
>*The letter should be no longer than a page -- four or five short paragraphs
are
>sufficient.
>
>*Address the letter to "Letters-to-the-Editor" at the address of the
newspaper
>or magazine.
>
>*In addition to sending the letter by mail, fax it if you have access to a
fax
>machine.
>
>*Follow-up with a telephone call to the newspaper or magazine to ensure that
the
>letter was received.
>
>
>Send an Op/ed Piece to Your Local Newspaper
>
>     Draft an op/ed which illustrates, through your own personal story, the
ways
>that living with Parkinson's disease has affected you and your family, and
the
>need for increased research.  Be sure to incorporate the promising status of
current
>research, that with increased funding is very close to finding critical
answers
>about the disease.  Include your name, local organization and telephone
number.
> (Contact the Parkinson*s Action Network for a sample)
>
>*The op/ed piece should be no longer than 500 to 700 words
>
>*The op/ed piece should emphasize your experience, while also making it
interesting
>to the general public.
>
>*You can submit the op/ed to more than one paper, but once you know one paper
is
>going to use it, you must contact the other papers and withdraw the op/ed
from
>them.
>
>*Send the op/ed with a brief cover letter to the Op/Ed page Editor (you can
call
>the newspaper to get the person's name and fax number) explaining the topic
addressed
>in the Op/Ed.
>
>*In addition to sending the Op/Ed by mail, fax it if you have access to a fax
machine.
>
>*Follow-up with a telephone call to the newspaper to ensure that the Op/Ed
was
>received.
>
>
>Send an Edit Board Memo
>
>     If you would like to take additional action with the media beyond
submitting
>a letter to the editor and an Op/Ed, consider sending an edit board memo.
Edit
>board memos are an effective way to ask editorial page writers and editors to
devote
>space to a particular issue.  Contact the Network for more information and a
sample
>edit board memo.
>
>
>Keep in Touch!
>
>     Be sure to let us know the outcome of your media efforts.  Please send
copies
>of anything that appears in print.  Call: 800-850-4726, email: [log in to unmask],
or
>fax: 707- 544-2363.
>
Parkinsons Action Network, [log in to unmask]



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Action Alert
August 11, 1998


IT'S TIME TO USE THE MEDIA TO GET THE PARKINSON'S MESSAGE OUT!

     Although direct meetings with your Member are the most effective too=
l,=0Athe media is also an excellent way to deliver a message.  With Membe=
rs of=0ACongress out of Washington and back in their districts and states=
, August is a=0Akey time to deliver the message that Parkinson's disease =
needs increased=0Aresearch funding from home.

     In working with the media it is best to use your personal story and=
=0Aanecdotes to make the message compelling.  Explain how Parkinson's dis=
ease has=0Aaffected your life, and the promise that developments in Parki=
nson's research,=0Aas a result of increased funding, would hold for you a=
nd your family.  When=0Awriting pieces to submit to the media, assume the=
 reader knows nothing about=0AParkinson's and keep your message simple an=
d to the point, while also being=0Apersuasive.

     Below is a checklist of suggested activities to work with the media =
to=0Aget out the message that Parkinson's disease needs increased federal=
 research=0Afunding for FY 99.


Send a Letter to the Editor of Your Local Newspaper

     Draft a letter to the editor which explains the need for increased=
=0AParkinson's research by incorporating your personal story into the let=
ter.=0A(Contact the Parkinson*s Action Network for a  sample)

*The letter should be no longer than a page -- four or five short paragra=
phs=0Aare sufficient.

*Address the letter to "Letters-to-the-Editor" at the address of the news=
paper=0Aor magazine.

*In addition to sending the letter by mail, fax it if you have access to =
a fax=0Amachine.

*Follow-up with a telephone call to the newspaper or magazine to ensure t=
hat=0Athe letter was received.


Send an Op/ed Piece to Your Local Newspaper

     Draft an op/ed which illustrates, through your own personal story, t=
he=0Aways that living with Parkinson's disease has affected you and your =
family,=0Aand the need for increased research.  Be sure to incorporate th=
e promising=0Astatus of current research, that with increased funding is =
very close to=0Afinding critical answers about the disease.  Include your=
 name, local=0Aorganization and telephone number.  (Contact the Parkinson=
*s Action Network=0Afor a sample)

*The op/ed piece should be no longer than 500 to 700 words

*The op/ed piece should emphasize your experience, while also making it=
=0Ainteresting to the general public.

*You can submit the op/ed to more than one paper, but once you know one p=
aper=0Ais going to use it, you must contact the other papers and withdraw=
 the op/ed=0Afrom them.

*Send the op/ed with a brief cover letter to the Op/Ed page Editor (you c=
an=0Acall the newspaper to get the person's name and fax number) explaini=
ng the=0Atopic addressed in the Op/Ed.

*In addition to sending the Op/Ed by mail, fax it if you have access to a=
 fax=0Amachine.

*Follow-up with a telephone call to the newspaper to ensure that the Op/E=
d was=0Areceived.


Send an Edit Board Memo

     If you would like to take additional action with the media beyond=0A=
submitting a letter to the editor and an Op/Ed, consider sending an edit =
board=0Amemo.  Edit board memos are an effective way to ask editorial pag=
e writers and=0Aeditors to devote space to a particular issue.  Contact t=
he Network for more=0Ainformation and a sample edit board memo.


Keep in Touch!

     Be sure to let us know the outcome of your media efforts.  Please se=
nd=0Acopies of anything that appears in print.  Call: 800-850-4726, email=
:[log in to unmask], or fax: 707- 544-2363.


-----------------------------------
Parkinson*s Action Network
[log in to unmask]


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