-----Original Message-----
From: Automatic digest processor <[log in to unmask]>
To: Recipients of PARKINSN digests <[log in to unmask]>
Date: Thursday, August 13, 1998 11:14 PM
Subject: PARKINSN Digest - 13 Aug 1998


>There are 18 messages totalling 726 lines in this issue.
>
>Topics of the day:
>
>  1. NON PD! Re: You just gotta laugh!
>  2. NON PD Re: A little humor
>  3. Tasmar,Sinemet,and Sinemet CR Dosages Guidelines
>  4. Social Security Disability (4)
>  5. Vitamins (2)
>  6. Fw:      Controlled Protein Diet (3)
>  7. Confusion (2)
>  8. Reducing drugs and on/off
>  9. Revisited Confusion (2)
> 10. Revisited Confusion / gina / hilary / non-physical symptoms
>
>----------------------------------------------------------------------
>
>Date:    Thu, 13 Aug 1998 16:59:28 EDT
>From:    KEn Becker <[log in to unmask]>
>Subject: NON PD! Re: You just gotta laugh!
>
>Darwin, you should not make LIGHT of Edison's contribution to our lives.
Can
>you imagine having to watch TV or use a computer by candlelight?  Okay,
maybe
>that's no big deal, but can you imagine driving 75MPH in your car and
trying
>to keep candles lit, so you can see the road? ...........I didn't think
>so..........
>[log in to unmask]
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 17:02:56 EDT
>From:    KEn Becker <[log in to unmask]>
>Subject: NON PD Re: A little humor
>
>Just tell him NOT to take along a spy satellite, even if they are willing
to
>bump him up to the "first class" section......TRUST ME!
>[log in to unmask]
>
>------------------------------
>
>Date:    Fri, 14 Aug 1998 00:01:43 +0300
>From:    Gil Lieberman <[log in to unmask]>
>Subject: Tasmar,Sinemet,and Sinemet CR Dosages Guidelines
>
>Dear Bonnie,
>Thanks very much for your detailed 12 Aug 1998 response to my questions
>regarding guidelines.
>I did not initially bring these questions to Aliza's neurologist for the
>following reasons:
>I expected to get a more rapid and informative response by posing the
questions
>on this list than if I called or wrote to Aliza's Neurologist.Within
>hours,Ron Vetter
>sent us guidelines from Roche,Bob Cowan sent very useful info,then your
>excellent response,
>and Brian Collins' enlightening insights.Now we have information to ask him
>intelligent
>questions.There is an additional problem here for us,since Tasmar has not
>yet been
>approved for use here in Israel.Thus our primary care physician doesn't
want
>any part of
>it.Thus any recommended tests to check for contra-indications such as liver
>tests have to be
>handled through Aliza's neurologist who prescribed the Tasmar whereas
>normally tests are
>ordered through her readily-accessible primary care physician.
>
>Re my first question about taking Tasmar simultaneously with Sinemet
>CR,Aliza's neurologist
>did not give us guidelines at all when he first prescribed taking two pills
>to start and then
>going to three.Since she was taking Sinemet CR at 5 hour intervals,it
seemed
>logical to
>synchronize the Tasmar with the Sinemet and therefore take them together.At
>the second meeting,
>after taking the Tasmar for about four weeks,and noting that there was
>really no noticeable
>improvement except for apparently sleeping better,he suggested taking six
>pills per day.When I
>asked about taking it with the Sinemet CR 5 times a day ,he agreed without
>comment.After two
>days of doing this Aliza began to feel shaky after about three hours.We
>thought two things:
>1.The Tasmar is not making the levadopa last six hours.
>2.Perhaps,there was an overdosage.
>We did not associate Aliza feeling shaky with diskinesia which up till now
>she has not felt.
>Since yesterday morning,she is taking Tasmar with her 7:00AM Sinemet CR and
>then at 1:00PM
>and 7:00PM and felt better  in the afternoon which supports the overdose
>hypothesis.
>However,last night,she slept very poorly.
>
>Re my second question on how one knows to reduce Sinemet CR and/or Sinemet
>when taking Tasmar,
>Aliza does not have ON/OFF times per se.Her major symptoms are
>Bradykinesia(slowness) and poor
>balance all the time.Her Neurologist did not suggest any reductions.Based
on
>the Roche guidelines,
>she should not, since she is well below 600mg of effective levadopa per
day.
>
>Re my third question on when one knows the Tasmar dosage is too much or too
>little,it would be
>helpful to have a detailed list of what side-effects to look for.
>
>Re my fourth question of the best times to take three Tasmar pills,the
Roche
>guidelines
>clearly state a six hour interval with the first pill of the day with the
>Sinemet.
>What do you mean by "GENERAL" information?What can we expect the doctor to
>say?He scarcely knows
>Aliza and does not have any magic information up his sleeve.
>
>Re my fifth question re when to take six pills,the Roche guideline is to
>take two pills
>together at six hour intervals.This means in Aliza's case that she does not
>have the benefit
>of the Tasmar from 1AM to 7AM assuming its benefit lasts six hours.It is
not
>clear why this
>should be better than spreading the six pills over four hour intervals
>around the clock.
>
>Re my sixth question,as to how long a Tasmar pill lasts,the conclusion that
>it remains in the
>system 4-6 hours based on a half-life of 2-3 hours assumes a linear decay
in
>the system.
>It is interesting that if the decay was exponential,then if the half-life
is
>3 hours,then after
>six hours there would still be a quarter left rather than nothing left as
>predicted by the linear
>assumption.After 12 hours,there would still be one sixteenth left.So the
>linear decay is very
>significant in avoiding cumulative effects due to successive pills.
>
>Re my seventh question,as to what PD symptoms are most commonly helped,it
>would be interesting to
>know which specific symptoms are helped by enhancing Sinemet and which are
>not.Aliza's Neurologist
>told us that her slowness and loss of balance are not promising symptoms to
>be helped.So maybe her
>use of Tasmar is a wasted expensive effort.
>
>Re my eighth question,as to common over-dosage effects,it would be helpful
>to have a more
>comprehensive list of over-dosage effects than those you mentioned.What
lead
>us to think
>Aliza was over-dosed with five Tasmar pills was her feeling shaky/jumpy.Is
>this a reasonable
>effect?Such a feeling could be due to  a variety of drug interactions,for
>example.In Aliza's case,
>she is taking 11 different drugs.
>
>Bonnie,your responses to my questions are very helpful.
>We will try to develop an "open-line" with Aliza's new neurologist as you
>suggested.
>I was already rebuffed once by him for taking up too much of his time.
>I sent him faxes which his office didn't give him.
>But he did promise to provide answers to written questions.
>Because of the problem of accessibility,we are considering switching to
>another PD specialist
>who has a nurse and social worker available for patient support.
>
>Thanks again.
>Gil Lieberman,CG for Aliza
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 15:25:07 -0600
>From:    "Tebay, Wendy M" <[log in to unmask]>
>Subject: Re: Social Security Disability
>
>How about this idea...  I can't think of the name of the organization, but
>there's a national group, who's members consist of former business leaders
>who are now retired, and who wish to still keep busy, who either volunteer
>their time and expertise, or maybe do it for a small fee, to new start-up
>and small businesses.   Why don't some of the former lawyers, government
>employees, or whoever else might have the right experience and background
>(and motivation and ability), and who are maybe now PWPer's themselves, and
>perhaps subscribe to this list, get together and brainstorm on how a
similar
>organization of retired volunteers, familiar with the social security and
>disability systems, could maybe be formed.  Or perhaps, this sort of thing
>might be a job for some of our national PD organizations to initiate and
>coordinate.  Just a thought.
>
>Personally, I'm also looking at various business and investment ideas,
which
>I intend to make use of, so that down  the line, when it's needed and I am
>officially "disabled", I can have enough income from these other sources
>which I've established, so the issue of whether or not I can get SSDI will
>be a moot point.  I plan to have things set up so that if I receive these
>benefits, they will merely supplement what I've already got coming in, I
>won't be solely dependent on them for my survival.  Basically, I'm looking
>toward being financially independent, and having set up sources of passive
>income that will take care of all my needs and more.  I'm only 34 and I
>refuse to live on a fixed, piddly income for the next 30 or more years, and
>on top of that, have to put up with someone giving me bull because I dared
>to try and claim what should be rightfully mine.  I want to have enough
>money to live on and more, so that I can devote myself, with whatever
>functional time I may have left in me, to making a difference in the world
>on issues which concern me, rather than having my life sucked out of me
>because of having to deal with this sort of pointless b.s.   I'm not the
>type who will ever succumb to playing the victim role, I'm too stubborn for
>that, and I don't think any of us should have to either.  We are NOT
>victims, but we ARE a force to be reckoned with!
>
>Wendy Tebay
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 17:35:11 -0400
>From:    Terry Hopping <[log in to unmask]>
>Subject: Vitamins
>
>I suppose that this subject has been discussed here numerous times but I
>want to know if anyone has had any experience good or bad with vitamins
>mitigating the symptoms of PD? There is a lot of litrature out there both
>pro and con on the subject and it is conviencing from both sides. I have
>never been one to take food suplements but now that I am limiting my
>comsumption of protein to enhance the absorbsion of sinemet I was wondering
>if there was any benifit both from a neutrician and a PD standpoint ?
>
>Terry
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 15:39:46 -0600
>From:    "Tebay, Wendy M" <[log in to unmask]>
>Subject: Social Security Disability
>
>Speaking of organizing a list of volunteers, I think I do recall that
around
>Philadelphia, there was a group of lawyers, who volunteered their time
>toward helping people with their EEOC cases (e.g., someone unfairly treated
>on the job, or even denied a job, due to disability).  Maybe there's a way
>to use the Americans with Disabilities Act to perhaps bring suits against
>the government itself in certain cases, such as when benefits are
wrongfully
>denied.  (Might help also get some good lawyers involved if they thought
>tthere was some money to be made on a lawsuit).  Just another thought.
>
>Wendy
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 16:45:07 -0500
>From:    james jones <[log in to unmask]>
>Subject: Fw:      Controlled Protein Diet
>
>This is a multi-part message in MIME format.
>
>------=_NextPart_000_0065_01BDC6D9.BA649A00
>Content-Type: text/plain;
>        charset="iso-8859-1"
>Content-Transfer-Encoding: quoted-printable
>
>
>-----Original Message-----
>From: james jones <[log in to unmask]>
>To: [log in to unmask] <[log in to unmask]>
>Date: Thursday, August 13, 1998 4:35 PM
>Subject: Controlled Protein Diet
>
>
>I've seen nothing in this forum about a controlled protein diet.  It was =
>originally thought that protein should be consumed before bedtime only =
>but that was changed to maintenance of a 7/1 carbo/protein ratio for all =
>meals.  The theory is that there is an amino acid contained in protein =
>that interferes with levadopa transmission across the blood brain =
>barrier.  My spouse, a PWP, tried it for several months before she =
>became very ill with other complications.  It seemed to make the Sinemet =
>effect more predictable.  There were still on-off periods but they were =
>more predictable.
>The diet is not hard to administer.  There is a company called Balance =
>Nutrition PO box 9327, Providence RI 02940 that distributes several =
>products of the proper ratio.  (I have no affiliation with that =
>company.)  Plain ole Dairy Queen soft ice cream is, coincidentally, a =
>7/1 ratio product also.  You will find that most normal diets are about =
>25% higher in protein than this ratio so you just need to read the =
>labels and, maybe add some veggies to what you normally eat.  For more =
>info including technical articles see www.balancenutrition.com.  I am =
>[log in to unmask]
>
>------=_NextPart_000_0065_01BDC6D9.BA649A00
>Content-Type: text/html;
>        charset="iso-8859-1"
>Content-Transfer-Encoding: quoted-printable
>
><!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN">
><HTML>
><HEAD>
>
><META content=3Dtext/html;charset=3Diso-8859-1 =
>http-equiv=3DContent-Type><!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 =
>HTML//EN">
><META content=3D'"MSHTML 4.71.1712.3"' name=3DGENERATOR>
></HEAD>
><BODY bgColor=3D#ffffff>
><DIV>&nbsp;</DIV>
><DIV><FONT face=3DArial size=3D2><B>-----Original =
>Message-----</B><BR><B>From:=20
></B>james jones &lt;<A=20
>href=3D"mailto:[log in to unmask]">[log in to unmask]</A>=
>&gt;<BR><B>To:=20
></B><A =
>href=3D"mailto:[log in to unmask]">[log in to unmask]</A>=20
>&lt;<A=20
>href=3D"mailto:[log in to unmask]">[log in to unmask]</A>&gt;=
><BR><B>Date:=20
></B>Thursday, August 13, 1998 4:35 PM<BR><B>Subject: </B>Controlled =
>Protein=20
>Diet<BR><BR></DIV></FONT>
><DIV><FONT color=3D#000000 size=3D2>I've seen nothing in this forum =
>about a=20
>controlled protein diet.&nbsp; It was originally thought that protein =
>should be=20
>consumed before bedtime only but that was changed to maintenance of a =
>7/1=20
>carbo/protein ratio for all meals.&nbsp; The theory is that there is an =
>amino=20
>acid contained in protein that interferes with levadopa transmission =
>across the=20
>blood brain barrier.&nbsp; My spouse, a PWP, tried it for several months =
>before=20
>she became very ill with other complications.&nbsp; It seemed to make =
>the=20
>Sinemet effect more predictable.&nbsp; There were still on-off periods =
>but they=20
>were more predictable.</FONT></DIV>
><DIV><FONT color=3D#000000 size=3D2>The diet is not hard to =
>administer.&nbsp; There=20
>is a company called Balance Nutrition PO box 9327, Providence RI 02940 =
>that=20
>distributes several products of the proper ratio.&nbsp; (I have no =
>affiliation=20
>with that company.)&nbsp; Plain ole Dairy Queen soft ice cream is,=20
>coincidentally, a 7/1 ratio product also.&nbsp; You will find that most =
>normal=20
>diets are about 25% higher in protein than this ratio so you just need =
>to read=20
>the labels and, maybe add some veggies to what you normally eat.&nbsp; =
>For more=20
>info including technical articles see <A=20
>href=3D"http://www.balancenutrition.com">www.balancenutrition.com.</A>&nb=
>sp; I am=20
>[log in to unmask]</FONT></DIV></BODY></HTML>
>
>------=_NextPart_000_0065_01BDC6D9.BA649A00--
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 18:10:01 -0400
>From:    Terry Hopping <[log in to unmask]>
>Subject: Re: Fw:      Controlled Protein Diet
>
>Thanks James for your answer ... I do feel that a controled protein diet
>has helped me with my sinemet absorbtion . I am going to look at the
>website you suggested this evening at home.
>
>Terry
>
>
>
>
>
>
>At 04:45 PM 8/13/98 -0500, you wrote:
>>
>>-----Original Message-----
>>From: james jones <[log in to unmask]>
>>To: [log in to unmask] <[log in to unmask]>
>>Date: Thursday, August 13, 1998 4:35 PM
>>Subject: Controlled Protein Diet
>>
>>
>>I've seen nothing in this forum about a controlled protein diet.  It was
>originally thought that protein should be consumed before bedtime only but
>that was changed to maintenance of a 7/1 carbo/protein ratio for all meals.
> The theory is that there is an amino acid contained in protein that
>interferes with levadopa transmission across the blood brain barrier.  My
>spouse, a PWP, tried it for several months before she became very ill with
>other complications.  It seemed to make the Sinemet effect more
>predictable.  There were still on-off periods but they were more
predictable.
>>The diet is not hard to administer.  There is a company called Balance
>Nutrition PO box 9327, Providence RI 02940 that distributes several
>products of the proper ratio.  (I have no affiliation with that company.)
>Plain ole Dairy Queen soft ice cream is, coincidentally, a 7/1 ratio
>product also.  You will find that most normal diets are about 25% higher in
>protein than this ratio so you just need to read the labels and, maybe add
>some veggies to what you normally eat.  For more info including technical
>articles see www.balancenutrition.com.  I am [log in to unmask]
>>
>>Attachment Converted: "c:\eudora\attach\FwContro.htm"
>>
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 16:21:44 -0600
>From:    "Kathrynne Holden, MS,RD" <[log in to unmask]>
>Subject: Re: Vitamins
>
>Dear Terry,
>There's no conclusive proof that any particular vitamin or mineral will
>mitigate the symptoms of PD, unfortunately. Vitamin E has been studied in
that
>regard, but a large, well-designed study showed no slowing of PD
progression
>with use of vitamin E supplements. However, some physicians disagree with
>current research, and continue to prescribe E for their patients.
>
>Of greater concern, from my point of view as a registered dietitian, is the
>fact that PWP often change the kind and/or amount of foods they eat, such
that
>vital nutrients are missing from their diet for long periods of time. This
can
>cause frank deficiencies; and some of these deficiencies' symptoms are very
>similar to some of the symptoms of PD. I suspect that a number of PWP have
an
>underlying nutrient deficiency that goes undetected, because few are
referred
>to registered dietitians. I routinely ask my clients for a 3-day food
record,
>as well as other information; and 9 times out of ten I find serious dietary
>lack.
>
>Most of my clients would benefit from a multi-vitamin/mineral daily, along
with
>a calcium supplement. Those over age 50 who are not anemic should use a
>supplement that contains no iron, or only a very small amount (One-A-Day
>50-Plus, Centrum Silver) as iron may play a role in heart disease in later
>years.
>
>Best regards,
>Kathrynne
>
>Terry Hopping wrote:
>
>> I suppose that this subject has been discussed here numerous times but I
>> want to know if anyone has had any experience good or bad with vitamins
>> mitigating the symptoms of PD? There is a lot of litrature out there both
>> pro and con on the subject and it is conviencing from both sides. I have
>> never been one to take food suplements but now that I am limiting my
>> comsumption of protein to enhance the absorbsion of sinemet I was
wondering
>> if there was any benifit both from a neutrician and a PD standpoint ?
>>
>> Terry
>
>
>
>--
>Kathrynne Holden, MS, RD
>"Nutrition you can live with!"
>Medical nutrition therapy
>http://www.nutritionucanlivewith.com/
>Tel: 970-493-6532 // Fax: 970-493-6538
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 18:45:22 -0400
>From:    Debbie White <[log in to unmask]>
>Subject: Confusion
>
>My mother Joyce (68/1 year) told me tonight that another thing that's
>happening to her is that she can't seem to get anything done. She will
>start something and then all she seems to be able to do is push papers
>around. I think this is a form of confusion about what to do.
>
>Does anyone else have this problem of not being able to get things done
>because it's not always clear HOW to? Thanks
>
>Debbie White
>[log in to unmask]
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 18:43:32 -0400
>From:    Debbie White <[log in to unmask]>
>Subject: Reducing drugs and on/off
>
>I wrote last night because my mother Joyce (68/1 year) is having a tough
>time right now and her doctor suggested that she may have some other
>Parkinsonian disease. After receiving reading some informative pieces
>suggested by some on this list, it seems to me more and more that she has
>PD.
>
>She is not, however, having great success with her drugs. Her doctor is
>reducing her Requip so that she is off it completely within a week (so that
>she can start something else). She started today reducing her dosage from
>21 mg./day (7 mg 3x/day) to 5mg in the morning, 5 mg in the afternoon, and
>2 mg. at night. She hasn't taken the last dosage because she's having a
>terrible day with internal tremors and wants to talk to the doctor (MDS)
>about taking 5 mg. tonight rather than 2 mg.
>
>First, this seems to indicate that the drugs ARE doing her some good.
>
>What I think is confusing the issue is that my mother doesn't (never has)
>have clear on/off periods. However, I don't think one can conclude from
>this that the drugs aren't working. So my next question is: Isn't it
>possible to say the drugs are working without feeling them kick in? Any
>thoughts?
>Debbie White
>[log in to unmask]
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 18:50:18 EDT
>From:    Delda White <[log in to unmask]>
>Subject: Re: Social Security Disability
>
>In a message dated 98-08-13 18:46:01 EDT, you write:
>
>>a list of volunteers,
>
>Wendy -- I think the organization of retirees you're thinking of (in your
>earlier post) is SCORE -- Service Corps of Retired Executives.  Good luck
with
>your plans -- I wish you all the success in the world.  Delda White CG Bob
>66/1
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 20:38:35 -0400
>From:    Jed Blue <[log in to unmask]>
>Subject: Re: Confusion
>
>Yes, Yes, Yes!
>This is a problem that I have  had lately that is getting rapidly
>increasingly worse.   Lately just sorting out and paying the monthly
>bills ( about 8 all together) is an all night sit up job...
>
>Hilary Blue (49/16)
>
>-------------------------------------------------------------------
>Debbie White wrote:
>>
>> My mother Joyce (68/1 year) told me tonight that another thing that's
>> happening to her is that she can't seem to get anything done. She will
>> start something and then all she seems to be able to do is push papers
>> around. I think this is a form of confusion about what to do.
>>
>> Does anyone else have this problem of not being able to get things done
>> because it's not always clear HOW to? Thanks
>>
>> Debbie White
>> [log in to unmask]
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 20:47:29 -0400
>From:    Jed Blue <[log in to unmask]>
>Subject: Re: Fw:      Controlled Protein Diet
>
>So is plain old canned sweet corn....
>Hilary Blue
>
>P.S. I try to stick to this diet and it seems to work for me - It is
>very obvious when I eat too much protein.
>
>WHich reminds me - what about aspartame (Nutrasweet). DOes anyone know
>how that affects sinemet absorption?
>
>----------------------------------------------------------------------
>> james jones wrote:
>>
>>
>> -----Original Message-----
>> From: james jones <[log in to unmask]>
>> To: [log in to unmask] <[log in to unmask]>
>> Date: Thursday, August 13, 1998 4:35 PM
>> Subject: Controlled Protein Diet
>>
>  Plain ole Dairy Queen soft ice cream is, coincidentally, a
>> 7/1 ratio product also.
>> I am [log in to unmask]
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 21:09:27 EDT
>From:    "Gina Cass." <[log in to unmask]>
>Subject: Re: Revisited Confusion
>
>Hi Hilary:
>I have the confusion thing also.  Its like I get so overwhelmed and can't
keep
>things straight.  I try writing lists of what to do but I get lost quickly.
>My husband does understand about these things.  I'm not sure I always do.
>
>I have been shaking very bad since yesterday.  My mind took a trip and
feels
>empty.  I feel that I am becoming a burden to friends and family.  I seem
to
>spend more alone time, and try to ask for help.  I went to a Big Band
concert
>today.  I had trouble going down the ramp. People on all sides, I started
to
>panic as all of the people pushed me.  Well, stress took over and I was a
>moving mess.  Sat for about an 1 1/2 and when it came time to get up, I
could
>babely do that.  I should have stayed home.
>
>I do have an appointment with a replacement Doctor in  Chicago .  The
>appointment will be coming up very soon.
>I just have a boat loud of feelings rolling around.  I don't mean to dump
on
>you Hilary.  You just seem to have some of it together.  I know I losing
some
>of it.  Becoming more Paranoid, more hallucinations, more like I don't fit
>again.  I don't know if it is the Parkinson's or not.
>Oh well
>Thanks for listening.
>Gina
>TTFN
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 21:25:46 -0400
>From:    Camilla Flintermann <[log in to unmask]>
>Subject: Re: Revisited Confusion
>
>Gina-- I have to wonder if the paranoia and hallucinations you mention are
>new side effects, or just getting worse? As you know, both those are
>usually due to
>medication--perhaps too much--when you see the new doc be sure to tell him
>about that part of it.  Peter had a terrible paranoid episode last summer
>that put him in hospital and in need of home health care for 6 weeks after
>he got home--it was because his neuro started him on the then-new Mirapex,
>and didn't cut back on his Sinemet, and he got an overload. Pretty scary!
>We got off Mirapex in a hurry, and he's done OK on Requip--but last week
>began to have hallucinations (very mild) again, and it seems to have been
>due to a new drug,Detrol, for overactive bladder problems. We've stopped it
>now, and he's better.  So Gina, watch the meds carefully--I don't know what
>you take, but  they can cause problems as well as cure them!
>
>SNIPPED
>
>>I do have an appointment with a replacement Doctor in  Chicago .  The
>>appointment will be coming up very soon.
>>I just have a boat loud of feelings rolling around.  I don't mean to dump
on
>>you Hilary.  You just seem to have some of it together.  I know I losing
some
>>of it.  Becoming more Paranoid, more hallucinations, more like I don't fit
>>again.  I don't know if it is the Parkinson's or not.
>>Oh well
>>Thanks for listening.
>>Gina
>>TTFN
>
>
>
>
>
>        for YOU from Camilla
>        <[log in to unmask]>
>
>        http://www.newcountry.nu/pd/members/camilla/one.htm
>
>                               \\|//
>        |                      (o o)
>        |------------------oOO--(_)--OOo----------------------
>        When you get to the end of your rope, tie a knot,
>                Hang on, and swing!
>        ----------------------------Oooo---------------------
>                           oooO    (   )
>                           (  )     ) /
>                            \ (    (_/
>                            \_)
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 22:05:52 EDT
>From:    KEn Becker <[log in to unmask]>
>Subject: Re: Social Security Disability
>
>Good for you, Wendy, and your "CAN DO" attitude.  You are a good example
for
>all of us.  Hopefully you are over preparing which is a good idea in times
>like these.
>The organization you referred to is "SCORE" The CORE stands for "Corps Of
>Retired Executives" I don't remember the what the "S" represents but
someone
>will, I am sure.  I also support your idea of the devotional prayers on the
>16th.  As my son, Andrew says "There is no such thing as an excessive
amount
>of prayer" Who can argue with that logic?
>[log in to unmask]
>
>------------------------------
>
>Date:    Thu, 13 Aug 1998 23:03:06 EDT
>From:    Janet Paterson <[log in to unmask]>
>Subject: Re: Revisited Confusion / gina / hilary / non-physical symptoms
>
>hi all
>
>gina wrote:
>>I have the confusion thing also.  Its like I get so
>>overwhelmed and can't keep things straight.  I try
>>writing lists of what to do but I get lost quickly. My
>>husband does understand about these things.  I'm
>>not sure I always do.
>>I have been shaking very bad since yesterday.  My
>>mind took a trip and feels empty.  I feel that I am becoming
>>a burden to friends and family.  I seem to spend more alone
>>time, and try to ask for help.  I went to a Big Band concert
>>today.  I had trouble going down the ramp. People on all
>>sides, I started to panic as all of the people pushed me.
>>Well, stress took over and I was a moving mess.  Sat
>>for about an 1 1/2 and when it came time to get up, I
>>could babely do that.  I should have stayed home.
>> I do have an appointment with a replacement Doctor in
>>Chicago .  The appointment will be coming up very soon.
>>I just have a boat loud of feelings rolling around.  I don't
>>mean to dump on you Hilary.  You just seem to have
>>some of it together.  I know I losing some of it.  Becoming
>>more Paranoid, more hallucinations, more like I don't fit
>>again.  I don't know if it is the Parkinson's or not.
>> Oh well Thanks for listening. Gina TTFN
>
>the fact that both you and hilary are aware of these feelings
>of confusion is a great plus, in my humble opinion
>
>all of the feelings and symptoms you describe
>can be related to pd meds and their interactions
>with each other and their interactions with other meds
>
>the psychological, emotional, and cognitive effects of pd and its meds
>need to be dealt with in the same objective and compassionate way
>[i hope!]
>that our physical symptoms are addressed
>
>any emotional stress can exacerbate our pd symptoms
>and thus contribute to a downward spiral of anxiety
>
>gina, it sounds to me like you started feeling a bit worse
>about things in the past couple of days
>
>if so, can you or your husband relate this to any recent change
>in your meds routine, or your sleeping habits, or your diet,
>or.... some other change in your day to day life?
>
>i'm glad to hear that you will be seeing a new doctor soon
>a day by day record of meds and activities and feelings
>could be very helpful for the new doc as well as you
>
>maybe it's something you and your husband
>could tackle together in the days leading up to your appointment?
>
>try to remember that those feelings of confusion and not belonging
>are bound to be med related and indications of adjustments
>that probably need to be made
>
>you are not alone, gina and hilary
>if there is any place that you belong
>[along with those you both care about]
>one is here with me and the rest of our cyber family
>no matter what
>'there, but for grace .."
>
>
>your cyber-sis
>
>janet
>
>a new voice: http://www.newcountry.nu/pd/members/janet/index.htm
>51/10 - almonte/ontario/canada - [log in to unmask]
>janet paterson
>
>------------------------------
>
>End of PARKINSN Digest - 13 Aug 1998
>************************************
>