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		LISTSERV Archives
		PARKINSN Home
		PARKINSN September 1998, Week 5
Subject:
A call to act!
From:
"Stephanie M. Dorsch" <[log in to unmask]>
Reply-To:
Parkinson's Information Exchange <[log in to unmask]>
Date:
Tue, 29 Sep 1998 08:34:32 -0700
Content-Type:
text/plain
Parts/Attachments:
text/plain (238 lines)
This is a multi-part message in MIME format.

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Parkinson's Action Message:                                         =
September 29, 1998=20
=20
The people of North Carolina need to contact their representatives in =
Washington DC, and especially Senator Faircloth, who is on the =
Appropriations committee. ( people with Parkinson's disease, their care =
takers and others who have an interest in Parkinson's.)
=20

WHY ?

Because in June, while attending the fifth Annual Public Policy Form in =
DC.  I took a large package of petitions signed by North Carolinians in =
support of passage of the appropriations part of the Udahl Parkinson's =
Research Act. A package was given to Senator Faircloth of all the =
petitions. A second package of duplicate petitions were divided and =
given to each district representatives.

We need to be diligent, to make sure, as the committee and the congress =
broker things that passage will happen. The passage should include words =
to the effect that these funds will go direct, the full $100 million to =
direct Parkinson's Research.

We need to emphasize this because  through a study, it was found the NIH =
was not fully funding Parkinson's Research. The researchers reviewed the =
actual grants the NIH counted as "Parkinson's" and found the NIH is =
padding the total with $67 million in grants not focused to Parkinson's. =
This means only about $40 million will be spent on Parkinson's -focused =
research in1999.

Congress MUST direct the NATIONAL INSTITUTE OF HEALTH to fully fund the =
Udahl Act.

While in DC, at the forum, three speakers related information about the =
research going on. Last year, the thinking was a cure in 5 to 10 years. =
This year the statement was made a cure in 2 to 4 years, all because of =
the on going research. There are three new drugs on the market this =
year.

Research is the engine that is going to deliver the cure, and it takes =
money to fuel the engine. To ensure that at least $100 million in =
Parkinson's -focused research is included in the 1999 Labor-HHS =
Appropriations Bill. Please call and or write to your representative and =
especially, to Senator Faircloth, who is on the Appropriations =
Committee.
=20
Enclosed is the AARP toll free number 1-800-361-5222 to reach the =
legislative hotline. Mailing address: United States Senate, Washington =
DC, 20510
                              United States House of Representatives, =
Washington, DC 20510
or your local reps. office.
=20
While in DC, I met with every NC congressional representative or their =
health aide, dropping off a packet of the latest information about =
Parkinson's Research. I related that I was from North Carolina and that =
I was at the forum on behalf of the people with Parkinson's who could =
not be there.
=20
I ask your assistance because we will all benefit. There are 60,000 =
people a year who are diagnosed with Parkinson's Disease. If each spends =
an estimated $3000.dollars a year on medicine, just figure out the cost. =
Then add the people who already have  Parkinson's, the sum is quite =
large!
=20
The information I have printed in this message comes from the =
Parkinson's Action Network and the National Parkinson's Foundation
.
Finally,  the Winston-Salem Support Group meets @ Highland Presbyterian =
Church, 2380 Cloverdale Avenue, Winston-Salem, the third Sunday of the =
month at 3pm.=20
=20
Work for a Cure.
=20
=20
Stephanie M Dorsch

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<HTML>
<HEAD>

<META content=3Dtext/html;charset=3Diso-8859-1 =
http-equiv=3DContent-Type><!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 =
HTML//EN">
<META content=3D'"MSHTML 4.72.3110.7"' name=3DGENERATOR>
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<BODY bgColor=3D#ffffff>
<DIV><FONT face=3DArial size=3D2><BR><BR>&nbsp;</DIV></FONT>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>Parkinson's Action=20
Message:</FONT><FONT=20
size=3D3>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbs=
p;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp=
;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;=
&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;=20
September 29, 1998</FONT><FONT size=3D3></FONT>=20
<DIV><FONT color=3D#000000><FONT size=3D3></FONT></FONT><FONT=20
size=3D3></FONT>&nbsp;</DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>The people of North =
Carolina need=20
to contact their representatives in Washington DC, and especially =
Senator=20
Faircloth, who is on the Appropriations committee. ( people with =
Parkinson's=20
</FONT></FONT></FONT><FONT size=3D3><FONT color=3D#000000>disease, their =
care takers=20
and others who have an interest in Parkinson's.)</FONT></FONT></DIV>
<DIV><FONT size=3D3><FONT color=3D#000000></FONT></FONT>&nbsp;</DIV>
<DIV>&nbsp;</DIV>
<DIV>WHY ?</DIV>
<DIV>&nbsp;</DIV>
<DIV>Because in June, while attending the fifth Annual Public Policy =
Form in=20
DC.&nbsp; I took a large package of petitions signed by North =
Carolinians in=20
support of passage of the appropriations part of the Udahl Parkinson's =
Research=20
Act. A package was given to Senator Faircloth of all the petitions. A =
second=20
package of duplicate petitions were divided and given to each district=20
representatives.</DIV>
<DIV>&nbsp;</DIV>
<DIV>We need to be diligent, to make sure, as the committee and the =
congress=20
broker things that passage will happen. The passage should include words =
to the=20
effect that these funds will go direct, the full $100 million to direct=20
Parkinson's Research.</DIV>
<DIV>&nbsp;</DIV>
<DIV>We need to emphasize this because&nbsp; through a study, it was =
found the=20
NIH was not fully funding Parkinson's Research. The researchers reviewed =
the=20
actual grants the NIH counted as &quot;Parkinson's&quot; and found the =
NIH is=20
padding the total with $67 million in grants not focused to Parkinson's. =
This=20
means only about $40 million will be spent on Parkinson's -focused =
research=20
in1999.</DIV>
<DIV>&nbsp;</DIV>
<DIV>Congress MUST direct the NATIONAL INSTITUTE OF HEALTH to fully fund =
the=20
Udahl Act.</DIV>
<DIV>&nbsp;</DIV>
<DIV>While in DC, at the forum, three speakers related information about =
the=20
research going on. Last year, the thinking was a cure in 5 to 10 years. =
This=20
year the statement was made a cure in 2 to 4 years, all because of the =
on going=20
research. There are three new drugs on the market this year.</DIV>
<DIV>&nbsp;</DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>Research is the =
engine that is=20
going to deliver the cure, and it takes money to fuel the engine. To =
ensure that=20
at least $100 million in Parkinson's -focused research is included in =
the 1999=20
Labor-HHS Appropriations Bill. Please call and or write to your =
representative=20
and especially, to Senator Faircloth, who is on the Appropriations=20
Committee.</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3></FONT></FONT>&nbsp;</DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>Enclosed is the AARP =
toll free=20
number 1-800-361-5222 to reach the legislative hotline. Mailing address: =
United=20
States Senate, Washington DC, 20510</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT=20
size=3D3>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbs=
p;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp=
;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;=20
United States House of Representatives, Washington, DC =
20510</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>or your local reps.=20
office.</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3></FONT></FONT>&nbsp;</DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>While in DC, I met =
with every NC=20
congressional representative or their health aide, dropping off a packet =
of the=20
latest information about Parkinson's Research. I related that I was from =
North=20
Carolina and that I was at the forum on behalf of the people with =
Parkinson's=20
who could not be there.</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3></FONT></FONT>&nbsp;</DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>I ask your assistance =
because we=20
will all benefit. There are 60,000 people a year who are diagnosed with=20
Parkinson's Disease. If each spends an estimated $3000.dollars a year on =

medicine, just figure out the cost. Then add the people who already =
have&nbsp;=20
Parkinson's, the sum is quite large!</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3>&nbsp;</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>The information I =
have printed in=20
this message comes from the Parkinson's Action Network and the National=20
Parkinson's Foundation</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>.</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>Finally,&nbsp; the =
Winston-Salem=20
Support Group meets @ Highland Presbyterian Church, 2380 Cloverdale =
Avenue,=20
Winston-Salem, the third Sunday of the month at 3pm. =
</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3></FONT></FONT>&nbsp;</DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>Work for a=20
Cure.</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3></FONT></FONT>&nbsp;</DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3></FONT></FONT>&nbsp;</DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>Stephanie M=20
Dorsch</FONT></FONT></DIV></DIV></BODY></HTML>

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