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		LISTSERV Archives
		PARKINSN Home
		PARKINSN October 1998, Week 3

Subject:

Re: My mom (Rae) 74/50/45

From:

Sharon Starr <[log in to unmask]>

Reply-To:

Parkinson's Information Exchange <[log in to unmask]>

Date:

Tue, 20 Oct 1998 09:10:16 -0700

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I'm going to try and make this direct and to the point for all our =
sakes.  Mom is going to the neurologist again Monday and I have some =
questions for ya'll.    :)    (And I'm from the west coast)     :)
Mom's meds are as follows (approx.. times):   7 AM - Carbodopa/Levadopa =
(C/L) =3D one 25/250       11 AM - C/L 1/2  of 25/250 and 1/2 of 10/100  =
     3 PM - C/L  1/2 of 25/250 and 1/2 of 10/100     =20
Up until 2 weeks ago, she was also taking 25 mg. Seroquel 3X daily.  It =
was originally prescribed to help with hallucinations when trying Tasmar =
(a terrible med. for Mom, by the way) but surprisingly acted as an =
excellent agonist.  However, it has increasingly made her a lethargic =
robot and less able to think.  So, I cut her down to 1/2 a pill 3X a day =
which was better but not good enough.  Now, she's only taking 1/2 around =
4 pm IF she needs it for tremor (usually does).  The rest of the day the =
tremor is controlled although she does usually need her Sinnemet about =
an hour earlier than above.  Anymore Sinnemet and she into dyskenisia =
(sp?) (Mom and I call it the "willys"). =20
NOW for the question:  We need suggestions for an agonist that will help =
keep her as alert as possible without causing hallucinations.  I've been =
lurking long enough now to know we should cut down on Sinnemet when =
adding an agonist (that was never done before).  I even talked to her =
doctor yesterday regarding cutting it back but she disagreed, saying it =
depends on what stage of the disease your in whether or not you cut it =
back.  But I will anyway if she starts hallucinating like she always has =
before.  She has not tried an agonist for about 5 years because of the =
side effects they caused before.  Thank you for your considerations.  =
You are all so knowledgeable and I just started CG Mom in March.  I have =
a lot to learn yet.
Sharon Starr      Florence,  AZ     [log in to unmask]


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<HEAD>

<META content=3Dtext/html;charset=3Diso-8859-1 =
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<DIV><FONT color=3D#000000 face=3D"Times New Roman" size=3D2><FONT =
face=3DArial=20
size=3D3>I'm going to try and make this direct and to the point for all =
our=20
sakes.&nbsp; Mom is going to the neurologist again Monday and I have =
some=20
questions for ya'll.&nbsp;&nbsp;&nbsp; :)&nbsp;&nbsp;&nbsp; (And I'm =
from the=20
west coast)&nbsp;&nbsp;&nbsp;&nbsp; :)</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"Times New Roman" size=3D2><FONT =
face=3DArial=20
size=3D3></FONT></FONT><FONT color=3D#000000 face=3D"Times New Roman" =
size=3D2><FONT=20
face=3DArial size=3D3>Mom's meds are as follows (approx.. =
times):&nbsp;&nbsp; <U>7=20
AM - Carbodopa/Levadopa (C/L) =3D one=20
25/250</U>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; <U>11 AM - C/L 1/2&nbsp; =
of=20
25/</U><U>250 and</U><U> 1/2 of =
10/100</U>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;=20
<U>3 PM - C/L&nbsp; 1/2 of 25/250 and</U><U> 1/2 of=20
10/100</U>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </FONT></FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"Times New Roman" size=3D2><FONT =
face=3DArial=20
size=3D3>Up until 2 weeks ago, she was also taking 25 mg. Seroquel 3X =
daily.&nbsp;=20
It was originally prescribed to help with hallucinations when trying =
Tasmar (a=20
terrible med. for Mom, by the way) but surprisingly acted as an =
excellent=20
agonist.&nbsp; However, it has increasingly made her a lethargic robot =
and less=20
able to think.&nbsp; So, I cut her down to 1/2 a pill 3X a day which was =
better=20
but not good enough.&nbsp; Now, she's only taking 1/2 around 4 pm IF she =
needs=20
it for tremor (usually does).&nbsp; The rest of the day the tremor is =
controlled=20
although she does usually need her Sinnemet about an hour earlier than=20
above.&nbsp; Anymore Sinnemet and she into dyskenisia (sp?) (Mom and I =
call it=20
the &quot;willys&quot;).&nbsp; </FONT></FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"Times New Roman" size=3D2><FONT =
face=3DArial=20
size=3D3><U>NOW for the question</U>:&nbsp; We need suggestions for an =
agonist=20
that will help keep her as alert as possible without causing=20
hallucinations.&nbsp; I've been lurking long enough now to know we =
should cut=20
down on Sinnemet when adding an agonist (that was never done =
before).&nbsp; I=20
even talked to her doctor yesterday regarding cutting it back but she =
disagreed,=20
saying it depends on what stage of the disease your in whether or not =
you cut it=20
back.&nbsp; But I will anyway if she starts hallucinating like she =
always has=20
before.&nbsp; She has not tried an agonist for about 5 years because of =
the side=20
effects they caused before.&nbsp; Thank you for your =
considerations.&nbsp; You=20
are all so knowledgeable and I just started CG Mom in March.&nbsp; I =
have a lot=20
to learn yet.</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 face=3D"Times New Roman" size=3D2><FONT =
face=3DArial=20
size=3D3>Sharon Starr&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Florence,&nbsp;=20
AZ&nbsp;&nbsp;&nbsp;&nbsp; <A=20
href=3D"mailto:[log in to unmask]">[log in to unmask]</A></FONT></FON=
T></DIV>
<DIV><FONT color=3D#000000 face=3D"Times New Roman" size=3D2><FONT =
face=3DArial=20
size=3D3></FONT></FONT>&nbsp;</DIV></BODY></HTML>

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