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		LISTSERV Archives
		PARKINSN Home
		PARKINSN October 1998, Week 3
Subject:
TELL OUR STORY !
From:
"J. WALDRON" <[log in to unmask]>
Reply-To:
Parkinson's Information Exchange <[log in to unmask]>
Date:
Fri, 16 Oct 1998 09:58:38 -0500
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The comments that I read on the line Oct 14 were so timely for my own =
personal campaign . Your reasoning greatly added to my basis. Thank you =
all very much .

One very good point that many of you made was how self-defeating our =
desire to "put a good foot forward" could be. I really like Dennis =
Greene Greene's responses to "How are you?" If you don't mind, I will =
also use them - they're great!=20

I feel very emphatic that the public must be educated to our problems =
before enough concern (and money) stimulates researchers to find a cure! =
 A recent event prompted my letter to the editor of our local newspaper. =
I was told it would be printed!  I hope it will. Below is a copy of that =
letter . If anyone can use the thoughts and ideas expressed here, please =
copy.   Also any other approaches for my effort will be appreciated.

An open letter to the Two couples at Windy=92s restaurant on October 10:

You may not even remember us but we remember you. Our party also =
consisted of 2 couples =96 we sat at the booth behind you. As we =
finished our lunch and rose to leave, we heard you "whisper" quite =
loudly, "Is she retarded?"

Dear Lady, I wish you had spoken to me and not of me. You see, I have =
Parkinson=92s Disease. Had you asked I could have told you about others =
like myself who live with this affliction every day.=20

Perhaps I should thank you for solidifying my resolve to educate the =
public about P.D. Please read on.

We did nothing to become contaminated with this disease.. We are not =
being punished for some evil we committed -- yet you treat us as though =
we did!

We are not contagious! Yet you treat us as though we were.

We are not mentally retarded though you often speak about us rather than =
to us.

Talk to us and listen carefully. Speech is sometimes difficult.

We are not useless people. Our ears are not deaf though we may speak in =
a whisper.=20

Speak knowing that we hear and comprehend!

Even though we move strangely and walk differently our minds still =
function. Inside we are just like you!

We are locked in a vehicle whose fuel is medication. Take away the =
medication and our mind continues to function albeit burdened with the =
pains of a body that is behaving like an unruly child.

If we had cancer would you treat us this way? What about heart disease, =
diabetes or any number of non-visual afflictions? Would you look at us =
in the same way? Would you whisper so that we could hear?=20

Yes, Parkinson=92s is a degenerative disease. There is no known cause =
and there is no known cure. In the past research has fallen far short; =
but with funding from legislation like the Udall bill, there is =
significant reason for hope on the horizon. Many new effective =
medications have recently been introduced and more are on the way.=20

I am more fortunate than others. I speak for all of us who live with =
this malady.=20

Don=92t gawk! We have enough problems without the reproach you place on =
us.

Be informed. Support research for P.D. and most of all, remember that we =
are real people.

For more information on Parkinson=92s=92 disease and the local support =
group, call 786-2484.

Carroll Waldron 56/15+













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<BODY bgColor=3D#ffffff>
<DIV><FONT size=3D2>
<P>The comments that I read on the line Oct 14 were so timely for my own =

personal campaign . Your reasoning greatly added to my basis. Thank you =
all very=20
much .</P>
<P>One very good point that many of you made was how self-defeating our =
desire=20
to &quot;put a good foot forward&quot; could be. I really like Dennis =
Greene=20
Greene's responses to &quot;How are you?&quot; If you don't mind, I will =
also=20
use them - they're great! </P>
<P>I feel very emphatic that the public must be educated to our problems =
before=20
enough concern (and money) stimulates researchers to find a cure!&nbsp; =
A recent=20
event prompted my letter to the editor of our local newspaper. I was =
told it=20
would be printed!&nbsp; I hope it will. Below is a copy of that letter . =
If=20
anyone can use the thoughts and ideas expressed here, please =
copy.&nbsp;&nbsp;=20
Also any other approaches for my effort will be =
appreciated.</P></FONT><FONT=20
size=3D2>
<P><EM>An open letter to the Two couples at Windy&rsquo;s restaurant on =
October=20
10:</EM></P>
<P><EM>You may not even remember us but we remember you. Our party also=20
consisted of 2 couples &ndash; we sat at the booth behind you. As we =
finished=20
our lunch and rose to leave, we heard you &quot;whisper&quot; quite =
loudly,=20
&quot;Is she retarded?&quot;</EM></P>
<P><EM>Dear Lady, I wish you had spoken to me and not of me. You see, I =
have=20
Parkinson&rsquo;s Disease. Had you asked I could have told you about =
others like=20
myself who live with this affliction every day. </EM></P>
<P><EM>Perhaps I should thank you for solidifying my resolve to educate =
the=20
public about P.D. Please read on.</EM></P>
<P><EM>We did nothing to become contaminated with this disease.. We are =
not=20
being punished for some evil we committed -- yet you treat us as though =
we=20
did!</EM></P>
<P><EM>We are not contagious! Yet you treat us as though we =
were.</EM></P>
<P><EM>We are not mentally retarded though you often speak about us =
rather than=20
to us.</EM></P>
<P><EM>Talk to us and listen carefully. Speech is sometimes =
difficult.</EM></P>
<P><EM>We are not useless people. Our ears are not deaf though we may =
speak in a=20
whisper. </EM></P>
<P><EM>Speak knowing that we hear and comprehend!</EM></P>
<P><EM>Even though we move strangely and walk differently our minds =
still=20
function. Inside we are just like you!</EM></P>
<P><EM>We are locked in a vehicle whose fuel is medication. Take away =
the=20
medication and our mind continues to function albeit burdened with the =
pains of=20
a body that is behaving like an unruly child.</EM></P>
<P><EM>If we had cancer would you treat us this way? What about heart =
disease,=20
diabetes or any number of non-visual afflictions? Would you look at us =
in the=20
same way? Would you whisper so that we could hear? </EM></P>
<P><EM>Yes, Parkinson&rsquo;s is a degenerative disease. There is no =
known cause=20
and there is no known cure. In the past research has fallen far short; =
but with=20
funding from legislation like the Udall bill, there is significant =
reason for=20
hope on the horizon. Many new effective medications have recently been=20
introduced and more are on the way. </EM></P>
<P><EM>I am more fortunate than others. I speak for all of us who live =
with this=20
malady. </EM></P>
<P><EM>Don&rsquo;t gawk! We have enough problems without the reproach =
you place=20
on us.</EM></P>
<P><EM>Be informed. Support research for P.D. and most of all, remember =
that we=20
are real people.</EM></P><EM></EM>
<P><EM>For more information on Parkinson&rsquo;s&rsquo; disease and the =
local=20
support group, call </EM><EM>786-2484.</EM></P>
<P>Carroll Waldron 56/15+</P>
<P>&nbsp;</P>
<P>&nbsp;</P>
<P>&nbsp;</P>
<P><BR></P>
<P>&nbsp;</P></FONT></DIV></BODY></HTML>

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