"Nancy D. Mullen" wrote:

> Barbara
> Call your doctor or fax your letter to her maybe with questions about when
> the headaches started getting worse again, maybe with a information check
> off sheet.
>
> Here is what I did when I got the continuous headaches.  I Faxed a
> checklist that looked similar to this:
>
> ---------------------------------------------------------------------------------------------------------------------------
>
> NANCY MULLEIN   B.D.- 8/19/58
> PHONE NUMBER
> ADDRESS
>
> HEADACHE ED-  INDOMETHICIN   7 AM, 1 PM, 7 PM
>
> REGULAR MEDS ------(LIST ALL MEDS)
>
> SINEMET 25/250  7AM, 10AM, 1AM, 4PM,7PM
> MIRAPEX .125     9AM,  ........
>
>
> *****BARBARA -- the date,  med time,hdache time ,.....etc. are on one
> line.  Sorry I could not fit them that way here..
> DATE  ||   MED TIME  ||  HD.ACHE  TIME ||  LASTED ||  ACTIVITY  ||
> 11/16/98    7AM                5AM                        2HRS
> SAT UP
>
>
> AFTER SLEEP
> B.P.   ||                            || HRS/SLEPT  ||    DIET POP(BARB:)
> UR BLOOD PRESSURE     12 AM- 5 AM
>
>
> HEADACHE
>
> 1.I  went to a neurologist that t specialized in headaches. and he
> prescribed the Indomethicin.
>
> 2.As for neurontin , I was prescribed it for the myoclonic jerking
> episodes. Worked well for ME at  first, but it caused severe water
> retention ( ie.emergency room) and was taken off of it- --- NOT
> RECOMMENDING  FOR ANYONE --just my reaction
>
> 3. My causes---
>      a. spaced my activity and nap(s). walked ,then,
>      b. My headache med  and blood pressure med did not interact well
>      c sleep with my head and feet elevated to what works for ME
>
>  4..IF  headaches start  feeling  pass MY pain level (which they began to
> but not as bad as before)
>         I start the check list again cause MAYBE  I changed  my  daily
> routine,meds,       etc.(which was changed).
>
>     E. I FAX AND CALL MY DOCTOR AGAIN
>     F. WHEN THE HEADACHE GOES AWAY ,I REST ABIT  , THEN MY MY H.H.A.
> ASSISTS ME TO BEGIN ANOTHER DAY:)
>
>
> ***** Controlling my headaches seemed to take forever!!  I was to the
> point of biting my pillow to keep from screaming and crying.---you're
> right the pain whew !!!
>
> BACKACHE
> 1. went to Physical therapy  for evaluation.
> 2. wrong posture ---leaning too far forward , shoulders sorta humped over,
> shoes needed excellent support ( and had to look great too:), putting my
> weight on my walker (3 wheel ,brakes, winnie walker), cane - walking top
> of my body bent to the side, hips were weak,
> Posture just totally wrong.
> WHAT I Chose to do-
> ----work on my posture, a friend of mine gave me a pair of shoes that she
> bought and never wore which fit me, work with the Physical therapist.
>
> I know this may look lengthy but it  works for me. Ask ur doc about what
> she thinks are causing the headaches and for P.T.  I will typed the check
> off list if u want  me too.  There is a program that u can type the info
> into, I think it is MS office or  Excel.  I will check .
>
> Nancy:) / Angel_3
>
>
> BARBARA DAVIS wrote:
>
>> I was wondering if anyone headaches the way I do.  I was diagnosed with
>> Parkinson's of August of 93.  I never really had headaches before that,
>> may be one on two a year.in funny way I made by peoplewho had
>> headaches.  I started getting headaches about 1995 they came one slow
>> and in the notice them.  This time on, they got less.  The doctors need
>> mean this in a lead that.  If not work.   I am taking now Neurontn 3
>> -300mg a day now.  I do not think they were working at first .  The
>> doctor cut the amounts I was taking, I noticed it will getting worse
>> again.This is how  my head feels like.  I wake up with a headache 99
>> percent of the time.  on average they it will take my head two hours
>> before pillow halfway decent.  when it is aching I have a tight cap on
>> my head.  Team needles , sweating in my head within my head,   at the
>> same time it could be burning.  My face has a headache,.  My head is
>> going to explode like last nightI had a back. I have had the back ack
>> for six days now. the last time I had a back like this was at least six
>> years ago.  As a strategy saying, my hair and my back of going to the
>> same time .one good thing was Parkinson's was not too bad yesterday.  By
>> the end of night I was crying because my head was killing me. and I'm
>> back was bothering me .I was crying and Praying to God to help me.  Last
>> night I cannot take the pain no more.  I wish I was dead.  That's how
>> they had my head was.  My head has not been bad. at leastsix months to a
>> year.  That I wanted to die.Barbara Davis
>