Hilary Blue wrote:
>
> "The disease is you; you are the disease."
>
> Thus sayeth Jane Amy Blue, only six weeks since she left her home to live in
> a group home under the guardianship of the foster care department. She no
> longer speaks English; rather a sort of Psych 101, that is, on the rare
> occasions that she actually  talks  to me.  When I queried her therapist as to
> where Jane Amy got this new philosophy from,  I was told "she is an
> intelligent child. She can think for herself".  but that must have come up as
> a response to  therapy. After all, why did they  take her away from me  if
> they didn't believe something like that themselves.
> Can't they see I'm a human being. That I think, and read, and play the piano,
> and cook, and sometimes even wash dishes. Can a disease do all those things?
> No, I protest most vigorously. How can  my child Believe that of me. Does she
> really see me  only in that way - as an embodiment of Parkinson's Disease? Who
> taught her to sew, and to knit, and to sing, and to love music. Who gave her
> her love of books, put her to bed at night, held her tight  when she cried in
> her sleep, put on a bandage when she scraped her knee, helped her with her
> homework, listened to her practise her part in the play....
> No, it wasn't Parkinson's, it was I , the me that is real, the me that exists
> inside of, and outside of the disease. The me that loves her and wants her
> home with me, the me that keeps me going when my  legs wobble, and my feet are
> stuck to the ground, the me who has to go to court on Monday and smile
> sweetly, while others determine whether my children will eventually come home
> to live with me, the me who has to persuade that judge, that I am ME, and NOT
> a disease !!!
>
> Hilary Blue (49,25,16)